Episode 53 SN: Surprised by Preeclampsia: Jess’s Story

Today’s guest did not anticipate that pregnancy would offer a totally smooth ride to parenthood, but the ride she did encounter included a number of experiences that were nowhere near her radar. Managing a lot of challenging conditions like preeclampsia, and post partum anxiety had significant effects on her: first it encouraged her to reimagine what her family would look like and to find contentment in this family even though it wasn’t what she originally pictured; it made her really engage in caring for herself, to focus on both her mental and physical health; and lastly, this experience made her feel grateful for the life she has now.

Find Jess’s podcast, Only You Podcast

Patent Ductus Arteriosus

https://www.mayoclinic.org/diseases-conditions/patent-ductus-arteriosus/symptoms-causes/syc-20376145#:~:text=Patent%20ductus%20arteriosus%20(PDA)%20is,called%20a%20patent%20ductus%20arteriosus.

Audio Transcript:

Paulette: Hi welcome to War Stories from the Womb. I’m your host Paulette Kamenecka. I’m an economist and a writer and the mother of two girls.

Today’s guest did not anticipate that pregnancy would offer a totally smooth ride to parenthood, but the ride she did encounter included a number of experiences that were nowhere near her radar. Managing a lot of challenging conditions like preeclampsia, and post partum anxiety had significant effects on her: first it encouraged her to reimagine what her family would look like and to find contentment in this family even though it wasn’t what she originally pictured; it made her really engage in caring for herself, to focus on both her mental and physical health; and lastly, this experience made her feel grateful for the life she has now

Let’s get to her inspiring story.

P: HI thanks so much for coming on the show. Can you tell us your name and where you’re from?

 

Jessica: Absolutely. My name is Jessica Meyer. I’m from the Seattle area. And I host only you a one and done podcast with my husband. Cool. Wow.

 

P: So I’m gonna get to ask it sounds like you have one child. 

 

J: I sure do. 

 

P: So before you had this child, I imagine you had some idea about what pregnancy would be like. What did you think it would be like?

 

J: I thought I would be anxious during pregnancy. I definitely was aware of that. I’ve struggled with anxiety my whole life, but I also kind of had this sense of confidence. Like, this is what my body’s supposed to do. I’m going to be able to roll with it. You know, whatever comes my way. I had this intuition. I think somewhere that it was not going to be the easiest pregnancy.

 

P: Okay, that seems much more attuned to how complicated the process really is.than most of us are on the entrance, but I’m interested to hear so did you get pregnant easily?

 

J: That part was easy. So I am one of five children. And my mom has always told me that it’s like for our family getting pregnant is usually the easy part. And also for my mom, her deliveries were really fast. So I only tried for a week, and I was pregnant. 

 

P: Oh, wow. 

 

J: Yeah, I got off birth control and I was pregnant one week later.

 

P: Was that exciting or were you like, Oh, my God, I I’m not ready.

 

J: I was so mad at my mom because she told me it would take a little while she told me it would take after birth control that it would take about six months. That was her advice. She was like, it’s easy to get pregnant. But if you’ve been on birth control, sometimes it takes your body a little bit of time to like, you know, catch up and so give yourself three to six months after birth control and it should happen pretty easily for you. But it happened immediately for me and so I was like, You lied to me. You told me I had three to six months. And now let’s just here just like that. 

 

P: Yeah, that does sound like pregnancy on demand, which makes for wafer thin adjustment period. So you find out with a home kit is that how you found out?

 

J: Yep. My husband knew before I did. I was particularly moody and emotional, a different part of our lives. We were also closing a business that we used to own. So I was sort of in the process of cleaning up the retail store and saying goodbye to this really important chapter in my life. So I was really emotional anyway. And I remember one morning before one of the last days or no it was the very last day of my business being open. I was crying. And my husband was making me an apology breakfast for for nothing right. But he didn’t have bacon and so he went to the store to get some bacon and he came home with a pregnancy test. He was like, just in case, you know, he knew that we had been trying and he was like, You seem a little different. And I know it’s the last day of your store. But why don’t we take that too and I was just like, flippant, you know, whatever. I’m so sure. I’ll take it fine. And wouldn’t you know it? It was positive. So 

 

P: wow, 

 

J: we found that out on the last day of this other chapter. It was really beautiful.

 

P: There’s a story book element that timing. As you’re closing the doors on the store, you’re opening them onto this new adventure. So take us through your pregnancy. How was it the beginning? What did you have morning sickness or anything like that?

 

J: Yeah, I was a waitress at the time. So I had left that business and I started waitressing because we knew that I was probably going to want to stay at home with the baby so I just wanted the job for the in between times. And I was very sick in the first trimester. I remember potatoes would make me really really nauseous and I worked in a restaurant that had a lot of French fries. And just the smell of that would make me so sick. But it was I didn’t actually like throw up that much. It was more just a general feeling of queasiness all the time.

 

P: Yeah. And did that go away after the first trimester? 

 

J: it sure did

 

P: Good. Okay, good. And then and then how was the pregnancy after that?

 

J: Well, it was at the 20 week scan that we found out that my daughter was small. She was you know, in a low percentile, I think about the 20th percentile at that time. And we also found out a couple other things. I had marginal chord insertion, which meant that the umbilical cord was sort of right at the end of the placenta, and that can cause growth restriction as well. And then we found out that her kidneys were not developing quite right. And that’s an issue that my nephew had struggled with as well and he kind of just grew out of it. So that 20 week scan, for me was very confirming for a lot of the anxieties that I had kind of struggled with. I remember at the very beginning of my pregnancy and pretty much throughout the whole thing I was glued to this website that tells you how likely you are to miscarry that day. It’s a percentage, and it goes down every day as you get further along into your pregnancy and I was terrified of losing this baby at that time. I didn’t know I’d be one and done. But I still don’t know it was my first pregnancy and I already an anxious person. So I just felt fear and so when we had that 20 week scan it was like see you were right all alone to be scared.

 

P: well that sounds regrettably eventful. That’s a lot going on.

 

J: It was it. It scared me. 

 

P: Let’s go slow for one second here. You’re sitting down but you don’t look giant like somebody

 

J: I’m very small. 

 

P: So somebody has to be in the 20th percentile like why not? Your baby?

 

J: Totally. Yes. I’m, I’m five to and like, you know, 120 pounds or something before pregnancy. So the doctors were like, Yeah, you’re small. My whole family is small. We’re all you know, petite women. My husband is like six five or six something I don’t know. So it could go either way with our daughter. But they weren’t so worried about the small aspect, but it was that plus the marginal court insertion that had them a little bit worried because they needed to be able to keep an eye on the blood flow. 

 

P: Yeah. 

 

J: And to make sure that she was actually getting everything she needed and not to spoil the story, but she wasn’t

 

P: and the kidneys. Is that a genetic issue since you said your cousin have as well or

 

J: it may be genetic. It’s also just a common issue for babies just in general and it’s almost always something they grow out of. It’s just one of those things we had to keep an eye on as she it was like, I don’t even remember anymore. Whatever her kidneys were connecting to that connection was too thin. I’m sure there are folks out there who know more about it. But luckily that didn’t end up being one of her long term health issues going forward. 

 

P: Good. And so what do they do after this? Can to kind of keep an eye on you?

 

J: They just did more ultrasound so I think we did an ultrasound after that every month. And I think that was pretty much it. I was with maternal fetal medicine instead of a midwife at that point. They were just watching us really closely watching my weight watching the baby’s growth and she went from the 20th percentile at 20 weeks to like the 10th or maybe the fifth by 30 weeks. So she was definitely growing very slowly and not in line with her own curve. You know, so if she were at the 20th and stayed at the 20th that wouldn’t have been an issue but they could see her kind of getting smaller and smaller. 

 

P: Well, that sounds stressful. How are you between ultrasounds?

 

J: I was a wreck. Oh my gosh, trying to eat as much as I could. And I remember feeling really guilty. Because I am such a small frame. I wasn’t. I felt like I was putting a lot. I felt like I was putting on a lot of like water weight. You know, I felt very swollen. But I wasn’t really gaining that much and I just felt like I blamed myself. All the time, because it must be me because I remember when I was sharing with my husband’s mom one time how anxious I was. She said Don’t even worry about it. The baby’s going to be fine on our side of the family. We’ve never had any trouble with newborns. They’ve always been perfect. And those words were just ringing in my head like okay, so you’re saying if anything goes wrong, and it’s 100% me, it’s not your side of the family. I hear that. I’m going to take that in. That’s all I could hear but she was trying to comfort me. 

 

P: also Pregnancy is a weird state have 100% responsibility and no control. 

 

J: totally right. Yeah. 

 

P: So it is hard not to feel responsible for something going on inside you. Yeah, but you really obviously you didn’t put the umbilical cord where was 

 

J: I did not. Not intentionally,

 

P:  that there’s not you know unless you’re not like, you know, smoking or you know, drinking too much alcohol like there are limits to what you can really do. 

 

J: Right. 

 

P: But I’m sympathetic. We’ve been into trouble during my pregnancy that required a lot of extra monitoring. I’ve never been a smoker, the anxiety of the waiting between those scans. definitely piqued my interest in becoming one. This is like a terrible…

 

J: Yes, completely.

 

P: It’s very hard not to feel like you’re personally being evaluated in those scans. And it’s hard to separate out, you know, the distinction between what my body is doing and what I’m doing. 

 

J: Sure,

I think honestly, during pregnancy was the beginning of a long journey that I had with hyper vigilance. So during pregnancy, I was extremely by the book, you know, I was checking every single thing before I ate it. I wasn’t taking any medications that weren’t on the list even you’re drinking tea right now and it reminds me I was checking tea. What tea can I have? What do you can take out, you know, things that most pregnant women I think don’t worry too much about. I was hyper focused on the safety of my baby. And that was before I even knew about some of her health issues. So the whole time I was trying to take control of the situation that I had very little control over

 

P: let me ask you this. Were you were you physically healthy before you got pregnant?

 

J: Yeah. Oh, yeah. I’ve always been pretty healthy. I mean, even now, I haven’t ever had any health issues, which was why my pregnancy being the way it was, I think came as such a shock.

 

P: Yeah, that is super hard. You know, once you dig into the details, like the chemistry and all that a pregnancy is a miracle that anyone’s born ever. Like, it’s so so many things have to go right in just the right way. that it’s it’s a tricky thing to nail totally. So anyway, we’re in your story. We’re we’re getting ultrasounds were 30 weeks and what happens then?

 

J: So I think we were at the 35 week scan, or maybe it was right before the 36 week scan can we go in it’s just a regular growth scan. And the night before I was a wreck. I remember I was crying my eyes out with fear of what was going to happen at that next scan. And again, I think that’s going back to some of this like, anxiety, but also some intuition. Like I was really feeling like something was wrong. And it had been, I think, I think I was at a month between scans. So the last one was 30 and this one was 34. Somewhere around there. 

 

P: Yeah. 

 

J: And I was just feeling so scared. So I was there anything

 

P: was anything physical going on. Like did you feel pain or no nothing. You just had a sense

 

J: and she was kicking like my kick counts for good. I just want to correct myself. It was 36 weeks. I had the last one at 32 This one was 36. So when we were getting ready to go the morning for we would do our appointments before my husband had to go to work. So he was in his work uniform. He had his lunch all packed. We had our coffees, but I had my go bag ready pretty early on, just in case. And we drove separately to the doctor’s appointment like we always did. And they took my blood pressure. And it was crazy high. And so they were like that can’t be right. And I remember my eyes were swollen my whole face. was swollen, but I thought it was just because I was crying so much the night before. And so they took it again and it was extremely high. And then they didn’t tell me it was high. They did the scan, and she had dropped below the fifth percentile. So she was like somewhere in the second I think. And I remember the maternal fetal medicine doctor came in and with like, tears in her eyes almost, she was like just so sorry. You need to go to the hospital. You’re not going to be able to leave without your baby. We think you have preeclampsia. You gotta go 

 

and I was just like, what you know this was not an outcome I had prepared myself for preeclampsia. 

 

P: did you know what preeclampsia was?

 

J: I did from my you know, feverish research throughout the pregnancy of all things birth you know, I listened to a lot of birth podcasts. And I read a lot of birth books. And so to me preeclampsia was almost like a death sentence. I was really scared because I had heard a lot of really terrible outcomes. So she seemed scared. And that made me feel scared. 

 

P: Yeah, yeah. Yeah. 

 

J: And she basically said for the safety of you and your baby, that you got to go. And so I remember they put you in a wheelchair, wheeled me over the hospital. It was just like, This is crazy. Pierce called out of work. It’s like I think I’m gonna be on paternity leave now I got a you know, so I was already you know, I had already taken leave, I think for my job that so they wheeled me over, took my blood pressure again. I think at that point, like normal is 120 over 80 And I believe it was to 220 over 120

 

P: Oh my god. It was Yeah. Oh my I think the cutoff for preeclampsia is 140 over 90. 

 

J: Yeah, it was very it was like scary high and so they put me on, I don’t know some kind of medication right away They put me on a high dose of low beta low almost right away and that actually I continue to take for a long time. And I remember one of the first things they did when I got into my emergency triage room was they gave me a shot in my back for pennies. Like a steroid shot for her lung development. 

 

P: Yeah, 

 

J: is there like this is happening now. We need to get this baby ready so that she can survive. It’s just, I mean, those kinds of words being thrown around pregnant mother where she had probably stopped growing somewhere between those two scans. So not only was I having a 36 weaker, but it was a 36 weaker who was probably the size of like 32 weaker.

 

P: So but she was still kicking for that. Those weeks right between 32 and 36.

 

J: Kicking. Yeah, yes. Okay. Yeah, she was still moving really great. So when I would do my kick counts and stuff that was all good. She seemed, you know, she seemed pretty strong to me. Yeah. And, you know, she, they were checking her so they put a monitor on my belly pretty quickly as well. And that was kind of the beginning. of my birth story, right then, you know, kind of suddenly on a random Monday morning at 36 weeks.

 

P: And so are they saying it’s gonna be a C section or are they saying you can try to like did you have had you have imagined what the birth would look like?

 

J: Yeah, I had a doula who unfortunately was out of town because we were away before my due date. And they told me that they were going to try to induce because they, they wanted to avoid a C section. I don’t remember why. Something about losing Blood, I want to say they wanted to do it naturally, at all costs. That was the birth plan. So they were going to bring me in and have me stay in a room and induce me. And because I didn’t have my my midwife or like my actual doctor there. They were changing care plans a lot. So it was like, Alright, we’re gonna get you in a room now. And start inducing you or we’re gonna send you home and have you come back Friday and induce you no if you go home. You probably won’t be okay. And so they were kind of changing up my care plan a lot because the way Badal did lower my blood pressure. 

 

P: Oh, good. 

 

J: So that that worked pretty quickly on me. It was a very high dose but it didn’t have too bad of side effects or anything. And it was just funny because I felt fine. Like I felt swollen but yeah, I blood pressure. It doesn’t really feel like anything for me. At least I didn’t have the tunnel vision that they talked about or the headache. 

 

P: Yeah, 

 

J: I wasn’t really getting any of those. So it was just kind of a real surprise for me that I was even sick. And I remember them saying, honey, you’re really really sick. And just being like, how I feel fine.

 

P: That is kind of a weird disconnect. Right? 

 

J: Yeah. 

 

P: So how did the How did the induction you know?

 

J: That’s okay. So they ended up giving me a room and I spent about five days being induced. So I was there a long time. 

 

P: Oh my God. 

 

J: They had such a hard time stabilizing my blood pressure, like the labetalol would work one day the next day, it would not be working anymore. So they try a different dosage and they tried it intravenously. And then Penny is like her heart rate would go down with too much medication. So that was on Monday. I think the Pitocin didn’t even start until Wednesday, because they were still just like trying to get me stabilized. And the Pitocin and the magnesium I think happened on the same day. 

 

P: So are you in the hospital feeling anxious? Do you feel like I am where I need to be and we’ll sort this out.

 

J: It was kind of a blur at a certain point. Like the first couple days I was really glad to be there and I was really against them. sending me home. Like I do not want to do this at home like my anxiety is going to be out of control if you just have me sit there and monitor my blood pressure. Because you know, all throughout the night and day I had this monitor on my belly for a penny and then I had a cuff and I think every hour the cuff would go off. And then I could hear Penny’s monitor every moment. And so I was just like in full on hyper vigilance mode. 

 

P: Yeah. 

 

J: And like my mom was there my husband and like, luckily, this was pre COVID. So I could have, you know, a couple people there with me, but I just I wanted to stay in the hospital at all costs. And they weren’t going to send me home anyway. I don’t think so. The first couple days. I was definitely feeling like part of the care team. You know, I was really trying to make sure whatever medication I was on wasn’t affecting her and trying to manage my dosages and stuff. And then once they put me on the magnesium on Wednesday, I was kind of I was kind of useless to the world. There were a lot of side effects for the magnesium. I was very shaky. 

 

P: Yeah, 

 

J: like almost tremors they put me on. They put me on some drug at some point that they told me it would be like a glass of wine. And it was not like a glass of wine. It was like a bottle of wine for me. My husband always teases me and says that I asked the doctor I kept calling him man. I was like hey man. How are you? Like what? He said, I just seemed like I was my old self. But like way before being a mom like I was at a party.

 

P:  I feel like that’s the way to do it. That sounds right.

 

J: I wasn’t worried about anything for that amount of time but I was still very shaky and so the cervadil and the Pitocin. I think those both started really working on Thursday. And then I was about four centimeters dilated on Thursday. And there was a point where they felt like, although the induction medications were working, they were actually putting too much strain on Penny. So every time I would have a contraction, her heart rate would go down. So they started talking about a C section at that point. They were like this induction is actually going to be too much on her. If we keep trying to go this route. She might not make it. You might not make it. So we were talking about a C section and I was really pushing for that. I was like I do not care about natural birth versus a C section. Whatever is safest like, please just take me down there. I want to be done like I want to be safe. But they were really adamant on doing it naturally. So we kept laboring, things kept moving. And then finally very early Friday morning she was born.

 

P: Wow. So have you slept at all of these five days. I feel like….

 

J: no

 

P:  I feel like the blood pressure cuff alone would wake you up every hour. 

 

J: Certainly not more than an hour at a time. No. Wow. I I was in a fog. I hardly remember. My husband was kind of updating our family in a group chat. I remember watching movies. We watched Shrek at one point I think it was sort of like a dream state.

 

P: Can you can you push when you have magnesium?

 

J: I did. I guess 

 

P: Wow. 

 

J: can I say something kind of gross. 

 

P: Yeah. 

 

J: Is that okay on a podcast like? So I’m very stubborn. And I remember when they finally took me into the birth room, so I had been laboring in a labor room and then they are going to take me into the birth room where they had a NICU team at the ready. And they had like a warming table. It was a huge room. I think this was the room they take women who are having a high risk labor so there’s like 10 people in there. Yeah. And it felt like a spaceship. I was so out of my mind. And for some reason on TV, there was a space show. So I felt like I was giving birth like on a spaceship. And they were like okay, they gave me the epidural. 

 

P: Yeah, 

 

J: there was nothing. That was fine. I was like that was fine compared to all the other things you guys have been doing to me. And they were going to do a catheter because after you have the epidural, you know, you kind of need to do a catheter. And I was like, I’m not doing that. I’m not gonna get a catheter because I didn’t want them to have to take it out later. After all the drugs had worn off 

 

P: where’s fun bottle wine girl.

 

J; Those drugs had worn off. She would have been fine with it. This was like hungover so fun bottle of wine girl was no more and now it was hungover shaky magnesium girl. Yeah, and she was refusing a catheter. So they were like, I don’t think this is your choice. You have to go pee right now like we can tell your bladder is full and you don’t have any control. of your body. And I was like yes, I do. If you put a bedpan under me I’m gonna go pee right now.  They’’re like that’s not possible. And I was like yes if this so they put it under me and I did. I totally went pee right there. And I don’t know if the epidural totally like took because I felt a lot of labor in my back. So I guess maybe it like, halfway worked because I had total control of my bladder as well. 

 

P: Yeah. 

 

J: Which was I mean, it wasn’t super painful. It worked where it needed to work. Yeah, but I just I remember that because it was a good example of me just being so stubborn and of all the things like catheters don’t hurt that bad when you take them out. It’s not fun. But I was about to give birth and I wouldn’t let them just so stupid. 

 

P: gotta’ plant the flag somewhere

 

J: that’s where I draw the line. So the actual birth it was hard. I pushed for probably an hour and a half. Because I was so exhausted, like my body was tired and magnesium made me very out of it and I hadn’t slept. So I was just having a really hard time mustering up the strength to push so it took quite a bit of time for me to deliver her. And she was born at 1:44am on the Friday.

 

P: Wow. Oh my god, what a long labor. 

 

J: Really long 

 

P: Yeah. And what was her state when she was born?



J: So she was about four pounds. 11 ounces.

 

P: Well done.

 

J: Thank you. Not so bad. Yeah. She passed the Apgar tests greatly. So that was all good. She was cold. So she didn’t need to be in the warming table. They let her do skin to skin with me. She lashed right away. And then she did skin to skin with her dad under the warming thing or I mean like, I remember I had him wear a button up so he could do skin to skin with her, but it was like a wool button. So he was just sweating. It was way too hot. But they kind of stitched me up I had a couple of tears and yeah, she was tiny. But she was mighty. 

 

P: That’s awesome. And did she stay in the NICU for long?

 

J: So they didn’t put her in the NICU. She was just rooming with us she had like mid level jaundice. So they were just having us nurse her a lot. And unfortunately, I think our care team maybe dropped the ball. I think she probably should have gotten in the NICU. And I think she should have been observed more closely. Because they sent us home the next day that I think maybe it was the Sunday. Yeah. So we spent Saturday there and I think they sent us home on Sunday morning.

 

P: Wait, this this is too fast for me to send you home. 

 

J: I agree. 

 

P: wait,  your blood pressure is fine. Now

 

J: my blood pressure had stabilized but I was on the beta low. Okay. So I remember they were discharging us and she was doing the carseat test, which is what they do for infants under five pounds to make sure that they can like sit in a car seat. Yeah, when she passed him. And I remember being like to the doctor, hey, do you want to test my blood pressure again before I go? And he was like, No, you’re probably fine. Like they had completely stopped taking care of me. And they were just focused on her. And she seemed to be doing fine and they tested her jaundice just the one time and it was medium. So they’re like just put her in the light and feed her. Like okay, so we got home on the Sunday and she was getting yellower or and yellower and I hadn’t been able to get an appointment to get her seen for her first ever doctor’s appointment. until Tuesday. So Monday came around and it’s like she wasn’t eating very well. And they hadn’t given me any information on like supplementing with formula. I remember calling and being like, can I give her formula because I don’t know if she’s getting anything like I don’t have that much milk coming out right now. I think it’s just colostrum. They’re like hers. Her belly is the size of a nut. You know, she doesn’t need very much. I was like But she has jaundice. So we ended up getting an earlier appointment with a pediatrician. And she opened up her diaper or I did and there were crystals in the diaper because she was so dehydrated. 

 

P: Yikes. 

 

J: And she was like so she’s really dehydrated and she’s really yellow. So we’re going to need her jaundice. You know, we’re gonna have to check her jaundice. So what we’re going to do is I’m going to get you a room in the children’s hospital, so you can just go ahead and go straight there and you’ll get right into a room

 

we were like what? We have to go back to the hospital. And as it turned out her jaundice levels were like, off the charts. And she had to be she my little one day or two day old baby had to get an IV of fluids because she was so dehydrated. And that that was really hard, you know, high jaundice levels and dehydration that can that can kill an infant, you know, and I just feel like my care team really dropped the ball with us. So we ended up actually being at the children’s hospital for a few weeks, because while we were there, they found some other issues and she had a heart murmur. And it turned out she had a PDA.

 

P: Okay, according to the Mayo Clinic, a PDA is a heart condition. It stands for patent ductus arteriosus and it involves an opening between two major blood vessels that lead from the heart. This opening is supposed to exist in the fetus, and at birth is supposed to close for a baby that’s born at term. Whether it becomes a significant issue or not depends on how big it is. If it’s big, it can allow poorly oxygenated blood to travel in the wrong direction. And can weaken the heart muscle and cause all kinds of complications.

 

 J: for babies that are preemies that haven’t developed all the way it doesn’t close completely. And it’s supposed to just close over time but because she stopped cooking, it never did. So you can just hear this big murmur this big opening in her heart. And so we had to, they had to decide if they want to try to close it with a surgery or if they’re going to do a couple other things. They decided to just let it close over time. And as of today, she’s 19 months old, it still is not closed completely. It went from really big to really really microscopically small. So we’re gonna check back when she’s two to see if it closes. But she was having some issues. Like with her breathing, she was having some issues with her heart and then her jaundice was you know she had all of these different problems that probably should have been caught and taken care of in the hospital. And she should have been in the NICU getting 24 hour care, but they just kind of sent us home.

 

P: Yeah, that seems like a weird decision. Also, I guess when you told me it was going to close on its own and I wasn’t thinking of a two year timeline. Is that what you were imagining?

 

J: Most of them don’t take that long. So usually when they say it’s going to close on their own, it’s like before the three month appointment or so. 

 

P: Yeah, yeah. 

 

J: But sometimes it does take longer, just depends on the kiddo and how big it was to begin with. There’s other ways that they can do it like when it’s really big and not getting smaller for really tiny infants. I think of them like Tylenol, or ibuprofen or something like there’s there’s non invasive ways for them to fix it. But if she does end up needing a surgery, it’s pretty not easy, but it’s not even open heart. It’s just like a catheter that goes under her chest and into her heart and it just kind of like this little tiny filler where that hole is so it’s kind of you know, almost 100% success rate, but they’re not, they’re not really important. Yeah, no, no, it’s not something that’s going to follow her throughout her life. Like a lot of people who have that condition never even know about it until they’re in their 50s or 60s and they have their first heart attack. And their doctor is like, oh, when you were a baby. This part never grew in. And it’s a lot harder to do this surgery or this procedure when you’re an adult than it is when you’re a baby which is why they find it. They’d like to nip it in the bud.

 

P: Now talk to me about you How are you feeling in the fourth trimester and what’s going on with preeclampsia? And does that all work out?

 

J: wouldn’t you know it, I was still super sick. I remember when I was in the children’s hospital I felt pretty bad. And I don’t think I was taking any medication anymore. I think they just let it all come out of my system because traditionally they say the number one way to cure preeclampsia is to have a baby. I did that. And sort of I think just assumed it would solve itself. So my mom had encouraged me to get one of those at home blood pressure. cuffs at one point but we were in children’s hospital so I wasn’t going to leave her for even one second. I was having some really bad postpartum anxiety and depression and seeing her in the lights, the biliruben lights that was very traumatizing for me. So I couldn’t leave her I just couldn’t step away even for a second. And so I think it wasn’t until like a week later that I finally got out and got my blood pressure checked and it was super, super high. 

 

So I called my midwife or my doctor and they’re like, Yeah, you have to go to the emergency room. I had to leave my infant, go to the emergency room with my mom. And they were trying to decide if they were going to admit me, put me back on a magnesium drip because they were like you have postpartum preeclampsia. 

 

P: Yeah, 

 

J: you’re still a risk for a stroke or a seizure. We can’t like just let you walk around like this. 

 

P: Yeah, 

 

J: but I didn’t even notice and I think even if I was having symptoms, I wouldn’t have done anything because I just wanted to be with her. Like my my mom’s sense was too strong. I couldn’t take care of myself. But it was actually my mom. You know, convinced me so I have my baby but I’m still her baby. You know. So that was kind of a special moment for me that my mom was so involved in making sure that I was getting taken care of as well. So they ended up not admitting me I remember I was crying asking them begging them. Please don’t make me stay here. I need to get back to my baby. She’s in the hospital. And they just put me on more labetalol and I think one other medication and had me monitor it again every day on my own and it actually took three months for it to stabilize.

 

P: Yeah, that’s how it goes sometimes, right? 

 

J: Yeah. 

 

P: And how’s everyone now?

 

J: Oh, good. I’m good. I mean, I checked it for a long time, I think up to the six month mark. And then now whenever I go to the doctor and it’s been completely normal since Penny is growing amazingly well. She like skyrocketed in growth because I ended up pumping for the most part at the Children’s Hospital. They had me kind of 24/7 hooked up to have planned and so they could measure her feeds because they we had this big chart up on the wall and we would write down exactly how many milliliters she would take. You know it was like that my and then we would supplement with formula or donated breast milk as needed. So for the first few months of her life, I was nursing concurrently with pumping and doing measured feeds. And so between the first and third month she like bumped right back up to a decent percentile. You know she’s still not huge, but she was back up to like that 20th percentile range good of like, not even one. 

 

P: Yeah, 

 

J: but between birth and that first doctor’s appointment. She went from four pounds 11 ounces to just four pounds even. So she lost 11 ounces just the first day of being alive. She was really having failure to thrive, basically And the pediatrician who sort of sent us to the Children’s Hospital the first time is still our pediatrician now and every time she sees Penny, she’s like, I cannot believe this is the same baby as that stick of butter you brought it as she was the size and the color of a stick of butter.

 

P: That seems like a triumph. Right? That’s that’s a great endorsement of all parenting. Yes, I’m working on another episode of the show that includes the story of a woman who experienced preeclampsia in ways that are different from yours. And I’m putting together that story. I talked to a maternal fetal medicine doctor who specializes in preeclampsia research. And she said we need to get away from using the word cure because there’s no quote unquote cure. Preeclampsia has this extended reach and that even after delivery, both the mother and the baby from the preeclamptic pregnancy are at higher risk for cardiovascular disease going forward. In her lab at University of Chicago they’re working on biomarkers to help identify preeclampsia much earlier. Oh, she said preeclampsia comes with all these kind of vague symptoms like swelling, or you might have a headache really have a little hypertension, but there’s no protein in the urine and so it doesn’t get caught. And so her lab has figured out the ratio of these two chemicals that a preeclamptic pregnancy produces if you look at the ratio and so they can predict, you know, a month beforehand, kind of which path that you will go on because some people have hypertension and it doesn’t develop into anything. 

 

J: Sure. 

 

P: So talk to us a little bit then about your ongoing care of yourself or like what you’re doing

 

J: so I think preeclampsia basically what led to us being one and done. First and foremost. Yeah. It took me about a week from having, you know, been past that experience to say I’m not doing that again. Yeah, and talking to doctors because we’re in the hospital setting and saying Is this likely to happen again? And I’m saying well, yeah, if you’ve had it once, it’s not unlikely that you’ll have it again. It’s not 100% Guaranteed right? And then talking to my primary care doctor after having postpartum preeclampsia. They told me that because I’m like, so predisposed to hypertension, and then it kind of stuck around for so long that he would think it actually is more likely for me to have it a second time. I’m 29. Now so if I were to get pregnant again, I would be a little bit older. And for me, from what I can tell from my care team, it feels like a 5050 split, whether it would happen again in my second pregnancy. So that was my first decision. We were gonna have several kids and we decided to cut it short at one. 

 

And aside from that, I’m just a lot more involved in my care, you know, I go to my doctor’s appointment, I do yearly physicals, I try to stay active, all these kinds of things. I actually just found out that I have like permanent damage to my eyes. My optic nerve was damaged somewhere in my pregnancy. It’s possible that it was that time of very, very high blood pressure that did damage my optic nerve, but it puts me more at risk for Glaucoma. So that’s like another thing.

 

P: Can you do you feel any symptom of that now or no?

 

J: Well, I just got new glasses, but I went to the doctor just to get a routine eye exam because my vision had changed a lot pre pregnancy to now about 19 months later. And that’s normal, right? When you have a baby your vision changes, but it had gotten substantially worse. And I had this new optic nerve issue. So that’s something I have to do yearly eye exams and eventually I might have to do some glaucoma risk care. So there’s like these eyedrops that you can take to make sure there’s not too much pressure on your eyes. It’s actually very treatable if you catch it early, which luckily I seem to have done.

 

P: So Pregnancy is a stress test, obviously on everyone’s bodies, and that’s one thing it is hard to, I think, carry the burden of a potentially chronic condition. At the same time. It feels like you’re getting in at a time where maybe you can affect that trajectory. 

 

J: Yeah, 

 

P: so. That’s kind of you know, if there’s any good news to be had in this

 

 J: I feel like you know, my husband and I met and we pretty quickly got married, like within a year and a half of our first date. We are married and how to house like we moved very quickly. And we had already known each other a long time so his sister is my best friend. 

 

P: oh lovely

 

J: So we knew each other but like our first date, I should say not really when we met anyway. It just all moved so fast. And sometimes I wonder like wonder what made me want to move so quickly. And I wonder if somewhere deep inside like I wanted to do my pregnancy as early as possible before I was any older, because maybe my intuition was telling me like this isn’t going to be super easy on your body. And I don’t know. I just wonder if the universe helped me out with that or something. Because 

 

P: Yeah, no kidding. 

 

J: I kind of got out lucky all things considered. And so Penny,

 

P: totally, totally. I’m curious here. We’ll say this. If you could give advice to your younger self, what do you think you’d tell her?

 

J: I don’t think I would change anything. I wouldn’t have wanted to have a baby any earlier. That’s for sure. Yeah, just like emotionally and maturity wise. Yeah. Right. So I think I would be pretty proud of my younger self for everything that she did to get me here and get me to a place where I can be a good mom and and survive this really difficult pregnancy.

 

P: It is amazing, right? I’m sure you look at Penny as she grows every day and think I can’t believe it.

 

J: Yeah, I absolutely do. She’s my lucky penny. That’s what I call her.

 

P: That’s awesome. So how old is she now? She’s she’s not too yet.

 

J: No, she’s 19 months old.

 

P: So we’re her tricks. What does she like to do?

 

Unknown Speaker  13:40  

Oh, she’s got a big personality. She’s really funny. She likes to make people laugh a lot. So she’s like our little comedian. If she does something that makes you laugh once she will like do it a lot to try to keep getting a rise out of you 

 

P: super cute. 

 

J: She likes to copy what you’re doing so like today, or yesterday we were doing like a Baba Baba bad and then she would do it back to us. Yeah, like she’s very musical. And I don’t know, I think she’s going to be somewhere in the entertainment world because she just like she likes to be the star of the show. And being an only child is only going to add

 

P: I was gonna say to the stage already. Yes. Nice to know, totally carved her path is awesome, Jessica. Thanks. So much for coming on the show and sharing your story. It’s an important one to share and one that I think is totally hopeful.

 

J: Oh, good. Yeah. Thank you so much for inviting me and if there are any parents out there who are struggling with the decision to relive anything that they went through with their birth experience, I would just like to say to them, you know, your mental health is really important. And your physical health is really important. And if that means your family has to look different than you thought it would, that’s okay. And you can give yourself a little bit of grace for that.

 

P: Yeah, that’s a great ending message. Thank You 

 

J; Absolutely

 

 



 

Episode 19 SN: Expect the Unexpected, Sarah’s story

Today’s guest went into pregnancy without many expectations about what the process would be like. This openness likely helped her and her partner negotiate the challenging things she had to manage in delivery and the postpartum period.  After her first birth, the baby encountered an issue that landed her in the NICU, and a few days after her second delivery, my guest wrestled with some scary postpartum issues, sending her to the ICU. Now a few years out from those experiences, everyone is thriving. Listen to her inspiring story.

Cover Art comes from Hailee Wilburn-Ervin, see it at https://www.etsy.com/listing/947825013/birth-abcs-placenta-sticker (note: this is an illustration from a birth book called Birth ABCs, also available on Hailee’s Etsy site)

Spotting in the first trimester

https://americanpregnancy.org/healthy-pregnancy/pregnancy-concerns/spotting-during-pregnancy-5374/

https://www.marchofdimes.org/complications/bleeding-and-spotting-from-the-vagina-during-pregnancy.aspx

Round ligament pain

https://www.mayoclinic.org/healthy-lifestyle/pregnancy-week-by-week/expert-answers/round-ligament-pain/faq-20380879#:~:text=During%20pregnancy%2C%20pain%20in%20the,irritation%20of%20nearby%20nerve%20fibers.

https://www.webmd.com/baby/guide/pregnancy-round-ligament-pain#1

CPAP

https://eijppr.com/storage/models/article/ZIa0vPwpWifRCLLmRHFq1tEJIG9otSpXl7LizjyhrIoltIQWGQZduLUjsp0O/early-management-of-newborn-with-meconium-aspiration-syndrome-using-continuous-positive-airway-pre.pdf

Meconium aspiration

https://www.hopkinsmedicine.org/health/conditions-and-diseases/meconium-aspiration-syndrome#:~:text=Meconium%20aspiration%20syndrome%2C%20a%20leading,is%20past%20its%20due%20date.

https://www.stanfordchildrens.org/en/topic/default?id=meconium-aspiration-90-P02384

Kick counts

Statistics about maternal mortality and race

https://www.cdc.gov/media/releases/2019/p0905-racial-ethnic-disparities-pregnancy-deaths.html

https://www.cdc.gov/reproductivehealth/maternal-mortality/disparities-pregnancy-related-deaths/infographic.html

https://www.kff.org/report-section/racial-disparities-in-maternal-and-infant-health-an-overview-issue-brief/

Audio Transcript

Paulette: Hi, welcome to war stories from the womb. I’m your host Paulette kamenecka. I’m an economist, a writer and mother of two who had trouble with almost every aspect of the process of growing a family.  Before I had kids, I didn’t necessarily understand that pregnancy and birth could be a daring adventure. The same was true for today’s guest. Sarah went into pregnancy without many expectations about what the process would be like. And she and her husband got a fast education in the many challenges that can come along with birth and the postpartum period. After her first birth, the baby encountered an issue that landed her in the NICU. And a few days after her second delivery, Sara wrestled with some scary postpartum issues, sending her to the ICU. Now a few years out from those experiences, everyone is thriving.  After our conversation, I went back and included some medical details and also have the insights of a fantastic OB, who specializes in high risk pregnancy. 

Let’s get to the story. 

Hi, thanks so much for coming on the show, can you tell us your name and where you’re from.

 

Sarah: Thank you for having me. My name is Sarah and I’m from Connecticut. 

P: Cool. And how many kids do you have?

S: I have two daughters, my eldest is four and a half, and my second will be two in April.

P: Wow, that’s a lot of work, that’s a busy time. 

S: Yeah I mean it’s definitely been different this year given everything that’s happened, but it’s been fun having two girls close together and watching their relationship grow and it’s been special.

 

P: Yeah that’s awesome…. so I have two girls also two years apart. 

S: Okay.

P:  And they’re besties now. 

S: Yeah, that’s what I’m, fingers crossed, that’s what I’m hoping for down the road, you know, we had, they have their moments. 

P: And what did you think pregnancy would be like before you became pregnant?

 

S: I don’t know if I ever really thought specifically about what the pregnancy would be like I kind of just took what I had seen from movies and TV, but I always knew that it was something that I wanted to do, even as a young girl I always love to pretend that I was having a baby or that I had a baby, you know, so it was definitely something I’ve thought about a lot, but I don’t think I actually thought about the actual pregnancy or delivery or any, any of that stuff really.

 

P: So the first time was it easy to get pregnant?

 

S: So yeah, so my husband and I got married, September of 2015. And we, we weren’t trying, but we weren’t not trying, and in January 2016 I was about 10 days late, which I’m never late, I’m one of those people who is annoyingly regular, but I kind of just attributed it to like the holidays and you know I was a teacher, and maybe just the stress of kind of getting back into the groove of break and everything. And then one day it kind of like slapped me on the head You need to take a pregnancy test. And sure enough, it was positive so yeah we found out in January that we were expecting.

 

P: Well that sounds like a pretty gentle entrance. That’s nice. 

S: Yeah, yeah, I mean it definitely, it was a little bit of a adjustment for me mentally and I had so I suffer from anxiety and panic attacks and so it just took me a little bit of time to wrap my head around it, but then once I was there, you know, I was very excited and happy but I was also the first in my friend group to get pregnant and to, to have a baby, and you know we weren’t wildly young I was, I was 28 when I got pregnant with my daughter, and I felt a little isolated and alone just because I didn’t really have anyone to talk to you about it except my mom and her standard answer to things I don’t know this along I don’t really remember, I guess I felt isolated and a little scared and just kind of anxious about it in those first few weeks.

 

P: Yeah, all that seems like spot on, right, that seems like the appropriate reaction. And I always think nine months is a nice long time to get used to the idea.

 

S: Yeah, actually my mom did say that I remember being like it’s not like you’re gonna have this baby tomorrow like you have a lot of time to kind of, wrap your head around things. And, and she was right. 

P: nd how was the pregnancy,

S: it was interesting, I guess to say I was working I was teaching I had spotting my whole first trimester, I didn’t know that it happened, I would go into my OB, quite a few times to kind of check it because it just kept happening and they would do ultrasounds and every time they kind of reassured me that everything was fine and that it was probably just my uterus, you know, shedding the old blood or whatever it was they couldn’t find a cause for it and the baby was growing and developing fine so they were just kind of like, take it easy and there’s nothing we can do.

 

P: Spotting can definitely be stressful, especially if you don’t expect it. According to the American pregnancy Association spotting in the first trimester is pretty common, about 20% of women report this happening, and other sources say it’s one and four many things can cause spotting like implantation sex hormone changes and changes in your cervix.

 

S: But that kind of, it just set me up for being even more anxious because every time I would see the blood, I’d be like, well what’s happening but then I got out of my second trimester and it stopped literally right when I hit my second trimester the spotting stopped and then I started having really bad round ligament pain I had heard about rounding a bit pain but I did not expect it to hurt this month.

 

P: I file this underneath the heading, it’s hard to throw another human being inside you were going to have mid round ligament pain is one of the most common issues in pregnancy. Where does it come from. There are several thick ligaments that surround and support your uterus, one of them the round ligament connects the front part of the uterus to your groin. As the baby grows ligament stretches and can become strained certain movements can cause the ligament to tighten quickly like a rubber band snapping.

 

S: One time I even actually ended up in the emergency room because it was just so painful. I was worried something else was going on but they said everything was fine,

 

P: so did it feel like cramping or it felt different?

 

S: no it felt different, it was like, sharp pains, and it just didn’t feel right to me and I felt like I didn’t really hit my stride until the end of my second trimester, and then I started feeling really good. I had my energy back and I just, I felt that pain was gone and I was enjoying my pregnancy more and I just felt like I was in a good place, from about 26 weeks to like 35/36 weeks I felt really great, and then I went in at 36 weeks, for my checkup and my blood pressure was starting to go up. And because my blood pressure, I’ve been in the low pretty low, The whole pregnancy, they kind of reacted strongly to an elevated, reading, and they were like, alright, we’ll try it again in a few minutes it was still up so they sent me over to the hospital because they wanted to do some monitoring and more tests, and, you know, all the standard things because they were concerned about preeclampsia, even though I had no other symptoms of it except for elevated blood pressure, it was also the middle of August and I was 36 weeks pregnant and you know I anxious person to begin with. So I think there was a combination of things, but they wanted to be safe, so they sent me over.

 

P: It feels like every day we get updated information about the short and long term effects of preeclampsia and gestational hypertension. So I asked Dr. Patricia Robertson, a perinatologist who specializes in high risk pregnancy at UCSF, about what the current criteria are for diagnosing preeclampsia,

 

Dr. Robertson: you can have gestational hypertension, diagnosed, no proteinuria usually not severe range pressures, and a third of those women will turn into patients with preeclampsia. So, if you do get diagnosed, and the definition is to elevated blood pressure’s four hours apart. We’re still using 140 over 90 or greater, then that puts you into a high risk category and then you usually to get labs once a week for preeclampsia, you go to antenatal testing, twice a week to check the function of the placenta and the fact that baby is doing well. I also want to emphasize that we have several readmissions for patients with gestational hypertension and preeclampsia, so they have to be really careful for the first 12 weeks after birth and take their blood pressure at home, sometimes they’re discharged on oral anti hypertensive medication, trying to avoid severe maternal morbidity and mortality is one of our goals because you look at the leading causes of maternal deaths in the United States, it’s hemorrhage. It’s hypertension. It’s embolism, whether it’s pulmonary embolism or amniotic fluid embolism, and infection. So anything we can do to avoid those is good.

 

S: They did blood work they monitored the baby monitored my blood pressure, my blood pressure, then was normal, at every reading when I was in the hospital there, they did blood work it all came back fine but they sent me home with a 24 hour test for preeclampsia, so it was a 24 hour urine collection where literally every time, you pee you have to collect it in this job, and then you have to bring it in to the hospital for them to test it, and

P:  that sounds glamorous, 

S: yes it was so glamorous, one of our favorite stories from the whole pregnancy is that they gave… it was one jug, I mean it was pretty large, but it was summer and I was supposed to be hydrating a lot so I was starting to run out of room and I started panicking, so my husband had to run the labor and delivery, because my OB was luckily on call and she gave him another one because they were like, usually people don’t feel too and I was like, well I need an l came back negative, so they just said it was kind of, you know, pregnancy hypertension, but that they since I only had a few weeks left and I felt like I was working and it was… end of the summer they just thought I should be on modified bed rest till the end just to be safe. again a little isolating but you know friends visited and my mom was with me every day, thank God and I just kind of waited it out.

 I woke up the morning of the six, my due date and I don’t know if it was like a mental thing because it was my due date, but I was definitely having like some cramping and they were getting more close together. A little more intense so my husband said, Well, you know, I’ll stay home today and let’s call and see what they say and they said come in and get checked. So I was like, Is this really happening,is she really coming on her duty and you know we just were like wow, so naive right. So we went in and they said you’re only two centimeters, go home, and we’ll probably see you within the week I went home and just kind of like went about life for the next two days.

P: How did you feel, were you having more contractions?

 

S: has definitely having them on and off. I remember the on call OB, he told me that you’ll know it’s like a real, it’s really time when you have a contraction and it takes your breath away and you can’t talk through it, so I was like, All right, and I was definitely disappointed, I think I was done, you know I was just ready I was 40 weeks, I was a personally a month early so I thought maybe I. This baby will come early since that happened to my mom and you know so on the eighth at about 130 In the morning I woke up and I was having definitely having contractions and kind of just tried to move around our bedroom, before waking up my husband and then they started getting more and more intense, and we called, and they were like, come in. I went in and I got there at about 4am, and I was four and a half centimeters so they were like, you’re, you’re staying and I remember being like, yay, I get to stay, and the doctor was like Yeah. Yay. I was positive for Group B strep and they took blood and then they hooked me up for fluids and antibiotics, and then once they did that and did some monitoring on the baby, they basically told me I could take my IV bag and walk around the halls,

 

P: let me ask you, are you hoping for a natural birth or what are you hoping for?

 

S: well yeah I guess I should say you know people always say they have a birth plan and I said my birth plan was just showing up, we took a one day class at the hospital, it was a full day Crash Course, so I didn’t really think I retained much of that but I was open to like, whatever, you know, I was kind of like if I need the epidural look at it if I don’t, great, I won’t. I’ll do what I have to do now, looking back, I wish I had been a little bit more of an advocate for myself and maybe understood a little bit more but I was again a little bit naive and just our first baby and kind of had a lot of trust in the system and just was kind of like they know what they’re doing, and then the contractions were getting stronger the contractions but again I wasn’t in terrible pain, but they came in and they told me that the anesthesiologists had five scheduled C sections that morning. 

P:Wow, 

S: if I wanted an epidural now was the time, because he was going to be really busy all day. And if I change my mind at some point they were going to have to find someone else to come up and do it, which was kind of a weird thing to say, in my mind because it made me feel like, okay, they’re kind of telling me it’s now or never. And if I change my mind in two hours they’re gonna find someone from, from where, like, you know, the way they presented it was like, we’re just trying to find someone 

P: exactly….we’re going to go out on the street and see who we can rustle up….. 

S: Exactly, they were like, think about it for a few minutes, you know, up literally like a few minutes, and so my husband and my mom and I talked about it and my mom was like, I mean, you seem to be doing well but you know what if you do end up wanting it, my husband kind of had the same thought and I was like, I guess I should get it. I told them Yeah, let’s do it. They came in to get started, it felt like forever. When they have you hunched over holding a pillow and the nurse was holding me, because I also have slight scoliosis so he had a harder time getting it in the right spot, and you have to save so still and that was the hardest part because the contractions were definitely ramping up at this point, and just trying to be still, I’m an anxious person, especially in medical situations so I kept being like, is it in is it in and he kept like No, he didn’t have the best bedside manner, but whatever. No, it’s not a no and then finally he was like it’s in wow you’re, you know you’re like made a comment about how I’m a terrible stick or something like that so I was like, okay, like thank you. And he left, and I instantly had a panic attack, I did not like the feeling of being numb it sent me into a tailspin, I started freaking out my heart rate started going up, I was asking them if they could take it out, or turn it down, and they were like, um, we don’t really do that and the nurses, I could tell were getting a little nervous because my heart rate was spiking. I could hear them calling the anesthesiologist and explaining to him what was going on and I guess he said, just watch her. And then I explained that I also had panic attacks and I could see this like sense of relief come over the nurses face that they were like, Okay, this is probably not anything to do with the epidural it’s probably just her having a moment. 

P: Yeah, 

S:so my OB came in and she was actually very like kind of sat with me and put a cold washcloth on my head and talked to me for a few minutes and then I just calmed down and kind of leaned into the epidural and was honestly feeling pretty groovy. At that point,

 

P: I also freaked out I didn’t have a physiological response but i grabbed the anesthesiologist as he’s leading by the shirt, I was like, What have you done to me. Yeah, feel my legs. It’s so he was like trying to pry my hand off his shirt, I was like, This is what we want, you know, supposed to be or whatever. It’s such a weird feeling. I didn’t expect that either. It’s not like a numb tooth…it feels very different right 

 

S: yeah and I think it’s also like you have this fear like well what if I know, like, never regain the sensation. So, but then once I kind of realized that this was fine and, and okay, I just was like, Alright, it’s time to relax now and we just kind of hung out for a while, you know, I wasn’t really feeling any contractions i They told me to try to rest Scrum, you know, 830 to 334, I had only progress one centimeter. So, she was like, let’s break your water. And I was like all right, again, just kind of like sure, do whatever you want to me. So, 

P: does that feel like anything?

S:  It feels like a little bit of a sense of relief, it’s just kind of like a Gush, it’s like a little pop. So when she broke my water I kind of heard her whisper to the nurse, there’s meconium you know and I didn’t retain half of the things from the lesson at the hospital but I remembered hearing about Meconium, she was like it’s, don’t be concerned it’s very common, especially in babies that go past 40 weeks. The only thing that’s it’s going to change for you is that we’re going to have a nurse from the NICU in when you deliver.

I was a little concerned but they kept reassuring me everything looked great, and to not really think about it, and again as a first time mom I was just kind of like, okay I guess it is what it is… they kind of left me alone after they broke my water but they came in to check a few hours later and I was, I was stuck at a seven I was not progressing and so they decided to start Pitocin slowly making progress, I guess, at 10pm they checked me, and I was eight centimeters, I was starting to get pretty frustrated I was tired I was hungry. I was emotional, why am I not further along in the morning, they were kind of joking that I would have a baby by dinnertime and and you know it was 10 o’clock and I still hadn’t had her so they were just like there’s really nothing we can do because I had had the epidural so it wasn’t like I could move around. Finally, around midnight I was fully dilated, and it was time to push and I was a little nervous but I was also kind of excited because they said, a lot of people find there’s relief in the pushing. Unfortunately though, I pushed for three hours. So, 

P: Wow

S: yeah, yeah, so it was not like this kind of immediate release for me 

P: was it tricky because you couldn’t feel your legs ?

S:  I don’t know because they, they said I was a good pusher, you know, they, they can tell and they were pushing great I don’t know if she just hadn’t descend like she wasn’t down enough and just had to come down I had she looks great on the monitor and like I was doing okay so they just kind of let me keep going at around the two hour mark, they brought in a I’ll never forget this woman she was amazing, a seasoned very seasoned nurse, and she basically was stern but compassionate and got in my face, and he gave me the pep talk I needed she was just like you need to do this now, because at this point I was like, I want to go home. I was like, I don’t want to do this let me out of here and they were like, all right, she’s freaking out, and so she came in and she was like helping me through multiple pushes and contractions and she was great… 3:47 in the morning. Our daughter was born, I didn’t feel anything, but it was this relief and just like everything and, and they had mentioned to me that they weren’t going to let her cry because of the meconium. They wanted to immediately suction her and not let her cry. So when she came out I kept being like why isn’t she crying Why isn’t she crying, and they were like, we told you we need to suction her, we’re not letting her cry than they are, they’re

 

P: so they are worried that she’ll aspirate the meconium, that’s the issue? 

S: Yeah. So then they pulled her out and they held her up and they showed her to me and like I briefly saw her like I don’t even really remember. My husband got to go over and see or my mom latched over and sear and they were you know weighing her and doing all the things so I kind of thought things were okay, I had a secondary chair. So they were stitching me up and I was trying to look over, they wrapped her up very quickly, and she was crying at this point but they said, she’s having some trouble breathing, so we want to take her to the NICU for supervision, and that was it I mean they like wrapped her up. They took her. I told my mom husband to go with her because I just wanted people I knew with eyes on her.  I was kind of like, I’ll be fine. Go which in hindsight is so funny cuz it’s like I literally was left alone almost in there but I told them to go, so I got stitched up the nurse gave me a hug and she, you know, was encouraging and she brought me some snacks because it was for morning there was an open, you know they make you stand up and take your first pay, which I didn’t know could be so horrifying, I never thought that having to pee would be this horrific experience but standing up, I remember thinking, oh my god are my legs gonna work and they did. Once I peed and was able to walk around, they were like okay we can reel you into the Nick you so you can see her. And so I went in, and she had a C pap in her nose.

 

P: According to the March of Dimes, with C pap, or continuous positive airway pressure. Air is delivered to the baby’s lungs, either through small tubes in the baby’s nose, or through a tube that has been inserted into her windpipe… the tubes or attached to a machine which helps the baby breathe, but does not breathe for her, which is unlike a ventilator which does breathe for the baby. The C pap the baby breathes on her own, but the steady flow of air coming in through the tubes keeps enough pressure in the lungs to prevent the air sacs from collapsing after each breath.

 

S: And she had an IV in her arm and she had a little like heart monitors on, and I just remember thinking this is not what I signed up for this is not what it was supposed to be but she was so beautiful and I just couldn’t, like it was just a such a weird feeling of, she’s so perfect and beautiful and I can’t believe she’s mine but also, I’m so scared because she has all these machines and we’re in the neonatal intensive care unit and just never had I thought that that’s what would have happened, and then the neonatologist came in and he basically explained that she had aspirated the meconium. It was common. Most times this, they see this in babies and they’re able to come to the back to the parents room into the regular nursery later that day. The next morning you know it’s, it happens and do not worry, she would be fine. 

P: Dr. Robertson, can you tell us why Meconium aspiration is such a big issue for a newborn, 

Dr. Robertson: because it’s very irritating to the baby’s lungs, and it can cause a pneumonia is very rare meconium aspiration syndrome, it’s very common to have, like, greenish or yellowish fluid at UCSF, we have a pediatrician present when there is meconium. So the pediatricians are there so the baby comes out vigorous and it’s processing the meconium coughing and all that stuff. We leave it alone, and do the bonding skin to skin. If the baby comes out blobby and blue, then we hand it out to the pediatricians and they suction meconium out first, hopefully to help it might go into the lungs and then they vigorously resuscitate which sometimes means putting a C pap mask on the baby and pushing them sometimes the meconium as well as the oxygen and that’s not ideal. So they’re sick meconium. They’ll do a lamb and gossipy and go down the baby’s lungs suck that out the baby’s really quiet during this time it’s really hard and the parents with the babies that crying. They don’t want the baby to cry, so they want to get out as much meconium amount as possible before they start the resuscitation. I’m in a very tiny proportion of those babies do get meconium aspiration syndrome, sometimes they end up on a ventilator in the NICU it’s very upsetting.

 

S: He left and my husband and I were just sitting there and it was this moment of this is just not how I pictured it. I pictured my baby being next to us, and then I just wanted to be in the NICU at all times. I didn’t even get to hold her until she was about 12 hours old, my best friend did come, and I just remember kind oflaying in the bed trying to hold a conversation but also just kind of being catatonic we laugh about it now and she was like yeah I just like to tell you it really gone through and so I was just there to be a support person, I didn’t sleep much. I just would rest a bit. Go back. Watch her…. 

P: and they’re, they’re feeding her intravenously at this point, 

S:yes. And then the next day, they put a feeding tube in her nose, and I was able to give her my collostrum through the feeding tube, and any milk I was producing and also they were giving her formula, and the neonatologist was like, you know she’s doing well, they were able to start weaning her off the C pap she was on room air at this point.  she was turning a corner but he was concerned because her white blood cell count was elevated, and he said it could happen from stress, but usually at this point, it would have been down. So he basically told me that he want to do chest X ray, they diagnosed it as neonatal pneumonia, from the aspiration and the decision was that she needed to be in there for seven days for full IV antibiotics, and they were also going to do blood cultures and if those came back positive, it will be longer, which, when I heard that I just internally flipped out but yeah,

 

P: this is a really hard thing to hear right it’s really hard to be in your room without a baby, 

S: yeah 

P: in the maternity ward….Now it sounds like they’re gonna let you leave but keep her.

 

S: Yeah, because I think in the beginning, I held on to the hope that alright maybe the first night, she’ll be in the NICU and then she’ll she’ll come in with us, or maybe she’ll have to be there the whole two days and then we’ll get to take her home, but this was a pretty concrete she needs to be here for seven days for the full round of antibiotics, I had taken a shower I put on real pajamas I was starting to like feel like a little bit more of a human but it still was like this weird pays and emotional feeling.  Our hospital does a celebration dinner the night before you’re discharged, they bring you this big, beautiful meal, it’s something I’d heard about my whole life, I delivered to the town I grew up in so I knew all about this and I had envisioned a sitting at this table eating this dinner with my baby next to me and I just cried through the whole dinner, and My poor husband was just trying to do everything he could to make it somewhat enjoyable. Yeah, and I just couldn’t I was just not there with it yeah I couldn’t

So I was discharged that Sunday morning, we had our bands on, I went home, I tried to get settled. But I just wanted to go right back, it was just this kind of back and forth from the hospital. Home hospital home hospital home until it was time for the last feeding which was around 930 And then I would stay home. So at this point she was off the C pack the feeding tube was out, we tried nursing, it was a little iffy, but she took bottles well, and she was really turning a corner, but I should also know when I was discharged, kind of talking about your when you asked about expectations, again, you know, in the movies and TV and whatever you always see people being wheeled out with their baby and I was being wheeled out with all these beautiful pink flowers and it’s a girl balloons and, No baby and I just felt like everyone was probably staring at me. What was her baby, it was just such a weird experience and pulling away it just felt like my heart was still in that building. 

P: Yeah, 

S: I did wake up every night for the whole seven days around 4a.m. and called the nurses, and to check in and I mean I just have to say. The NICU nurses, they are the most some of the most amazing people I’ve ever met in my life, they were just angels and above and beyond, never made me feel like I was annoying them or bothering them loved on her so much. It was so hard but knowing that she was in good hands.

P: Those people clearly have a fast pass to heaven. Right, 

 

S: Oh yeah, yes, I think all nurses in general but NICU nurses… we had this week, every time we go they would teach, teach us how to give her a bath. Teach us how to do certain things, you know, they were just wonderful and like I just thank God for them every day, and the seven days and her blood was great, her she was feeding she was gaining weight. She was wonderful and they send us home. I often feel guilty because I felt like it was so hard this week in the NICU and if you and I know that there are some families that it’s like, not a week it’s months, and it just, we were very fortunate, but it did set me up for some, I think some postpartum depression. And just because I think everything was so out of my control and unexpected that I struggled with postpartum for that, that, that first year of her life, and looking back I think it was a culmination of the birth and then leaving her as in the NICU experience and it always envisioned, giving my child a sibling just because I was an only child and I wanted her to have that but I was like I don’t, I don’t know,

 

P: so two things: it’s interesting because on your way in you are the first person I talked to who doesn’t have this very intricate birth plan. So while you’re telling the story I’m thinking oh she might be fine with whatever happens because she doesn’t have, but it seems like buried in there and you did have some expectation, and it wasn’t, you know, part of this disconnect is holy crap, it’s not what it was supposed to look like,

 

S: yeah, right, because I just think anytime I’d heard of someone having, you know, someone I knew we’d get a check saying I’m going in and then the next morning, there’d be a picture of the baby and it was just kind of like this, everything was fine, so I was just, holy shit, what was this whirlwind experience that I had like what happened, You know, and it just took me a really long time to wrap my head around at all, and I was just really anxious and depressed and I isolated myself a lot from friends, it wasn’t until, I think she was about till her first birthday that I felt like I really turned a corner.

 

P: So your next meeting with the OB do you say I’m not feeling right, or

 

S: No, I mean because it might so the next meeting with Toby was what six weeks and I think I was kind of just still in the haze of it all, and then I just didn’t really tell anyone I mean, like, I, my husband and my mom I don’t even think realized it until I was out of it when I told them that I think this is what happened, because I was just internalizing it all and just like doing what I had to do to kind of get by,

 

P: I think it’s a giant transition that’s really hard to manage and harder if you’re anxious, and 

S: yeah, 

P: harder if it, you know goes off the rails and 

S: yeah, 

P: so all that sounds like, I mean it makes sense,

 

S: right. Yeah, definitely. And when my daughter was about a year and a half, I guess, I found a therapist and I kind of talked through my birth and we went up you know my anxiety and I felt like I had gotten to a better place with, with the idea of, of doing it again because in that first year and even a little after I was kind of like, I don’t know if I ever want to do this again, or two months before she turned two my husband and I were kind of like, let’s like try and see what happens. And again, I know this is not everyone’s story so I feel so fortunate, but I got pregnant that first time. 

P: take the easy ones where you can get them. 

S: Exactly like thank you yeah I’ll take that one because the other end sometimes wasn’t easy but I got pregnant with our second, I found out in August of 2018…felt pretty similar to my first pregnancy except I was just way more tired because I had a toddler, there will be time to go out on the Forgot I was pregnant, I think because I just had other things going on because you’re caring for another child and it was a pretty easy pregnancy, we found out we were having another girl. So I was so excited, just, you know, for sisters, everything was pretty easy and straightforward and then around 32 weeks I went in for an ultrasound. And I could tell something was up. Because of my blood pressure, kind of like jumped around a bit. Throughout both pregnancies, I was also seeing a maternal fetal medicine doctor who was amazing and she came in and she was so great and she just said everything’s great, the baby’s measuring fine your fluid is on the low side of normal, the plan going forward now would be weekly non stress tests weekly ultrasounds and I would have to do daily kick counting, which I never even heard of was, I know like they tell you to make sure you’re feeling the baby move but I’ve never done kick counting during my first pregnancy or anything like that.

 

P: Counting kicks is exactly what it sounds like you’re tracking the movement of the baby in utero, and it is actually an evidence based practice to prevent stillbirth, you can check out countthekicks.org to get more information. 

S: When I heard that I was kind of like, Is this serious, and they but they weren’t like overly concerned, they just wanted to keep a tab on it and so I did that every week, and my fluid continued to be on the low side of normal, but never to the point where they were like, We need to induce you forgot to 36 weeks, and I went for my weekly checkup and my doctor was like, You’re not dilated at all. I think it’s gonna be like with your other daughter the whole time, the whole 40 weeks. And I was kind of like okay so I like scheduled on my appointments for the next week, so the next day, I was feeling uncomfortable, but it almost felt like I had kind of a UTI like maybe the baby was just sitting on my bladder in a weird way or I didn’t really think much of it because I had a two and a half year old and I was just going through the days and trying to get her to school and home and you know being with her and I felt like that for that whole day and then Friday I woke up it was still kind of there, it would come and go, but I like took my daughter to school didn’t my errands still was feeling kind of weird, I had dinner plans that night with, with my girlfriends and I actually canceled it.  So my husband got home from work, he picked up dinner and I didn’t have much of an appetite, and I had a contraction and then my body started shaking which I didn’t experience my first time around, maybe because of the epidural, but now I know that’s common. Luckily we only live about five seven minutes from the hospital but we were I will never forget we were at this red light stopped in front of the high school, and which is like kind of the halfway point, I had a contraction, and I was, I couldn’t see through it, and I remembered from way back. And my husband was, are you okay and then I just started banging on the window like I don’t know what came over me but like I needed to like find a release of it, in some way and he was like, should I speed up and I was like yes, so we got there and they come down to greet you and walk you out to labor and delivery. And I had another one and this nurse looked at me and looked at my husband and she was like, your labor and but I was still not sure like I didn’t know when I was just, I don’t want to be sent home like I get in the room they, the nurse comes in. She was so wonderful, and she just, you know, get changed we’ll see what’s going on, let’s check it out. I had also again, tested positive for the group B strep so, so she checked me, and she looked up at me with this face and was like you’re eight centimeters dilated. 

P: Oh My G-d

S: Yeah. And I was like, what, like, I was shocked like I, the way they started moving to get the IV and to get like they really started hustling, and then she was like, Do you want an epidural. And I, this time, did not want an epidural, that was really my only part of the plan like I knew that I didn’t like the way it made me feel the first time I really wanted to try to do it without it and the fact that I was already eight centimeters, I was kind of like, I think I can do this, and she looked at me and she said, Okay, well, I used to be a midwife, before I was an RN and let’s do this.

She was fully on board, and I guess it was it’s pretty rare in our hospital where I live for people to forgo the epidural, but she was excited about it and I was excited about it so it really kind of gave me the confidence I think to do it, 

I was admitted at 10pm and I labored for a bit, it was really painful like I mean you know like I was still able to obviously got through it but it definitely hurt, much more than the first time, And then all of a sudden around 11:30 I was like I need to push, and they were like okay don’t like hold on, and they checked me and I was fully dilated, I started pushing and in two pushes, she came out and she was born at 11:54pm. And she was perfect, she was six pounds 10 ounces, so she was great and it was just night and day, to what had happened the first time, and I had another second degree tear, but it was so different because she was on my chest this time while they were switching it up, I was weirdly aware though I was like, Did, my placenta come out and they were like, because I felt something come out and she said no, that was just to large clots. But she said but that’s normal, and then a few months later she like okay your placenta is out, and I was like okay, I didn’t really think anything of it. I went to my postpartum room with the baby which was exciting for me and we were just in shock that she was here, and just a really nice two days.  

As a second time parent, and I think because my daughter had been in the NICU. The first time I was a little more comfortable letting her sleep in the nursery and bring her back in the morning and I was also, I guess I should have mentioned this before but I think breastfeeding also contributed to my postpartum, the first time around because it was really hard for me, she didn’t latch very well and I felt like I was like failing. So this time around I was way more of an advocate for myself and like when they were like, do you want us to do breastfeeding or formula, I was like, both, but you can give her a formula in the night, it’s okay, like I was just a way more open to whatever like I didn’t feel the pressure anymore I took that off myself. And then Saturday, my mom and my 94 year old grandmother got to come and meet her. And then my mom came back with our daughter and it was just such a special moment to see your first baby, meet your new baby, and then we had our celebration dinner and she was there and it was like, all these things that like I felt like I had lost out on last time I got them, and it just felt very healing, and wonderful and we went home, and that Sunday and things were really great and she was a very, very easy baby and I just felt really blessed, it was like felt like it was the birth I needed. Don’t speak too soon right Monday, so this was now the day after discharge, you know things were fine. That night I kind of started feeling a little weird, but I was, you know, it’s like you never know what after your baby like it was just normal postpartum What’s something else, and I was really emotional really feeling anxious, but again like my hormones could have just been leveling out, and I was also having a lot of digestive issues and I was just kind of like well, I have IBS, to begin with, my body’s probably regulating, I was just playing it down. 

So Tuesday morning I woke up, I was having without TMI, a lot more digestive issues, pretty crummy, not just normal postpartum so our hospital they have a standard kind of thing where you have to follow up with a lactation consultant you bring the baby in. They weigh them they check the bilirubin and they check how you’re doing and I actually called and tried to cancel it so that I’m not feeling great. And they were like, well, because your baby was 36 weeks and five days, she really needs to be seen to be weighed. So, if you’re not going to come here to the pediatrician and I was like, Fine, whatever. We’ll, we’ll, we’ll come in there, they also check you so she did my temperature my blood pressure, my heart rate, my temperature was normal, but my heart rate was high and so with my blood pressure, and I just instantly felt annoyed because I felt like it was this back to this whole blood pressure thing where like anytime I love her was up they would freak out and do all these tests and she kept checking it and it kept was still elevated and I was like, I have been having stomach issues I feel like I’m very dehydrated like that probably when my heart rates up, but she gave me a lot of water, she tried calling my OB she couldn’t reach her. She called the on call OB for my practice, and they, she her answer was, basically, she should come to a triage room, in labor and delivery and we should do bloodwork, and rule out postpartum preeclampsia. I was just, and this is not like me, I don’t like confrontation I’m very calm go with the flow person but I was so aggravated at this point, like I was tired. I didn’t feel good I was just like I don’t have postpartum preeclampsia, like, I just want to go home. I want to be with my baby I want to be with my toddler please like you guys have tested me so many times through this, I know the symptoms of it I don’t have any other symptoms of it, I want to go home. And I kind of threw this fit in the middle of the nursing station, and they were like, silent, and they were like, Okay, you can go. They didn’t know like what they were like, just, if you feel weird come back and I was like, Okay, thank you. So I stormed out I was like, I advocated for myself go me kind of thing, you know, but I still didn’t feel well and when I got home, it started to get worse. I was really tired. Again, some things were happening, and then I got really really cold and I could not get warm. I went upstairs, I changed into really cozy warm clothes I got into the bed and put lots of blankets on me and I was uncontrollably shivering, and I called my husband, he came in and I was like, I think something’s wrong, and so he got my mom. And immediately she was like, we need to go to the emergency room, it was one of the scariest moments because I knew something was very wrong. 

And my daughter had just woken up from her nap my two and a half year old when I was, my mom was like rushing me out the door, and I like saw her from the stairs and I was like I love you I’m okay I’ll be back. She didn’t know what was going on but it was really just so scary and surreal, 

we got to the hospital. They took me right into triage my heart rate was really high and they said I had a temperature of 104.5 

P:Wow, 

S: yeah, I was shocked. They put me in a room and there were tons of people in there, and they did an EKG. They wanted to do an EKG first because my heart rate was so fast and like I just remember they like you have to lay still and I was so hot all the sudden, I was like I can’t. So then it was just, every test, they could kind of think of the EKG chest X ray of flu test, blood work, urine, they ordered an ultrasound like the doctor was asking me tons of questions about my symptoms, he looked at my stitches he like examined everywhere to see if there were any signs of infection anywhere, those first 30 to 40 minutes of being there, I honestly thought that I was gonna die. I never experienced something like this I was honestly like this is it and I’m a

 ER/ Grey’s Anatomy medical drama junkie and I was like, in my head I was like, This is the story, this is how it goes. A mother died four days after giving birth. This is it. I can’t believe this is how my story is going to end. And I was saying to my mom, I was like this is it like please take care of girls she was, she was amazing, you know my husband decided to stay with the baby because he knew girls routines and she came with me and I can’t imagine what it was like for her to watch your daughter being like this but she was so calm and rational and like I was so now looking back delirious. Yeah, theater, but I was like, get a priest, I was really like thinking this was it pretty quickly once they give you the IV of acetaminophen and my fever started to go down and I was drenched and I and my vitals, started to stabilize and they were like, now we can really try to get a diagnosis, and let’s also give her something to help her relax so they gave me, you know advant or something in an IV and I was okay maybe I’m not dying like I was kind of, whoa, like, and they brought in the ultrasound tech, and he was just this amazingly sweet man, I was very high at this point on whatever they had given me so I felt like I was just like running my mouth, and he saw it right away. He said that he saw something. And the doctor came in and they said that there was placenta, still attached my uterus basically and what they think was happening was that it was essentially rotting inside of me and, you know, causing early sepsis

P: Oh Wow.

S:  Yeah, things moved pretty fast like I felt better because they had lowered the fever and I was on ativan and I had a diagnosis but the OB on call for my practice came down and she was like we’re taking you in for an emergency D&C, the anesthesiologist came in, he was like, I think because of your stress your body has been under today, it’s just best that we put you under general anesthesia, I think I was admitted to the emergency room at around 4:30 and by 6:30 I was in the operating room, and I remember like picking up and seeing my mom, and I was being wheeled to a room and I was like Is it over like Have they started and she was like it’s, it’s over like it’s finished. And they found a piece of placenta they, you know, scraped everything else out, and they made the decision that I should spend the night in the ICU for monitoring just because my vitals had been so wild when I was brought in. So, yeah, they, it was just so bizarre because to go in so sick. 

P: Yeah, 

S: and then to get better so quickly, kind of like you know like once I was out of surgery, my and I know I was on medication but my fever was gone, they were already seeing improvement in my blood work, I felt better. My mom and I were like in this room, watching Real Housewives of Beverly Hills, we were just what just have like it just felt like such a surreal moment.

 

P: Dr. Robertson, let’s talk about retained placenta. I definitely heard of it, causing hemorrhage, but it can cause other issues too. Right, 

Dr. Robertson: right, right, it can cause most likely it’s bleeding but it can also cause an infection and when someone’s admitted with endometriosis, which is what we call an effective uterus after the baby’s been out enemy treatise, we want to make sure that the uterus is empty so we do a formal ultrasound, as well as give IV antibiotics but moms can get very sick, and so having a high heart rate can be a sign of that it can also be a sign of preeclampsia, with something called cardiomyopathy. You just have to remember that maternal deaths, half of them happen postpartum. And, yes, it’s really a drag to be readmitted to the hospital, but these are life threatening conditions and early sepsis sometimes women end up needing to go to the ICU for fluid resuscitation and their care that’s more frequent than nurses on the front end for can provide. So even though and often they won’t let you bring your baby back in and then you have to pump in someone’s got to feed the baby at home it’s very disruptive. I can understand the reluctance of acknowledging something might be wrong, but that lactation appointment may have saved her life

 

S: It was just like, I went from truly believing I was going to die to like watching housewives with my mom in the ICU, like it was just like what is happening. And I didn’t need a blood transfusion I should mention that when I was in the O R.  They just gave me blood because, you know, I had just given birth and I was losing blood from the D&C and so I was on IV antibiotics. The next morning they came in and they also told me that I tested positive for norovirus, which was such a weird. They think it was like a weird perfect storm like no one knows where I got it. No one knows how I got it, and they think that my immune system was, you know, suppressed from being pregnant delivery and the placenta than the Noro and it was just this perfect storm so then I had an infectious disease doctor come in I had my OB I had my general practitioner, like so many people but they just kept being like, we’re just kind of shocked at how quickly you’ve turned this corner, and they decided to move me to the regular floor for for another day. Everything continued to improve. I remember walking out with my husband to his car and like sitting in his car and just being like, I never thought I’d sit in this car again, just these little things, it ended as quickly as it began, I don’t even I don’t even know what else to say about it, I didn’t have postpartum. This time around, but I definitely had some PTSD, not from the birth, but from the after math, and that experience, I just tried to not let it bring me down because I was almost not here.

 

P: Yeah, that sounds like a whirlwind, that sounds like so lucky to be in the right place at the right time that you went in that they figured it out quickly and could respond

 

S: right and and that’s what kind of has sparked a lot of my recent interest in maternal health in this country because I just think about it like I live seven minutes from the hospital, I have good insurance, you know my hospitals affiliated with Yale, it’s a good hospital, I think about women who don’t have that, and I, it just could have been so different, and unfortunately for a lot of women it is, it kind of sparked this passion in me, so I’m actually going back to school for a Master’s in Public Health at George Washington University, because I just want to understand this more and I want to understand why there’s all these racial disparities when it comes to healthcare, especially in maternal health care and why black women are dying at such an alarming rate when they’re giving birth and I just kind of want to know why it’s like this. 

 

P: that’s awesome that you took that experience and I’m using it in this way because we definitely need help right there. Those statistics for black women are dire, and it feels like a five alarm fire so I’m glad that you’re on it. 

S:Yeah, I actually, I think, like, I just looked at it the other day and it was something like, black women are three times more likely than their white counterparts to die from pregnancy related complications or childbirth and it’s just, yeah, it’s, it’s not good. 

P: Yeah…if you are unfamiliar with these statistics, I’ll put some links in the show notes so you can see what Sarah is talking about… 

if you could give advice to your younger self, what do you think you would tell her about the birth experience.

 

S: I think I would tell her to expect the unexpected to trust yourself to be confident in your choices, and to also know that it’ll be okay, you know, It’s just, it takes unexpected turns and I really think it’s expect the unexpected. Because if you didn’t talk like, you know, my birth, birth was one thing but then if you had told me that I would have had this like wonderful delivery. And then I would be end up in the ICU, and never in a million years would have believed it, I didn’t even no I mean I knew your placenta had to be delivered within 30 minutes of giving birth, but that’s like the big, the whole placenta, I never even thought that a piece of placenta could attach to my uterus and cause this reaction within my body.

 

P: amazing, amazing. Thank you so much for sharing your story I totally appreciate it.

S: Thank you. Thank you for having me if I can help anyone not ignore their symptoms or anything just kind of, 

P: yeah, that’s good advice. 

S” Yeah, cuz like I said, I think as moms and as women we’re, it’s easy for us to kind of brush things off and to worry about everyone else when, especially when you’re postpartum you need to take care of yourself.

 

P: I’m going to end the conversation here because it’s such an important point, and regrettably true. In the postpartum period, as it stands right now, you really do have to take care of yourself…in most places in the US you won’t see your doctor again for six weeks. And, as sarah said, we can’t ignore what may be troubling symptoms. Half of all pregnancy deaths occur after birth so it really is a time that you or your partner needs to pay attention to how you are doing after growing another person in your body for ten months and then releasing them…

Thanks again to Dr. Robertson for her insights, and thanks to Sarah for sharing her story, and thank you for listening. If you like the show, feel free to like and subscribe, and if you have a minute or a view is really helpful because it helps other people find the show. We’ll be back soon with another story of overcoming.