Episode 28 SN: Outrunning Ectopic Pregnancies is No Small Feat: Kristi’s story
Both of my pregnancies taught me that just because some process is going on in the confines of your body, location does not imply control.
This is also true for my guest today. To some degree, I think that if her timeline didn’t unfold in the very specific way it did, she would not have ended up where she did–the mother of two healthy girls. On the way to this outcome, she experiences both the best and the worst pregnancy “luck”. Overall this story is one of good luck, because she is alive to tell it. Today’s guest did not endure one, but two tubal ectopic pregnancies. Often these types of pregnancies can be handled with medication, but if that route fails, as it did in her case, they require immediate surgical intervention to prevent a rupture, which can lead to internal bleeding and other emergency circumstances. Today’s guest was forced onto the hardest route out of an ectopic; and it’s the way she handled these pregnancy complications that makes her story one of incredible perseverance and resilience that she likely didn’t realize she embodied.
pregnancy/miscarriage hormones
https://www.verywellfamily.com/how-doctors-diagnose-miscarriage-2371375
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2936313/
IUI
https://www.plannedparenthood.org/learn/pregnancy/fertility-treatments/what-iui
Audio Transcript:
Paulette: Hi, welcome to war stories from the womb. I’m your host Paulette Kamenecka. I’m an economist, a writer, and the mother of two girls, I’ve had three pregnancies, and each one taught me that just because some process is going on in the confines of your body, location does not imply control. This was also true for my guest today. To some degree, I think that if her timeline didn’t unfold in a very specific way it did, she would not have ended up where she did. The mother of two healthy girls. On the way to this outcome, she experiences both the best and the worst pregnancy “luck”. Overall, this story is one of good luck, because she’s alive to tell it. Today’s guest did not have one, but two tubal ectopic pregnancies. Often these types of pregnancies can be handled with medication but if that route fails, as it did in her case, they require immediate surgical intervention to prevent a rupture, which can lead to internal bleeding and other complications. Today’s guest was forced onto the hardest route out of an ectopic. It’s the way she handled these pregnancy complications that makes her story one of incredible perseverance, and resilience that she didn’t like we realize she embodied.
After we talk, I go back and include the insights of a wonderful OB, who’s authored papers on ectopic pregnancy.
Let’s get to this inspiring story.
Today’s guest and I just fell into our conversation, so I’ll introduce her: Her name is Kristi and she’s from Oregon and here’s her story.
Kristi: so my first daughter, we were not planning for. And we were actually honestly not planning on having kids period. That was one of the things that kind of joined me and my husband, it was like we are both on the same page, We’re gonna get married and we’re just going to live our own life and not have children. And then I got pregnant. But it was like this …I’m the one who actually freaked out my husband did not. He was like, Alright, let’s go. And I sort of had to take a moment to realize that this was a new plan for us, and have the smoothest pregnancy, no morning sickness, the only side effect of my pregnancy was heartburn. It was awesome. I loved being pregnant, giving birth was a different story, and honestly even that first birth, even though it didn’t go as planned, like it wasn’t crazy she got stuck and
P: let’s go slower, your water broke
K: my water never broke i Okay, so I guess she is a little bit of a story but I was actually four and a half hours out of town. My husband’s grandpa died, and we made the joint decision that we were going to go to the funeral, even though it was the weekend of my due date, I researched the hospital that it was close to, and I was fine with it like if it happened it was okay, we were just going to tackle it as it came and it was fine, managed to go the entire time in that town, and we were on our way out of town in at a gas station, getting gas to head home, and I had my first contraction. So, was in labor for four and a half hours in the car. And
P: did you know what it was?
K: I had had Braxton Hicks, but these were definitely different and I don’t know if I really registered it, but they became pretty constant. And I think they got to within like four or five minutes apart when we were approaching Portland. And we had to make the decision of either turning off and going to the hospital I was delivering at, or going home, we had moved so I lived a little bit far from our hospital. So we opted to go to the hospital, I already had my bag so it was like, yeah, why not, we’ll just, they’ll tell us what we need to do, I think we ended up checking into the hospital a lot about noon on Friday. And it’s weird how this birth is a little bit foggy, I forget little details but when I got in there they let me hang out for a little while the contractions were definitely regulars so they actually ended up breaking my water. And then, obviously, the clock starts ticking, I got an epidural, but it never worked. Fully, so I was having
P: you didn’t feel numb?
K: No.
P: Oh
K: it’s funny because now I hear people tell the story about like yeah like I took a nap, and I’m like, what you took a nap. Are you kidding me, so I had to keep having the anesthesiologist had to keep coming in and give me me boosters. So they finally decided to pull it and redo it. So they tried it again, and it’s still never really took effect. So I was in pretty hard labor, until Sunday, so I went with no sleep because I never not felt a contraction so they were coming. And about six o’clock on Sunday we decided we’re far enough along i i dilated I dilated all the way to 10. To start pushing at least try to see if we can make something happen because she just wasn’t really very low but I mean I was dilated so we’re going to try and I pushed for three hours. And my doctor finally it was just like, This is ridiculous. You’re exhausted. Her heart rate never did anything super weird but it kind of did so we just called it and ended up doing a C section, as it turns out. Her head was tipped sideways. So she was pushing with the side of her head she came out with a huge bump on her head where that part of her head was being sucked into the birth canal, but not the rest of her was perfectly big, she weighed eight pounds six ounces, big puffy pink never looked like the old man she’d looked like a baby like fine just took a long time to come out.
P: Yeah
K: I recovered from my C section really well, and it was fine. It wasn’t, obviously, my story is always a person ever go the way you plan them, but
P: had you imagine like a natural birth or you just didn’t want a C section,
K: I just hadn’t planned on a C section, I was C section and my brother was C section, it’s always, it was always there, it just wasn’t the plan. Yeah. When the doctor finally made the call and we were going to have a C section. All of my contractions completely stopped it just stopped and my body was like yeah, thank you. Let’s just get her out. Like, I didn’t have another contraction. So I went into the O R, and never had a single contraction, after they called it. So I was probably ready for that
P: Yeah, yeah
K: and recovered just fine and she was totally healthy like that bump went away within like two days and
P: yeah, good
K:she was healthy and, perfect. So that’s my first daughter. I mean a little bit stressful but to me it was nothing serious. I had to have a C section, but whatever, they are super common… So my daughter was about 2 we actually decided we wanted to have another and We tried for probably about six months, I think, and I got, I got pregnant. And at six weeks had a miscarriage. And it was a slow miscarriage, so I found out from the doctor that I was going to miscarry before I actually had a miscarriage my numbers were just dropping.
Paulette: So when Christie talks about numbers, I think she’s talking about HCG human chorionic gonadotropin, which is a hormone produced by the embryonic cells that will become the placenta during pregnancy. This hormone generally makes the uterus a happy place for a growing embryo it Ward’s off the mother’s immune cells, it signals to the years that implantation is coming, and it tells the body to make the hormone progesterone, to protect the endometrial lining and avoid a period. Early on the level of HCG roughly doubles every two to three days, and tells you that you’re pregnant, but if the level of HCG doesn’t increase in this way it can signal that something’s wrong. Doctors can take blood tests a few days apart to verify a falling hCG.
K: I wasn’t feeling good, I don’t think, and so I literally just waited at home for it to happen because I knew it was coming. And then we just kept trying and we went, I think we went about a year of trying.
P: wait, let me back you up here for one second, upset about the miscarriage?
K: Yeah, I was, I definitely was but it’s crazy all these people started coming out of the woodwork who had had miscarriages, they’re very common.
P: Yeah, yeah, yah
K: And, but I hadn’t realized it so just having all those people around you, being like, Yeah, I had a miscarriage too but I have three great kids so
P: yeah March of Dimes says it’s 50%
K: I wouldn’t be surprised if it’s way more than that,
P: because so many people don’t report or don’t even know. Yeah, 50% is already a coin toss, right, so.
K: I called in sick as soon as I found out this was happening and I didn’t go to work until it was done so I missed like a week of work, of just basically sitting at home.
P: Yeah,
K: waiting to lose baby which is obviously devastating, and I think because the rest of my story is so dramatic that feels like nothing.
P: Okay,
K: So, after trying for about a year, my doctor referred us to the local fertility clinic, I guess, like first thing she had us do was had my husband go get checked. And so he got checked and his numbers came out good but not good had plenty, but their movement was off a little bit so that raised kind of a red flag, so she wrote, she recommended us to one of two places. I happen to be extremely lucky at the time and my employer covered fertility.
P: Oh wow.
K: Yeah, so they covered 80% I think,
P: wow
K: all fertility, they’re extremely like gay marriage and family, very. Yeah, yeah. So they covered that. So, the goal is to stay employed with them for sure until we figured everything out. So we started with them, and you go through lots of testing, did that if I had completely unexplained. There was no reason that we could tell why I couldn’t get pregnant. So we started with IU I.
P: So an IUIi is an intro uterine insemination. Basically the doctor takes sperm and shoots them directly into the uterus with a little thin tube. When you’re ovulating, it can increase your chances of getting pregnant, but in fertility, nothing’s guaranteed.
K: And did four rounds of that. So you like do that and then wait a month, you do it again, wait a month so we went through four of that,
P: and you find that okay? I did that also…
K: I mean it makes sense why they think that would work to me, especially if there’s question on the guide side, we’re just going to help these little guys out and get them right in there to the right place so it makes sense to me why it would work. I don’t know anyone who that has been successful for I’m sure there are people, but the I did not work for me. So, we went through four rounds of it, and then it was decided that we were going to try IVF. So, I, I learned the hard way that I don’t like giving myself shots. I know other people who went through it, but the idea of everything that happens, and I’d say now I should have written all of it down but I didn’t…it didn’t feel necessary for some reason. So, our first round of IVF was successful.
P: Oh wow,
K: I got pregnant. You go through the whole process of them gathering the eggs right so a horrible part of blowing up and filling yourself with as many eggs as you can get.
P: I talked to one woman who said she could feel her ovaries, they got so big that she felt like said like well walking around, you can kind of feel them.
K: It is crazy it is a weird feeling. I don’t know if I could feel them but I definitely just felt like bloated and uncomfortable and like this is not normal.
P: Yeah,
K: after they take them out and they, you know, get rid of the ones that are definite no’s. Yeah, we ended with nine. We opted to do the genetic testing. I didn’t feel like after all of this, why would you put in one that’s not 100%
P: Yeah,
K: so, and I had the health coverage so I get, like, not doing it because it’s expensive, but we had the health coverage so that left us with four.
P: what do they test for?
K: So, they test for any genetic anomalies, so if there’s anything that sort of looks like it’s, it could possibly be rejected by your body. Because of a genetic mutation.
P: Yeah,
K: it’s pulled.
P: Okay, so it’s broad is pretty broad,
K: it is broad… I think, Because like we ended up with four super healthy, these are the best of the best of your, of what you got. And so we had four and we knew those, those are your four chances, we knew we had three boys and one girl, because part of the genetic testing is knowing exactly what sex you have, so we go the first round, and they’re doing lots of tests up to the point before they put that egg in. And I had fluid in my uterus, and I took a specific type of medicine and to try and get rid of that fluid, and like the day before we were going to put the egg in the fluid disappeared so that medicine we’re assuming works, so put the, again, I get pregnant. Everything seems fine. I get to, I’m pretty sure it was week six, because that’s, that seemed to be my magic number, and I call it was at work, and I call my doctor because I’m having like weird pains in my left side and it’s kind of going down my lane, which also feels weird.
P: Today I’m bringing questions about Christy’s experience to Dr. Tanya Glen. She’s a published author who’s written and researched about ectopic pregnancies, and is currently a fellow at Yale’s reproductive endocrinology and fertility clinic. Hi Dr Glenn thanks so much for coming on the show.
Dr. Glenn: My pleasure
P: in Christy’s case, she gets pain of her leg. Why does an ectopic cause that kind of pain.
Dr. Glenn: It’s not necessarily that every ectopic would cause that specific type of pain. And so, could very well be that if it was a ruptured ectopic already, the blood in the abdomen could cause irritation down the leg, but the majority of time when people have a ruptured ectopic they’ll have abdominal pain. That’s not a symptom that I get often from my patients usually it’s abdominal pain.
K: So I call them, just because I didn’t actually know if there was anything wrong but I called them and they tell me to come in. So I go in, and he breaks the news to me that he’s pretty sure I’m having an ectopic pregnancy. The embryo has went up into the fallopian tube and I’m gonna lose the pregnancy. He calls my doctor and my doctor wants me to come and see her, so she’s taking space in her schedule and she has me drive to her office from the downtown office to come see her, so it’s confirmed Yes, this is an ectopic pregnancy
P: Did they do an ultrasound?
K: Yes, They did an outside and a vaginal ultrasound. So you’re going to lose this pregnancy, we can help you along with this so they schedule me an appointment at the cancer center, but I can’t get in until for this is like new. So like for, you’re going to drive to the cancer clinic, and you’re going to go in and you’re going to get this medicine that is basically like a chemo medicine it’s going to make your body reject the pregnancy and your system will just flush it out. So that’s the plan like.
P: So Christy’s ectopic is going to be resolved with medication. What do you think the doctors gave her and how does it work,
Dr. Glenn: people that may be having a ectopic that was treated like she was with medication first which is called methotrexate and attacks rapidly dividing cells, it’s actually used also for chemotherapy but we use it for tech topics we use it as a much lower dose, But attacks rapidly dividing cells and we’re gonna think about that, that also can cause pain itself. So most of my patients who get methotrexate will feel uncomfortable, you know, they’ll have some cramping, they might have back pain and it is just all kind of response to maybe having some bleeding, and that ectopic pregnancy or that pregnancy that’s not inside the uterus is resolving and those cells are dying, and that causes pain,
K: I have nowhere to go because I live so far from work so I go back to work, and hang out until I’m supposed to go, and my husband’s at work and I’m reassuring him that like I can do this just meet me at home. There’s nothing you can do, take care of, you know, our oldest daughter, and just be there when I get home. So, I go to Portland, get two shots, one in each butt cheek. By this time, I’m in quite a significant amount of pain, I remember not being able to get comfortable in. On the bed that this clinic is having me sit on and like I’m finding weird positions to sit so it doesn’t hurt, and it takes a long time by the time I’m driving home it’s dark, so I’ve had to wait so long at that clinic, it’s all the way on the other side of Portland so I’m having to go through Portland and to the other side to get home. They’ve prescribed me Vicodin, and something else for nausea. So Vicodin for the pain and something else for the nausea, because I’m, I’m just not feeling good, it’s super super painful to medicines I’ve never taken before also. So, I don’t know if you’re familiar with Portland but to get from one side of Portland to the other you drive through a tunnel. I just remember that when I went through the tunnel. I was in so much pain that I was basically driving with one foot pushing on the dash and one foot on the gas pedal because I, the pain was so excruciating, but
P: Did they tell you that would happened,
K: yeah that’s that’s why they gave me the Vicodin, it would be really painful. Not that I have no frame of reference,
P: yeah.
K: What is too much pain, what is normal. Yeah, they said it would be painful, so this must be right.
P: Yeah.
K: So I still have to get to Safeway actually to turn in my prescription so that I can get this prescription so I can go home, so I have a standing job that I probably looked like a drug addict, by the time I got to Safeway, but I go to Safeway, I’m in my work clothes but I am sweating. I constantly have this rolling sense of feeling like I’m gonna throw up, which I’m thinking is because it’s so painful. So I go into Safeway, I literally like lean on the counter and hand them this prescription for Vicodin
P: Yeah,
K: I’m sure. They’re like, yeah, lady. You’re a complete drug addict.
P: Yeah, we’ll definitely fill this.
K: Yeah, we’ll get right on that. Yeah, they told me it’s gonna be a half hour. So, I just go out to my car, I sit in my car, I get out of my car twice, and go into the Safeway bathroom convinced I’m going to throw up. I don’t go back, sit in my car, I’m sweating. I’m in pain, finally go in, I get the prescription. I go home. I take one nausea medicine, two vicodin, and I tell my husband and going to bed. I’ve never taken Vicodin before. I don’t know I don’t know what’s gonna happen, I go to bed and I go to sleep. I kind of remember him coming in and going to bed. I mean he’s clearly worried, but we also have a two year old in the house.
P: Yeah,
K: so he’s, you know door, trying to keep it together and trying to keep her, you know, Kara, wake up at like 11 o’clock. And I think I’m gonna throw up. And I remember getting up grabbing the closet or cuz I feel like I’m gonna fall over. And that’s it. The next memory I have is laying on my bedroom floor and there’s a fireman above me, sitting, sitting on me. Apparently what has happened is…
P: Goose bumps! Yikes…
K: Yeah, literally, so my husband heard me, thank God, fall into the bathroom. It was a really, really small bathroom so I’m laying in the door and he kind of wakes up and he’s like Christie What are you doing, don’t answer. And he turns on his light, and gets up and I’m laying in the bathroom door, and I’m unconscious and not breathing. Thankfully, my husband used to be a paramedic, so he grabs my shoulder he yanks me up, he’s pretty sure he pops my shoulder out of socket, but he doesn’t get to me over and into our bedroom. And that movement. I did throw up, but I aspirated it… so gets me breathing is yelling to our two year old to wake up to go get him his phone. She never wakes up.
P: Yeah,
K: so he leaves me for a second, goes and get this phone comes back and he’s calling 911 calls 911 hangs up with them, they’re on their way, he calls her friend to come over because he needs somebody to stay with her. My friend comes in, goes directly into my daughter’s bedroom shuts the door and sits on the floor and just doesn’t leave her. So I, when I wake up, my blood pressure is like 30 over 60
P: Oh my god,
K: I’m in really, really bad shape. So because my husband was a paramedic, they give us the choice of them either him driving me or them driving me to the hospital, we don’t know what’s wrong with me but my husband decides, we decide, I don’t, I wake up at one, I don’t care. I remember being like, yeah. Hey, how’s it going, it’s firemen and looking at my hand and realizing there’s like throw up in my hair and just been like yeah that’s okay that’s been going back wanting to go back to sleep on my floor. I don’t care what’s happening, I don’t care I just want to go to sleep, so they carry me down in a, in a sheet, my husband and two firemen carry me down our stairs and put me in my husband’s car. And he drives me to the ER, I kind of remember the drive but i All I remember is laying on my side and putting my feet on the dash and pushing on it because, again, my stomach is hurting so bad. We get to the ER, and I remember, a doctor coming in, and I’m doing an ultrasound on my stomach. Leaving really quick. And another doctor coming in, and then doing another ultrasound. And then I don’t remember anything until I woke up, so all I know it was really bad, and my whole abdomen was for full of blood basically fluid. So my fallopian tube had ruptured, probably on the drive. That’s why my pain, suddenly got so bad, and I bled it, I was bleeding internally that entire time.
P: Here’s what Dr. Glenn had to say about how a ruptured fallopian tube behaves….
Dr. Glenn: What I’m really concerned about is, let say it ruptures, and you start bleeding because a tube has a lot of blood supply to it..it’s delicate, and it bleeds if you look at it wrong, and so if people are bleeding from that, they are going to continue bleeding
K: So when I woke up. My husband had apparently had a breakdown at some point in time and was calling on my family and crying and they had given me, 2 liters of blood
P: for context here. According to medical news today the average size woman has 4.3 liters of blood in her system
K: and removed that fallopian tube….I survived and woke up with my doctor,
P: wait, let’s let’s pause for one second here. I can’t believe you have another child.
K: I do, yeah.
P: So I’m just gonna say it’s amazingly brave to go back into the breach,
K: yeah.
P: to say like yeah let’s try it again.
K; Yeah,
P: that’s so scary, Oh my god.
K: Yeah. Yeah, that’s probably the scariest.
P: Also, the cancer drugs methotrexate isn’t what it is I,
K: you know what I couldn’t even tell you. But I, I know you were like,
P: did it not work? do they know what went wrong,
K: it was too late. So they gave me this medicine, But it was too I was, it was too late. I was too far along, and too far past that point, that’s the answer I’ve been given is that if I had caught it like a little bit earlier, even hours earlier, it might have worked but I was too far along, for it to actually be able to reject.
P: So you’ve identified a tubal ectopic, is there any way to know how close the tube is to bursting.
Dr. Glenn: No, that’s the hardest part I think about we call them pregnancy but unknown location. So in Christie’s case I’m not sure if they actually saw like a mass in the tube. A lot of times we don’t we have to kind of go empirically like our ultrasounds are only so good, now they’re so much better they keep getting better and keep being the detect things that are smaller and smaller. But sometimes if their hormone pregnancy hormone levels too low, like it’s rising up normally that’s too low, we’re not gonna see anything that to
P: roughly how big is the embryo at this point
Dr. Glenn: three to five millimeters.
P: Okay. that’s tiny
Dr. Glenn: It’s very tiny. Yeah. Now, let’s say her pregnancy hormone level was very high. That was kind of a relative contraindication to getting methotrexate, we say if it’s over 5000 or we see a heartbeat, in the, like, called adnexa which is in the tube or outside the uterus, those are relative contraindications to getting methotrexate, but they’re not absolute because some people really want to avoid surgery. There’s risks and benefits to both, but there’s no way to know that tube could be rupturing, as I’m seeing her, and she might feel fine that point, we do know that ectopic pregnancies can resolve on their own, and one that happened in the tube, when their pregnancy hormone level is very low like less than 200, about 80% of those will actually resolve without any medication intervention, It kind of extrudes out the tube and gets absorbed by the abdomen.
P: so then you had the burst fallopian tube on top of chemotherapy Vicodin and nausea medicine. Yeah,
K: to say the least, I, I pretty much I’m petrified to take it again, and just don’t want it in my body
P: that seems fair.
K: I’m sure it has nothing to do with any of it but all the medicine that was involved with that little window of time I never want in my body ever again.
P: Yeah, I feel like that’s fair.
K: Yeah, so there’s lots of checkups that happened after, obviously I now have chemo medicine in me so even the thought of trying to have a baby again isn’t going to happen three months I think took three months for that to be completely out of my body,
P: I know there are risk factors for ectopic Did you meet any of those risk factors?
K: no
P: In the published literature I saw about risk factors, there are a wide variety of things linked to ectopics…so I took this question to Dr. Glenn: What are the risk factors for ectopic pregnancy?
K: Actually, infertility, just in general is a risk factor. You have tubal factor. What that means is, if we know your tubes are abnormal, you know, if you’ve had pelvic inflammatory disease that can actually affect the tubes cause the tubes to become dilated and fluid filled, and they have cilia and your tubes to help sweep along the eggs kind of like brooms. And we know that if there’s fluid in there, those can disrupt the. Yeah. And so, tubal factor being that we know that the tubes are not normal, increased risk for a topic, even if we do IVF, and we’re actually avoiding the tubes in general, still an increased risk. Other things were kind of unsure about why infertility itself is causing it. Even people with unexplained infertility, maybe they have some underlying factor in their uterus that doesn’t make it a good environment for an embryo implant or there is something in the tubes that we just don’t know yet. One reason I love and it’s frustrating about my field is, it’s so much unknown still. And so, you know, other things people realize that our risk factors is smoking, endometriosis….And then we also know you know that there has been an association between doing IVF cycles your hormones get incredibly high. We know that actually increases risk for ectopic that has been shown to I should say, but we don’t really know why, but about at least a good 50% of people that topics have no risk factors.
K: The thing that we come up with is that this mystery fluid in my body was coming from my C section scar, from my first daughter, I never healed completely on the inside so weird fluid from this scar from years ago was seeping into my uterus and the embryo didn’t like that fluid, so it was running away from it.
P: Okay.
K: And the only way to go was up. So, ran out and into my fallopian tube. Nobody knew that. And on every, you know, scan that I had and everything we could hear a heartbeat and, but we didn’t know, I mean there was no way of knowing where it was sitting.
P: Yeah,
P: So the theory about why this happens to Christy is that her previous cesarean scar led to fluid in her uterus and the embryo was making implantation decisions based on the fluid in the uterus, I mean, that brings up all kinds of questions like how we’re as the embryo figure out where to implant,
Dr. Glenn: yeah
P: I did a brief literature search for that and couldn’t find anything in humans, but in animals, there’s all these suggestions that the placement of embryo implantation is pretty consistent across animals suggesting that something is guiding the embryo to figure out where to implant.
Dr. Glenn: Yeah, and is it like a chemo some kind of chemo attractant, is it the receptors that are have on their endometrial receptivity, is a huge area in our field because we know that in IVF it’s like if we have a let’s say a tested embryo, which is, you know when the eggs and the sperm come together and fertilize that egg. It will grow and become an embryo and usually about five days after that so Lightstation is called a blastocyst and that’s when we will put it back into our patient usually the day three or day five, we can test those embryos to see if they’re completely normal. And we can have normal embryos not implant. So we know there’s a lot of underlying factors about the receptivity between an endometrium or the uterus which enemies from being the lining of the uterus and the embryo that we just don’t understand yet, is why even with IVF, you know, even in let’s say a young patient 30s or, you know, Overall, the success rate per cycle of placing that embryo back in. It’s only 50 to 60%. There’s so much we don’t know yet. The embryo that doesn’t know how to attract the uterus, or the uterus, that’s not having all the right factors or adhesion molecules to actually be receptive to the embryo.
K: So, there’s a surgery, you can have done where they go into your uterus and they burn each side of your scar to seal it up. So, after all of this happens, I have that surgery. So I go see a specialist for the basically cauterize around your the scar to make the skin fused together so now that it’s just like in a little pocket, and not releasing any fluid into the uterus
P: does that hurt, or No,
K: that wasn’t too bad actually. There were the recovery was super minimal, they go, I’m trying to think, I think they go in through your cervix.
P: Okay, so they don’t have to make an incision or anything.
K: No, so recovery super easy. I don’t remember that being bad at all.
P: Okay.
K: We tried the idea of another idea first and instantly rejected wasn’t a, I didn’t get pregnant, or anything it just didn’t take. And then I had the surgery to take care of that, because that fluid kept showing up. So, this is the determining factor since I had nothing else.
P: Yeah,
K: so I do the surgery where we seal off my scar. And we have, I have two more embryos, I have a boy and a girl. So because we’ve tried boy boy, we’re obviously going for boy. So when we decide that since nothings working. We’re going to put the girl in. And it’s sort of like our, like if it’s not going to work. Let’s try it with the girl. Yeah, which is horrible thing to say because now I have a daughter, but it works. And so we’ve sealed off the, this, the scar, and I get pregnant. And I remember standing in my bedroom when they call you right to tell you your numbers, that’s how you find out if you’re pregnant or not, and my numbers being crazy high, and it was like, YOU’RE NOT PREGNANT like you are 100% pregnant. Even with the like first pregnancy my numbers weren’t this high so it was like, this was the best possible thing like you are, you’re definitely pregnant. Yeah. Like, I’m not pregnant until I passed six weeks, just so you know, but I do, and I totally have another perfect pregnancy, again no morning sickness, no, I make it all the way, I graduated from my fertility clinic you graduate after the first semester you get to leave your fertility clinic and go to the regular doctor and I remember that day happening and everyone in the clinic cried my doctor cried. The person who was taking my blood every freaking day was crying like the receptionist cried, everyone knew what I had been through the whole office knew that that was like my last appointment. And it was the most amazing craziest feeling I was like, you see ladies with real bad shit. And you’re crying because I’m leaving, so this is a big deal. So, I remembered like starting with my regular doctor and it was great, the birth was completely different but still ended in a C section, but I had a doula, this time for my second daughter, the entire birth situation was completely different and 100% Amazing, with my second daughter, It still ended in a C section because I got a fever and she, her heart rate started getting weird. But I went to the hospital at 4am and she was born at 8pm.
P: Oh, that’s not so bad.
K: Right. That was like my water broke naturally, I got to walk around and I was had her over the toilet because I my water broke and I went from like four centimeters to 10 centimeters and the time it took me to go to the bathroom and come back.
P: Wow.
K: Yeah, but it was like all fine. It was amazing. Completely different this, she still did ended up having to be a C section but she was, it was still fine, and
P: wait, how we feel about the C section after the fears about the scar.
K: Well, we were pretty sure we were not having any more children at this point.
P: Okay,
K: and my and my doctor was well aware of whole situation. We made sure she knew I apparently don’t heal very well, we need to be like extra clean and clear on what’s happening on the inside of my body, so I felt like I had a lot of confidence in my doctor, so I mean it’s obviously not ideal, but I can’t get pregnant naturally so that’s what how me and my husband were thinking is like, its gonna be fine because we’re pretty sure we’re at the time, we were pretty sure we didn’t want to go down this road again.
P: Yeah,
K: this is it, and this is going to be amazing and our family is complete, still have one more embryo, but we weren’t even completely sure that we wanted to use it, and we had talked about what we were going to do with it. So to me it was okay. Again not ideal, it wasn’t what I was going for. I was pretty damn determined to have her naturally, actually, all the way to the point of seeing her head, and my husband could see her head. The biggest difference was, by when we decided we were going to call it and do a C section. I kept having contractions this time. So, laying outside the ER, completely flat because I’m getting ready to go in and still having contractions and being on the bed with the sheet up and still having contractions like that part was weird this time. And because she was had really gotten all the way down there, they said they like had to go in and get her, and pull her out of the birth canal this time we’re just he was just like, right there ready to hold out I recovered from C sections pretty fine. I’d never, like, say that you can really tell, I don’t have this car like it’s fine. We Bring her home, but we have to make the decision, we paid for the storage for the second embryo for quite a while, and made the decision to donate it to science so we did that, and then, so my second daughter was born in April of 2018. So February of 2019. I start having really crazy stomach pains, and they last for like a week, but they’re weird and I tried, I tried every medicine you can name for every stomach ailment you could think of, we finally decided I’m going to go to zoom care, and just going to get checked out that we can a car but I figure that’s just for like checking for different things and the doctor comes in is like, I have good news and bad news. The good news is you’re pregnant. The bad news is, because you have a history of ectopic pregnancies, I think you need to go to the ER. So I leave there immediately and call my husband and start driving to the hospital,
P: wait, let’s pause here for one second, I feel traumatized by this news, are you traumatized.
K; Oh yeah. Oh, and this is impossible because I can’t get pregnant. So, this never crossed my mind that this was what was wrong with me.
P: Yeah.
K: So I tell my husband in the exact same way. Great news. I’m pregnant. Bad news I’m on my way to the ER, because they’re pretty sure I’m having another ectopic, but the pain doesn’t feel the same, so I’m like, I’m confident that, like we’re catching it in time, like this is gonna be okay. So my husband meets me at the ER, and we are sitting in the ER at a table and I have a glass of water, and my husband watches me change color, and almost fall out of my chair which is the exact moment that my fallopian tube ruptured again. So he goes and gets the doctors,
P: I hope you went and bought a lottery ticket after this.
K: It’s my, my second daughter is the definition of a miracle pregnant. Yeah, because, literally every pregnancy before her, didn’t work, and the pregnancy after her. Didn’t work.
P: Yeah,
K: and they two on either side of her literally almost killed me.
P: Yeah,
K: yeah.
P: So you, you fold the ground I assume that helps you to skip the line of the ER,
K: you skip the line magically Yes, you instantly get a bed, which is pretty amazing. And they did a lot of scans, I feel like I was in the ER, a lot longer this time because it hasn’t had a timeframe so like it just ruptured.
P: Yeah,
K: so the process of bleeding internally and stuff is happening in hospital. I still get two more liters of blood. I still have all of that stuff happen. I know I have no fallopian tubes, so I really can’t get pregnant now, unless I were to do IVF again, which obviously I’m not doing the fact that it happened twice, I guess that never happens. Yeah. Never. And even the doctors at the hospital were like this doesn’t happen. You can’t have this happen two times. So I now have two beautiful daughters. And that’s it.
P: Wow.
K: Yeah.
P: So you this one the certain they did surgery immediately you recover more easily.
K: Yeah, I mean it’s the recovery is pretty the same surgery is done with it orthoscopic Lee Yeah. So, I already have the scars pre made for them they just have to go into the same place, and they take. Yeah, they take that one out. Also, though.
P: So, so no one can explain why this happens again,
K: I mean the only thought is that, you know I had a C section with my second daughter, so is it just that same thing, and I just really don’t feel very well. So, I mean that’s all we can think of.
P: Clearly Christie had a pretty unusual experience, and I’ll talk to Dr. Glenn a little bit about that in a second. But one of the other things that’s clear from this experience is that there are a lot of unknowns in this area of medicine, and we may never be sure about why these two ectopics happened. Having said that, it sounds like Dr Glenn may have a slightly different theory. One of the risk factors for ectopic is previous ectopic which suggests that people are having more than one.
Dr. Glenn: Absolutely.
P: So, is this unusual for you or what’s your experience
Dr. Glenn: overall, you don’t see people with multiple ectopic pregnancies in a row, but since this is kind of my patient population is infertile. Then I see it at probably a higher rate than majority of providers, but yes definitely just like so many different things in medicine, the one of the biggest risk factors is prior history. And so prior history of an ectopic definitely increases your risk so if you have a history of ectopic, you have a 10% chance of being a second topic, so you have to make topics, you have a 25% chance. And that’s because an ectopic pregnancy is already telling you you have something abnormal with your tube,
P: it’s crazy. That is totally crazy, and I would never have known that those are the only surgeries I’ve ever had and
P: my experience with the infertility stuff is that they know a certain amount, but beyond that, they don’t really know what which is why would you say to me like I can’t get pregnant without IVF, I think, of course you can right they just, they didn’t find your problem so they don’t entirely know what it is and,
K: yeah,
P: my guess is that is most people right if you pass all those things right like I passed to and then it turns out I have an autoimmune problem, which we found in the pregnancy when I tried to kill my daughter right like but I was totally cleared, they said like, oh you’re sitting, you know, we check the five things we’re gonna check for everything’s in working order. Goodbye. Good luck,
K; Right, it is no, even the conversation I remember sitting in the like seminar that they do for the fertility clinic where they talk about, you know, it’s like the little class you go to before you actually are a patient, it’s like to introduce you to this clinic and they go over how a baby, actually, is made craziness of how actual impossible. It is,
P: yeah,
K: you don’t know that until you sit down and somebody tells you exactly what is happening in your body, to make this happen. Here there’s so many people.
P: Yeah, I totally agree. I’ve just seen response like how is any baby born, how does it work,
K: how does anybody actually have a baby. Yeah, yeah,
P: there are a million complicated steps so it is easy to imagine that like, you know, you will be able to pinpoint all of them unless you have some obvious problem. Yeah, you know you won’t know what’s going on, both of your daughters seem kind of miraculous. Yeah,
K: I mean, and I funny thing because we’re my daughter’s, you know she’s eight and we’re getting to the point where she’s asking some questions and I had this realization, laying in bed the other night that when she finally does want to hear the story and want to learn how babies are made. I have two amazing stories. Yes, they, she gets to hear how the story of her and she gets to hear the story of her sister. She doesn’t necessarily yet have to understand all the things that happened in the middle but they’re both two amazing stories, yeah, yeah,
P: that is amazing what was the eight year old into.
K; She wants to be a vet,
P: that’s fun.
K: Yeah, she’s super into animals, and she takes horse riding lessons and play softball,
P: that sounds busy.
K; Yeah.
P: What about the two year old What are her latest tricks.
K: so my two year old is our firecracker. She is 100%. And they’re, They’re very different personalities. So, my oldest name is Josie and my youngest is Cody, one is soft spoken and sweet and nurturing and loving and one is a terror of my house. Yeah. she earned it I guess,
P: yeah, she totally did
K: oh my god she totally did. Yeah,
P: that’s awesome. That’s a great, that’s a great and triumphant story.
K: Yeah, it’s pretty crazy. I feel like I should like be doing more things. I almost died twice, I should being doing something.
P: Well you I mean you have had two amazing children that’s right yeah, but I think you should play the lottery. I think you really have like access to numbers that the rest of us don’t right
K: something, there’s something, right, yeah. Oh, yes,
P: your story is a huge story of triumph, right, it’s amazing that you guys are. Everyone, like your kids do not bear any of the marks of your experience,
K: no,
P: which is amazing, right.
K: Yeah, I have two very perfectly healthy children.
P: Yeah, that’s awesome.
K: Yeah, they I have scars and things and, you know, I have no fallopian tubes, but they are perfect.
P: That’s awesome. Totally awesome.
K: Yeah, it’s pretty crazy.
P: So let me ask you one other question if you could give advice to your younger self, what would you, what would you tell her
K; Don’t ignore stomach pain.. It’s funny because I so my, my thing now is always, I didn’t want kids. Oh, look at what I went through to make sure I had to. Yeah. Like, I clearly did want kids, and they’re definitely my proudest, most amazing thing I would never ever change. Yeah, super. Like it never goes as planned. Yeah,
P: there’s no plan, there’s no, no,
K: I had a birth plan with with my children, I wrote it all out.
P: Yeah, yeah.
K: Nope. It would be having no plan,
P: right, your body’s going through so much transformation there is the sense of a loss of control or all these things are happening inside you that you literally there’s nothing you can do. Yeah, so the birth plan sort of makes psychological sense at the very least to say, you know at the end of this long process. This is how it’s going to go.
K: Yeah,
P: at least in your mind, as long as you’re able to give it up in the last minute when it doesn’t happen.
K: Yeah, I think my biggest recommendation, this would probably because I know I know lots of people have different things but I was so sure that I understood the birthing process with my first daughter, that in the, in the room with me and my sister in law, and my husband, obviously. And after having her. I decided with my second daughter to have a doula. And the reason for having her was that, I then learned that I’m in the middle of a situation where I cannot be my own voice.
P: Yeah,
K: and I need somebody to be there to be my voice, who’s not my husband, who’s not my family member, but understands what’s happening, and can be a voice of reason and that’s 100% what she was,
P: it makes sense to have an advocate, I think you don’t realize the first time that you will need one. Yeah, because you think I’ll be totally in control, which I know people do. Yeah, and it’s useful to have someone who’s seen 100, who can say like this is, this makes sense or this doesn’t make sense yeah that’s good advice.
K: Yeah, she was amazing, and I recommend her to everybody now, so having that person who will this person literally dropped on all fours in the waiting room so that I could lean on her to have a contraction. Like, that’s the person you want in your ballpark,
P: yeah, yeah, that sounds like good advice. Yeah. Awesome, well thank you for telling me your story. I’m so glad to see you looking very vital. And that’s all kind of behind you now. So I didn’t catch Kristi’s sign off on tape, but
P: I’d like to thank her again for sharing her story and to Dr. Glenn for her medical insights, Christy describes her children as the miracle. And on some level that’s true to grow a child from seed is nothing short of miraculous, especially given some of her specific circumstances. But hearing this story I really think it’s Christy’s response to all these overwhelmingly challenging obstacles. That’s miraculous and I found it totally inspiring. Thanks for listening. If you like this episode, feel free to like and subscribe to the podcast, you can find detailed show notes at war stories from the womb, calm, and if you’re interested in sharing your story there’s a place in the website to contact us. We’ll be back soon with another inspiring story.
Episode 27: How did We Get our Current Culture around Pregnancy & Birth: Ask the Historians of Science
Episode 27SN: How did We Get our Current Culture around Pregnancy & Birth: Ask the Historians of Science
Talking to my mother and other women from previous generations it sounds like they got pregnant and gave birth in a culture that’s different from the one we face today. Based on these talks, I have often wondered how we got to the specific point we are at: where pregnancy is a very medical experience, C sections are so common, we seem to be just starting to talk more openly about miscarriages and the postpartum period, and women are trying to navigate the demands of breastfeeding and work. In today’s show I interview two historians of science to get a sense of how we arrived at this particular moment in which we find ourselves.
Lamaze method
https://www.healthline.com/health/pregnancy/lamaze-method-pain-relief
Audio Transcript
Paulette: Hi Welcome to War Stories from the Womb. I’m your host Paulette Kamenecka. I’m an economist and a writer, and a mother of two girls…I’m also a daughter…and from talking to my mother and other women from previous generations it sounds like they had a very different pregnancy and birth experience than I did. Talking to my mother I have often wondered how we got to the specific point we are at: where pregnancy is a very medical experience, C sections are so common, we seem to be just starting to talk more openly about miscarriages and the postpartum period, and women are trying to navigate the demands of breastfeeding and work. In today’s show I interview two historians of science to get a sense of how we arrived at this particular moment we find ourselves in….
First I’ll talk to Dr. Judith Leavitt from University of Wisconsin and then I’ll talk to Dr. Janet Golden from Rutgers university about maternal mortality, and miscarriage and hospital births and breastfeeding, among other things
Paulette: Hi, today I’m excited to welcome my guest, Dr. Judith Leavitt, who was the Ruth Blier Professor of History of Medicine history of science and Women’s Studies and the Associate Dean of Faculty at the medical school, University of Wisconsin Madison. She’s the author and editor of many books about women’s intersection with public health and medicine in America, and 2010 authored a book about changes over time and a father’s experience of birth. I feel lucky to get to talk to her today about how we find ourselves in the current birthing environment. Welcome Dr Leavitt.
Dr. Leavitt: Thank you very much.
P: So I’ve been reading your book brought to bed childbearing in America 1750 to 1950, which focuses on the experience of women mostly white middle class but it includes some details about immigrant women and women of color. These questions will all come from reading that which kind of blew my mind, in part because it’s shockingly relevant. Regrettably, so the first thing I want to ask is that in our not so distant past maternal mortality rates were super high, (accurately counting maternal deaths remains a tricky thing to do, even today, but according to dr leavitt’s book, she writes, “the statistics show that deaths from maternity related causes at eh turn of the twentieth century were approximately 65 times greater than they (were) in the 1980s”) and I’m wondering if women looked forward at all to start doing families like they do today or was the threat of their health, Overwhelming Do you have any sense of that.
Dr. L: I think women were very aware of the fact that childbirth was dangerous, and they were aware of it, not necessarily because they knew about national rates or any numbers around that but they did know and had experience with women who had difficulty, and had come close to death with childbirth and they also knew women who had died in childbirth or whose babies had died in childbirth, so they were certainly very aware and I’m talking now 18th century and 19th century, very aware that child birth was dangerous, I saw that worry very much in their writing. And let me say that I read women’s diaries and letters, for the most part to get their own point of view at the moment that it happened not and sometimes in the, in their memoirs and memories of past events but a lot of it was very current in their minds and they were very eager to have babies. They were scared, because they knew it was dangerous, and I think some of the choices that they made about what they wanted for their childbirth, had to do with that danger fright, that they had. But they were just enormously eager to have children. Also, and it didn’t seem to lessen that eagerness, the fact that it was dangerous, dangerous I think it did influence their choices, a lot, and one of the points of my book, I should say is that I think women’s choices is largely what drew changes in childbirth history over time, used to be thought that doctors kind of forced women into the changes that happen, and doctors certainly played an important role, especially in the 20th century, but my contention in my book is that it was women who made the choices that they made and they made them as you started out this conversation by saying because they were fearful that they might die or might get into some serious physical difficulty in childbirth. And those changes, you know, I always thought, unfortunately tended to medicalize childbirth more than it might have happened, traditional childbirth was an event that happened in women’s homes, and women were surrounded by women, other women who had had children, their mothers, their relatives, their aunts, their cousins, and their friends. And it was around that female birthing bed that male physicians started to enter the 18th century,In those situations, most frequently they were invited in when women were having a long and very difficult labor, and they thought that maybe physicians could help. And it was forceps that physicians first brought to that helping effort, and many physicians said all they had to do is rattle the forceps in their pockets to get the women’s labor to progress more without them.
P: A little adrenaline, sure…
Dr. L: And that’s right exactly, and that they were invited in for those difficult kinds of childbirth, normal obstetrics wasn’t called obstetrics The ticket was called childbirth was midwife assisted and friend assisted and it was a very female event, and the physicians that did come in the male physicians were those that could enter a female, environment, and survive many didn’t many got scared by all the women around the birthing bed and left. Really, not, not doing much,
P: that’s super interesting I guess I didn’t, it didn’t occur to me that there was selection in the types of births that doctors first attended. So I imagine their success rate was low in part because they’re at the most challenging births,
Dr. L: right, except that they did have some success, obviously, helping birth. But midwives had a lot of tools in their kits, walking women around keeping them, mobile and and vertical was very helpful to a lot of women as they tried to get thrugh labor so midwives, had a lot of things they could do did do successfully midwives, it was really among the most important medical practitioners in the colonial period in America, by far, and they did more than just deliver babies they did a lot of other things that, because they were the, often the nearest and the most familiar of the health people that a woman, or family could call, they did call midwives to do other things, midwives. There’s a wonderful book on a colonial midwife by Laurel. LAUREL Thatcher over, called the midwives tale, and in we get a lot of what we know about late 18th century, early 19th century. Midwives from that. One of the things that we learned that was, I think, something we didn’t necessarily expect to learn is that midwives kept very very full, gardens, a lot of herbs that they would use in their medical treatments and some, some having to do a childbirth with them having to do with other diseases as well. So they were, pharmacists, as well as healers, and they were really very important part of whole scene around health and disease in the 18th and 19th centuries,
P: as women moved to the hospital in the 20th century is that the death knell for midwives because I feel like midwives are not nearly as common today.
Dr. L: Well, midwives started to be replaced in the 19th century, so it was well still in the homebirth period that doctors wouldn’t be called increasingly for normal deliveries as opposed to difficult deliveries, and then it depended on who you were, how much money you had who you knew who you might call so doctors when they started coming to normal deliveries in the 19th century, they often came with midwives, that is midwives came and midwives might even call them and they’d be both of them around the birthing doctors are very kind of gradually taking over some normal births, especially urban ones in the 19th century, but it’s really in the 20th century when childbirth, moves to the hospital that midwives are most replaced by doctors and it’s really the midwives still in the south, well into the 20th century, in rural areas and in some rural areas in the north, especially immigrant rural areas but immigrants in the cities also might have tried to find an immigrant midwife who spoke their language and call her in before calling in a doctor before going to the hospital so midwives have been involved in childbirth. Always in American history, and are still. But as you know, a very small part but I think a slightly growing part of childbirth today, and it’s mostly, I think among some immigrant groups, Hispanic immigrant groups, for example in Texas are very user friendly to midwives and other rural groups. There’s a big Midwife center in Washington state, and is catching on around the country, again I think somewhat urban, as well as rural by a lot of middle class women who feel they have voice and who don’t choose to go to the hospital. So, midwives and birthing centers which are often run by midwives are increasingly used it’s still a small percentage of total births, but it is an increasing number.
P: Yeah, on this podcast I’ve talked to a bunch of women, both from England and Australia, where it’s just a much more common practice to go to a midwife unless you have a complication and deliver birth there which I wonder if that contributes to their low C section or lower than ours.
Dr. L: Probably. Yeah, wonderful book, new book on the history of homebirths that deals with 20th century home births and Midwifery, which you may want to look at by Wendy Klein. It’s really a good entry into that question.
P: I’m wondering about all these journals that you read. If anybody talks about infertility, how that was handled.
Dr. L: If they did, I didn’t pay attention to it at the time I was looking at some I’m sorry, I think, I let me tell you that when I started this research, it was really very hard to find childbirth accounts everyone told me don’t even look, You’re not going to find anything people don’t write about it, it’s this kind of taboo subject even Well of course I knew that wasn’t true, but I, I had to find ways to find childbirth stories, and so what I did when I went to an archive for example is look at family papers, kind of scanning through family papers until it was a birth, and a child in the family. And then I would go back to the women of reproductive age in that family. Nine months or further to see their child birth experiences and when and how and when they got pregnant and so that’s when I found a lot of a lot of women writing about wanting to get pregnant about excitement about getting pregnant, and they wrote about, you know their excitement when they were getting married and their excitement that they would get pregnant and their excitement about getting pregnant. And those women I found because they had had babies so in terms of women who might have been infertile, I probably wouldn’t have found them in that way of searching, unless that same woman has some infertility issues in her, her own experience, Shannon Whitleycombhas written a wonderful book on the history of miscarriage and that is partly about insecurities
P: in brought to bed it says the women who did not lose any of her children either at birth, or in the early years of their lives was rare in 18th and 19th century, far more common to the woman’s experience was the necessity of accepting the deaths of numerous offspring. I was wondering if because that was such a reality if miscarriage didn’t get any attention. If it was you know relatively early like it does today because he was surrounded by the death of children.
Dr. L: No, absolutely, it did. In that sense it did but but the ones I was talking about were ones, women who had lost children they had live birth, yeah, yeah. So in that sense I was, I was not talking about those women and infant mortality was just spectacularly high. In those years, and women experienced that they sometimes didn’t name their babies until they were a year or two old because they were worried that that would be kind of Jinx, their success and raising them, and very often they named babies, after baby who had already died,
P: that’s interesting
Dr. L: or a child who had already died so there was Elizabeth who was in the grave and Elizabeth who had just been born or had been born a few months before, when they were finally named so a lot of families, you know, made one of my it was one of my difficulties in searching out experiences because you might have had three Elisabeth’s in a family, and trying to figure out which one was the one that I might get a birth story from,
P: yeah. Yeah
Dr. L: That’s hard.
P: Yeah, it’s hard to imagine that, I mean obviously we kind of know, we know that intellectually but it’s hard to imagine what life was like with those editions, and that threat.
Dr. L: Exactly. And there have been people have written about it as if women didn’t love their children until they were a certain age because they were afraid to emotionally commit. And I don’t think that was true at all. I think women committed. The incident of birth, most of them are certainly in the first year of life.
P: In my first pregnancy halfway through the pregnancy. Doctors found that I had an autoimmune condition that was attacking the fetal heart. And so for the last three months they kept saying she’s not going to survive, she’s not going to survive and I had this struggle, on the one hand, you might try not to get attached to the idea of this baby. Although you’re already very pregnant with her. On the other hand, I thought, That’s not realistic. I’m already attached, and there will be no way to dampen the pain by waiting to name her. I’m sympathetic to the idea that naming someone makes them more real and more embodied, not naming them doesn’t make them any less real For me, that idea I can connect to. I myself was not able to say, and she’s fine. By the way she’s so good 19 Freshman. Freshman in college.
Dr. L: Good for you for sticking it out. That must have been very difficult.
P: It was super stressful, but you know, not naming a child, you’re still in love with the child right there’s no, no getting around that.
Dr. L: Right.
P: so another thing you mentioned in your book is that, women moved to hospitals to deliver before the death rate in hospitals, actually dropped below the death rate in home births and you have that great graphic of urban versus rural death rates which will forever be emblazoned in my mind, and I’m wondering if that was an issue of failure to communicate information effectively, how was that gap created.
Dr. L: No, it was the same thing I had talked about for the earlier period women were always seeking out something that was going to make their childbirth experience better. And they always thought that paying attention to what was the most advanced in medicine was going to help them the most. So that’s why they got doctors involved in the first place with with difficult births, it’s why they have kept doctors involved for normal births, so called normal verse in the 19th century. What was interesting, it wasn’t just give me everything you have, I’ll take it with the doctors, the women always remained very critical of what doctors would do they were, they wanted the forceps, but they didn’t want the forcepts.
P: Yeah,
Dr. L: they wanted something that anesthesia for example, women really really wanted anesthesia after the middle of the 19th century, and yet, they wanted to be the ones in control of it not necessarily give that control to doctors. So there’s constant push and pull between women and physicians, even though it’s women who wanted the physicians and what they had to offer. You can’t really think of this as something kind of straightforward, so the move to the hospital was part of that, that women thought that the hospitals would have something to offer and one of the things that hospitals had to offer was around the clock care, which women were having a harder and harder time finding at home, it used to be that relatives would come they’d move in for, you know, maybe months to help you around childbirth and early childhood for the babies and your sister would come and it would be easy, relatively easy to have somebody with you all the time for all the help that you needed. Well that became harder and harder as the 19th century wore on, as women were in the workforce more as families who are more mobile and moved away from their original family. So women had that real drive to look for some place that they could go and have care that they didn’t have to worry about. So that was a big part of it. Another part of it was the physicians once surgery was getting established in hospitals, physicians themselves were moving into hospitals, instead of doing office care and home care. So it was harder to get physicians to attend you if you wanted a physician. If you stay at home so that that was part of what women wanted and it was also that part of it was something physicians wanted it was a lot easier for them to have nurses on call and everybody ready and they just run in and hold out their hands and deliver the baby, where everyone else had done all the work so that was easier for them they didn’t have to worry about the horse and buggy, they didn’t have to worry about cranking up their early automobile they were set in the hospital and had a much easier time too, so it was really a push and pull from physicians and then from women’s end wanting to move birth into the hospital, they didn’t, I think realize as you put it about that mortality might still have been high in the hospital that infection was still an issue in fact is a bigger issue in the hospital than it was home. If they knew about it, it wasn’t the predominant thing in their minds they were looking for what they hoped would be a safe experience with people who knew what they were doing around them. What they didn’t realize that first generation that went into the hospital and it wasn’t the whole generation obviously all at once. The first women who went into that school didn’t realize consciously, what they were leaving behind. They didn’t realize the female world that they had created at home, which had been such a comfort to them and had eased the birth transition so well. They didn’t realize they were losing that if they went to the hospital, hospitals, they labored, if you can imagine this we don’t do this anymore they labored alone delivery room obviously there are people around them, the physician and probably the anesthesiologists and nurses in the labor room they were mostly alone nurses would come in from time to time to check if they were dilating, how far dilated, they were to check that they were okay maybe offer them some ice cubes, maybe not even that. Otherwise they’d be alone. And that was really, really hard to make that transition from being in the comfort of your family and friends to being alone as they put it, alone among strangers that’s why I named my book brought to bear because in the early period women were brought to bed by their friends by their relatives by people they loved and who loved them. In the hospital, they were alone among strangers, women in labor rooms would talk about listening to doctors and nurses talking outside in the corridor. they might come to the door and look at you, but they wouldn’t really come in and hold your hand and give you the kind of comfort that you wanted and needed if you if labor was going to progress. Well, so it was a very difficult transition in that sense, but as I say women didn’t know they missed it until they missed it, and then they missed it badly.
P: Yeah, no kidding that that sounds really dramatic I talked to a woman yesterday who was born in Britain but her family’s from Nigeria. And she was saying when she got home from the hospital, her mother was with her for living with her for a month and you know that her mother in law came and she was saying in Nigeria that is the common practice that exactly what you described, which is that someone moves in with you to take care of everything, and the mother’s feet are not to hit the ground and, which sounds kind of amazing and she herself was saying, it’s much harder to do you know that we live in England because everyone has a job. So, you know, my mom can’t live with me anymore because she has to go to work.
Dr. L: so I recreated that a little bit when I had my first child, I’ll tell you this experience, it was on the delivery table, literally the delivery table when I was pushing, I’m working so hard that I realized the birthing mother is the most important person in that room, and, of course, working the hardest of anybody in the room. And the story historically from her point of view had not been told we knew about the doctors we knew about the nurses we knew about the midwives, you know less about the nurses and midwives and we have since come to know but we knew about childbirth from the medical point of view and we did not know it from the birthing woman’s point of view. And that’s right there is where my book was conceived as my child was pushing her way into the world, I knew I had to tell, try to tell the story from my point of view my working hard point of view. And the other thing that happened which was totally inadvertent but quite wonderful. In my first birthing experience was that I was doing a Lamaze delivery which was in, in my day a little unusual,
P: the lamaze method was developed in 1950 by a french obstetrician and it was a natural birthing technique that focused on regimented breathing for each stage of labor
Dr. L: and the nursing student class heard about it and wanted to come in and see it. And so I had about 10 nursing students around my bed, all female. So, other than my husband who was there, I had recreated without knowing it, the female part of the experience, and it did help they all saying happy birthday when Sarah came out and it was, you know, it was quite a party in that sense in the same way as it had been what we used to call social childbirth, it was a social childbirth and a female social childbirth.
P: That seems fitting.
Dr.L: Yeah, it was but I didn’t know it at the time.
P: Let’s talk a little bit about Twilight sleep if it seemed as though, women were edging away from that social circle that was so helpful. It sounds like Twilight sleep was just the end of that.
Dr. L: it was, but one of many things in the hospital that ended that Twilight sleep was seemed very very attractive to women women, as I found out who call themselves feminists who wanted to imbibe that they men, choosing the way they wanted to have birth. When I was a feminist writing this book, I was thinking of feminism as something that meant I controlled the birth itself and that was a slightly different use of the word feminist but they were feminist and they wanted to choose and they had heard about this method this we’re talking about the second decade of the 20th century, in the 19 teens, and they had heard about this childbirth technique in Germany and wanted to bring it to America, and basically it was giving the laboring woman, a combination of scopolamine and morphine which would morphine to dull the pain and scopolamine to help you forget it, and it would kind of put you into this totally relaxed state of sedation and not really knowing what’s happening to you, and you would deliver your baby and then you would wake up and some women who did that. I remember having had a baby they didn’t know they had had a baby, so he missed the whole thing, which for me was really terrible because I loved the whole thing, I loved it, not in the kind of romantic, fuzzy pink way.
P: Yeah,
Dr. L: but in a way that helped that I understood the power of my body in a way that I hadn’t understood it before I had a baby. And that was incredible to me that a body, a woman’s body can do that, and I wanted every minute of that experience I wanted to be awake and alert for it, which is why I didn’t want medications but in, in the twilight sleep. Example women wanted that medication wanting to forget it wanted to wake up with a baby and not knowing it and not having felt it, and they did that until they realized that the dosages in those early years of using scopolamine and morphine the doses weren’t well regulated were, weren’t well understood and some of the babies were very lethargic after being born and the women not necessarily in great shape themselves so it was something that fell by the wayside pretty quickly in that form, but was continued to you be used once they understood dose medication, well into the 1960s. You may be still being used in places, my sister in law had a scopolamine Birth in the 70s but it was a way to medicate women without them, understanding it as medication per se. I think anyway they liked it and they came to the hospital for it so yeah they ended up one of the things you did under the effects of it was thrash about a lot and so they would put women into these into bed, high Canvas sheets so they couldn’t see and they couldn’t fall out, which also, you know freaked me out because you’re really alone in that environment, and I didn’t like that but they loved it, so.
P: Yeah, it sounds like horse blinders I’m not for that. And do you have any insight on abortion was it handled by midwives, was it a political issue, or the 18th The 19th
Dr. L: well, yes and no. I mean, in traditional societies and including our own life was not seen to exist before quickening between the 16th and 20th week of pregnancy. So until a woman felt movement, you didn’t worry about that and yes women tried to get abortions if they didn’t want to have their babies and they helped each other do that. Midwives sometimes helped some, some absolutely refused to help, and doctors got into the act and helped, and then some also absolutely refused to help, until the late 19th century was seen as perfectly fine for quickening because it wasn’t seen as you had life yet. Technically, so people did it and, and the problem was finding a way to do it successfully. And of course, there weren’t a lot of very successful remedies. Then, and the same with birth control, you know, they tried all sorts of things for birth control and weren’t necessarily successful,
P: that is super interesting to see how many historical lines from the past are still totally relevant today.
Dr. L: I do think that we are re experiencing many of the things we as individual women are really experiencing many of the things that women in the past have and we have some of the same concerns they may be manifesting slightly differently today but they are. There’s a lot of a lot we can learn from women in the past.
P: Yeah, the issue of control is so, fundamental to every woman who talks about her story about control over her bodyand almost everyone universally says, when they feel a loss of that sense when things are being done to them, it feels terrible and not natural and, and that seems true forever and I can see why women fought so hard to have people with them.
Dr. L: People with them and to make birth plans, even though a lot of women know that the birth plans can get thrown out…maybe too easily. They make them and they, they put a lot of stake in them, because they really do think about what they want in a childbirth experience, and of course many doctors really try to give them that. And pay attention to their birth plans and help them with that. And others just say dear, dear, I know more about this than you do, don’t worry just put it in my hands. So, you know we have those experiences, right away first in the hospital in the early 20th century and we still have today. You know, it’s something that we can look back on and see how did women, those women who kept control how did they do it. Yeah, and we can learn from that.
P: Oh, thank you so much for taking us on this tour of where we’ve been and hopefully where we’re going.
Dr.L: Well thank you for asking me. I hope that was useful.
P: Yeah, it was great. Thank you
P: and now a little bit more on where breastfeeding fits into the current day picture:
A special welcome to Dr Janet golden, a professor at Rutgers who specializes in the history of medicine, history of childhood, women’s history, and the American social history. She’s the author of several books, including most recently, babies made us modern how infants brought America into the 20th century, which is a very intriguing title, thank you so much for coming on Dr. Rosen.
Dr. Golden: Oh, thank you for inviting me.
P: One thing I want to talk about today is breastfeeding and sort of how we got where we are now culturally, I think there was no push to get my mother to breastfeed, as opposed to my kids when I, when they were born, there was an enormous push to breastfeed. So I’m wondering if you could kind of walk us through how we got here.
Dr. G: All right, that’s it, that’s a great question and I think we can say that there’s a very long history of forces, promoting breastfeeding and forces opposing breastfeeding, it’s very different in the United States than in other places, of course, where, just as an example. The French were very concerned to promote breastfeeding and for reasons of health because they were being outnumbered by the Germans and they wanted to build a strong healthy population that can then it becomes out of fashion to breastfeed everybody wants to have a wet nurse or send a baby out to a wet nurse so there are constant changes in this history
In the United States, you know for most women in the early centuries of what we will call United States history, you pretty much had a choice of breastfeeding or using animal milks which weren’t as well formulated as they might be today, and most people simply didn’t have the means to purchase them out to maintain it properly if they did purchase it, they didn’t have refrigeration so breastfeeding was really the way to go until these canned formulas developed and then the formula companies jumped in and said get rid of wet nurses. Feed your baby the scientific way and go with melons, baby food or go with Borden’s condensed milk in a formula. So there was pressure in the other direction
P: is that like 1950s When is that?
Dr. G: that really gets going in the end the first formula is get going in the late 1860s 70s 80s
P: Oh, Wow,
Dr. G: so they start pushing that only a few people can afford it, of course, the breast, but breastfeeding begins to look unscientific and so there’s, you know, we start selling the, the sugar formulas that go into the milk formulas, and of course once you have running water clean water indoors, you have electricity or gas heat to boil things, it just becomes a lot safer to do that. Now obviously, there is some controversy when formula companies are promoting these powdered formulas in countries where people don’t have access to clean water, low income they have to dilute the formulas so they’re not healthy for babies but we’re not, we’re not going to talk about that so we’re really gonna say that by the post war period 1950s Breastfeeding is just out of fashion it seems primitive It seems something that poor women do. The modern scientific ways is to bottle feed, and then it’s very precise you can measure how many ounces did my baby, drink some baby books had you weigh the baby before you fed the baby and then feed the baby and see how many ounces, they took in, and then people began to push back against that and saying no. Why should this commercialized enterprise these be in charge, why should medical authority dictate over what’s natural for women, let’s go back to breastfeeding and of course there is good scientific literature that says it’s, it’s a better alternative, you know, cows make milk for calves women make milk for babies, you know it’s it’s a natural correctly designed product, but of course not everybody can do it and not everybody wants to do it so we live in a world now where two things are true. One is that I think we can stipulate that scientifically medically speaking babies are better off drinking milk, designed for babies, which is from human females, But we can also say that. Secondly, we live in a world where we get clean water, we can properly prepare our formulas the formulas are well designed, and not everybody can or wants to breastfeed their baby so both things are true, and we’ve gone in the direction of making it easier to promote breastfeeding in hospitals, maybe a little too pushy on that as you can explain, and we’ve also reformulated to use a bad pun there are our WIC program and other things to support breastfeeding and we’ve put in, in places that employ large numbers of people we put in stations where women can pump their milk store their milk etc so we’ve made it certainly made it easier to be a breast feeding person, but that that has, I think shaded over for some people to be almost a command, and making people very resentful and unhappy with that, you know, I guess we live in a world where everything is polarized nowadays even taking care of infants.
P: yeah, That seems to be the case and a lot of women describe how they expected breastfeeding to be easy, because it is natural, but I don’t know that those two things go hand in hand, and once it is difficult, then there, then they think it’s something that’s wrong with them and all of a sudden it’s a comment about their ability to be a mother…after you give birth, that is the first thing that you’re doing. So, it’s challenging to have the first thing be something that’s not necessarily super easy. Do you have any sense of how common it is to have trouble breastfeeding.
Dr. G: I really don’t know because I think I’m sure there are studies on that I’m sure it’s difficult in the beginning I believe it’s harder for women who’ve had cesarean sections and have had some anaesthesia in their system, I believe it gets easier with second and third and fourth. So on children. But certainly, initiating breastfeeding it’s often better done if you have a mom or a support person who can get you through it it’s, it can be, you know it can be painful. Problems do develop you need support breastfeeding may be natural, your body may be designed to do it but that doesn’t mean you necessarily know how to do it. Some infants have trouble sucking latching on, you know it’s not, it’s not a perfect and easy thing to do, but I think what makes it so hard for people is the, the weight of expectations and judgment, you know, we live in a culture, I think it’s fair to say that the easiest people in the world to pass judgment on are either people like us who we feel we can do better than other moms in the, in the hospital with us or in the birthing center with us, and then people who are different from us and who behave differently from us and we can say oh they’re different and there’s something wrong with them. And oftentimes that judgment is really about women and about mothers and about child rearing. And that I think makes it all the harder, all that judgment that goes on and, and political divisiveness,
P: Yeah, and what I find, talking to people is that it’s not always on the surface, sometimes it is a it is a buried expectation that you don’t realize until you don’t meet it. Many women have come on the show and talked about how breastfeeding is the super painful and difficult thing and the latch didn’t quite work and the baby wasn’t getting enough milk, but it was still hard to give up, Because her expectation was, you know, good moms breastfeed.
Dr. G: Right. Just like when other women wanting to breastfeed and the 50s and the expectation was you’re a bad mom. Because you’re not buying the most up to date formulas and the fancy bottles that go with it. So, if we took the judgment, out of it. I think it would be easier for people to breastfeed it would be easier for people who didn’t want to breastfeed to bottle feed, it will be easier for people who want to partially breastfeed and partially bottle feed to be comfortable with that, but there’s the idea that we, that we have to pass judgment on this and make people uncomfortable about their choices. It’s always been that way, but it doesn’t have to be that way.
P: Well that’s interesting to hear that that is always the case so even when the pendulum swung the other way and people were being discouraged from breastfeeding, you were made to feel bad if you breastfed.
Dr. G: You were made to feel bad and there are many many stories of women who said I want to breastfeed my babies and the nurses would would only would start the babies on bottles without telling you so it was hard for them to latch on and then they would only bring you the babies every four hours even if babies were hungry and they’d cry themselves to sleep, and then they start wiping down your breasts with alcohol and other antiseptics. Oh they made it, you know, because it seemed like you were doing it seemed dirty if I can put it that way to put your baby on a breast and when you could have a scientific bottle that was you know had been sterilized to the right degree and gotten out all the germs so. As difficult as women today have it who choose not to breastfeed and get judged by nurses or by their friends or their doctors, it was a different way, maybe 50 6070 years ago.
P: That’s sort of shocking and I guess I don’t know whether I would call that marketing exceedingly creative because suggests that the scientific way is to do something that’s made in a lab, as opposed to what your body has produced, that’s sort of amazing.
Dr. G: Well, that you know we were very into measurement. So, how much is your baby weigh how much did How big was your baby how fast is it growing so if you can measure how many ounces your baby drank and write that down, which a lot of moms had charts to do that that just seemed like a very scientific thing to do.
P: Yeah, that that’s fair and I’m sympathetic to that and actually I don’t know if you’ve heard of a company called hatch. No, they have a very special changing pad with really sensitive monitors in it so that you can weigh your Baby and breastfeed and weigh them again, and it’s there’s an app on your phone and you can check it out and and it is for that purpose explicitly because so many women who breastfeed say I have no idea how much they got or if they drink anything or you know what’s going on so it’s funny that science has come to meet that demand another way.
Dr. G: Right, well, you know, our medical world is always in part about marketing, They’re very much intertwined, because you can sell people on science, whether it’s the science of hygiene and cleanliness or it’s the science of measuring your baby for a time women, middle class, upper class women were encouraged to buy scales and weigh their baby every day and write it down you know because measuring is science. So, and then the marketers got very into this our department stores have infants departments, they used to have nurses who works there who would tell you the right things to buy and give you medical advice so you know that that the world of science which has brought us many, many wonderful advances is also about the world of marketing which has brought us many, many products and they do get tied up together and help to sell each other.
P: That’s shocking to hear that there were nurses at department stores, impossible to imagine, and I guess a great way to sell stuff.
So let’s talk for a little bit about these baby friendly designated hospitals, the impetus for this came from the WHO World Health Organization,
Dr. G: right, it’s a worldwide effort
P: in the 90s, and then I’m sure it looks different here than it does in other countries, in 2007, it says that less than 3% of United States births occurred in 60 Baby Friendly designated facilities, but by 2019 28% of births are in 600 Baby Friendly facilities and Baby Friendly is a designation you get if you follow this 10 step approach to encouraging breastfeeding, but it sounds like it’s almost aggressively to the exclusion of anything else.
Dr. G: Well, I would, I would say two things about that one is it’s fascinating to see how much it’s grown and I’m sure that has a lot to do with the marketing of the hospitals, right, if you have health insurance and you pick that hospital, because it’s a Baby Friendly Hospital and you like it, you’ll continue to bring your insurance cards when and go back to that hospital so that’s that’s good for the hospital. It is probably good for hospitals to move away from promoting bottle feeding to supporting breastfeeding, that how aggressively they do that, I would assume is to some degree determined by the, the nurses on the obstetrics floors, and how seriously they promote breastfeeding over bottle feeding, and if you think about it from the nurses perspective, if you have rooming in and a mom can pick up her baby and breastfeed on demand, then that’s a lot less work for the nurse taking the baby back to the baby part of the hospital and feeding the baby, him or herself. So there are all sorts of incentives built in for the hospitals for the staffing of the hospitals for the baby, certainly, you know if you’re going to support breastfeeding, which is a good thing overall, But how you handle that I’m sure it’s very idiosyncratic, and it may depend on whether you have the night nurses or the day nurses and are they new hires are they the older hires how they feel about it.
P: Yeah, it’s interesting to see sort of what’s developing and just so interesting to me that there’s this cultural shift that happens you know almost on its own cycle, where it goes back and forth. So, can you imagine at some point in the future where breastfeeding will be out of fashion.
Dr. G: It may well change because now, you know, now we’re beginning to see what uh what environmental pollutants are in women’s bodies and in breast milk so maybe they’ll have formulas that don’t have those pollutants and we’ll move away from it. When we talk about breastfeeding we’re talking about the health of a woman and a baby and a family and workplace issues and social issues and environmental issues, and it all gets encapsulated in this tiny realm of Will you or won’t you breastfeed, but there really so many bigger surrounding issues is breastfeeding supported by do we have six months of paid family leave in this country. No we do not, you know, that might be a better support for breastfeeding or partial breastfeeding, then what happens in a Baby Friendly Hospital or a baby unfriendly hospital if we want to label the other ones
P: that oh that sounds much more expensive, potentially, potentially much more helpful but much more expensive.
Dr. G: Right.
P: The other thing that seems tricky about maternal health and newborn health is that I feel like it has not received as much medical attention. You know all the issues that come with pregnancy, many of which remain a black box preeclampsia we’ve known about for hundreds of years, we’ll still know kind of how that works. So it’s, it’s tricky to see what will be the lever that will encourage a shift in one way or the other to change.
Dr. G: Right, I mean we still have many many women who’s who are uninsured.
P: Yeah,
Dr. G: even with our expanded Medicaid and programs there. We have undocumented women, who I believe if they call up a center, they can get prenatal care, and they’re supposed to not wait more than six weeks but in fact I think there is not enough services for them, their children are going to be Americans. They’re here. And yet we’re denying them a kind of Healthy Start There are so many complicated issues around pregnancy and birth that are much more expensive as you say, not necessarily harder to solve because the rest of the world seems to solve them. But if we don’t have those conversations then we bring it back to this individual well that mom didn’t breastfeed or that mom should breastfeed or why is she fully breastfeeding and leaving the baby formula when she goes to work We’re talking about individual decisions, but we’re not talking about the structure in which they’re made.
P: Well, so you bring up a good point other than vastly more generous medical supports that other countries give their women. Is there any do you have any sense a theory about, you know why culturally in America, you know postpartum care is one visit at six weeks, and I as far as I can tell, you know, after you’ve been through, almost 10 months of pregnancy and an exceedingly challenging delivery, you could, you could use care before then, but we, but we don’t do it that way. Do you have a sense of like, what else is driving those differences between US and other countries.
Dr. G: Well, you know we have a for profit healthcare system. So, I believe that if you’re an insurance company said, Is there any data to say you need continuing care that, you know, first year after giving birth. Well, no their baby will go to the pediatrician and you as the mom, you’ve had your one postpartum visit you’re done. Why do we have to pay for another visit for you. So we have that problem right there. Yeah. And, and I think that there’s just a sense of, you know you’re you’ve become. you go from being the vessel for the baby you deliver the baby then the baby is going to get that the S chips care the Medicaid care the private insurance care the clinic care, but you as the mom you’re kind of done to your next pregnancy I guess, Or your annual gynecological checkup. We don’t and so we have a very high maternal mortality rate in this country as a result of that, but we have a strong tradition, really, I would say from the post world war two period of saying, everything is a private matter, you know, It’s for you to go to your doctor. It’s for you to decide if you want to be pregnant or not pregnant, we don’t, we don’t have a system that says, we have some responsibility to our citizens and non citizens who are here and who should have good healthcare.
P: Dr golden thanks so much for coming on and talking to us today. I feel like I’ve learned a ton.
Dr. G: Okay, well it’s been wonderful to talk to you.
P: Thank you again to Dr. Judith Leavitt and Dr. Janet Golden for giving us a sense of the factors over time that have come together to contribute to the pregnancy and birth culture we have today. Thank you for listening, and if you liked this episode, please consider sharing the podcast with your friends. The next episode is a return to a birth story…and this story is really, in some sense, a loveletter to becoming a parent–it showcases the many challenges that sometimes have to be overcome to get there…
Episode 24: Birth Before and After becoming a Doula: Keisha
Episode 17 : On Both Sides of the Line, An OBs Story: Dr. Shieva Ghofrany
Episode 17 SN: On Both Sides of the Line, An OBs Story: Dr. Shieva Ghofrany
There are three reasons to tune into today’s episode: first, it is a chance to see pregnancy through the eyes of an OB who is both the emotional individual experiencing what we all experience when we try to grow our families, and someone endowed with much more experience and information than most of us. Second reason: when you hear the story of a fully trained OB, who has seen how pregnancies and births can progress in a multitude of ways, but still cannot control her own experience it’s a powerful reminder that (spoiler alert) no one can control this experience. And finally, three, Dr. Ghofrany has a significant following on instagram for a reason: she’s a great combination of articulate, charismatic and warm, and, it turns out, a particularly resilient person who shares her challenging, beautiful and inspiring birth story
Endometriosis
https://www.mayoclinic.org/diseases-conditions/endometriosis/symptoms-causes/syc-20354656
https://www.womenshealth.gov/a-z-topics/endometriosis
Audio Transcript:
Paulette: Hi, welcome to war stories from the womb. I’m your host Paulette kamenecka I’m an economist, a writer and a parent to two children who rigorously tested my ability to reproduce. Today I’m talking to an OB and a friend. Dr. Ghofrany’s best friend in high school was my college roommate, which is lucky for me because she is an amazing person and a force for good in gynecology. If that wasn’t reason enough, more reasons to tune into today’s episode. First, it’s a chance to see pregnancy through the eyes of an OB, who is both the emotional individual experiencing what we all experienced when we try to grow our families, and someone who dealt with much more information than most of us. Secondly, when you hear the story of a fully trained OB, who has seen how pregnancies and births can progress in a multitude of ways, but still cannot control her own experience. It’s a powerful reminder that, spoiler alert, no one can control this experience, and three, Dr Ghofrany has a significant following on Instagram for a reason. She’s a great combination of articulate charismatic and warm. And it turns out a particularly resilient person who shares her challenging, beautiful and inspiring birth story.
Let’s get to the interview.
Paulette: Hi, thanks so much for coming on the show, can you introduce yourself and tell us where you live.
Dr.Ghofrany: Yes, thank you for having me. I’m Shieva ghofrany I live in Connecticut, and I’m an OB GYN for 20 years,
P: amazing so that’s the also interesting facet of your story is that in some ways you know too much. Which will be interesting to hear. So before you got pregnant. I’m wondering what your ideas were about pregnancy, and how far you’re training you were or your experience.
Dr. G: Do you know how many times I’ve talked about this, no one’s actually ever asked me that question, kudos already i What were my thoughts about pregnancy well I had had endometriosis. That was diagnosed when I was 28, so I’d had a long history of really bad painful periods that literally led me to at age 27,28 I remember saying, in medical school. I’m never going to have a baby, because it sounds, it’s just so painful, I would like a hysterectomy because I was in so much pain from my endometriosis, so that was my like what were my thoughts about having a baby. That was my thought.
P: So what’s endometriosis. It’s a condition where the tissue that normally lines the inside of your uterus, the endometrium grows outside your uterus. Endometrial-like tissue outside the uterus, acts like it does inside the uterus. It thickens breaks down and bleeds with each menstrual cycle, but this tissue has no way to exit your body surrounding tissue can become irritated, eventually developing scar tissue and adhesions. The main symptom is painful periods, it may affect more than 11% of American women between the ages of 15 and 44. It’s especially found by women in their 30s and 40s, and may make it harder to get pregnant.
Dr. G: I always assumed I’d have children because I come from a more kind of traditional household, but my pain was so bad that if you asked me in the childbearing years when I was of age, I didn’t want to have babies because it was too painful. Then I did get married when I was 29, and started getting pregnant, and miscarrying when I was 32, and had my first child at 34, and I was a resident at the time.
P: Okay, so let’s go back over here. So, did you get pregnant easily.
Dr. G: So I was 32 went off the pill, I was a resident, didn’t want to necessarily get pregnant, because I thought let me just go off the pill, let my cycle get back to normal. We’ll try in a year got pregnant quickly. Oh, right, which was great, in retrospect because then I didn’t have to worry about it, except that that ended up being a miscarriage. It was what’s called a blighted ovum, which is where it’s a gestational sack meaning the sack was inside my uterus, but it was empty, so the egg and the sperm had gotten together created the pregnancy but that pregnancy never would have gone on to have a heartbeat or anything so it, so it didn’t.
P: It didn’t develop
Dr. G: it was an empty sack and it passed on its own, except that I had to have some of the SAC removed, like in a little office procedure because not everything came out on its own so I was a resident and bleeding and cramping and running out from like the hospital to the doctor’s office and back to the hospital. So that was my first experience with like women tough it out. We go through things, and we kind of compartmentalize, right,
P: that sounds really hard. Good Lord, I’m sorry to hear that you did you because you were a resident like you knew exactly what was going on and scientifically or
Dr.G: I knew exactly what was going on, scientifically, which made it easier and the good news was I could look at it kind of pragmatically as Oh well, at least I can get pregnant, and I’m still young enough at 32, and I didn’t start to kind of delve into the like, I was very overweight, I was very overworked, did that have an effect, you know, we were still in the mindset, this was back in 2002 of, well, people who are stressed and overweight get pregnant all the time so it can’t be any of that effect, and I would still say that’s somewhat true but it’s, you know, I think we know more nuances now. But yeah so that was the first miscarriage. And then pretty quickly. A couple months later I got pregnant, a second time and got a bit farther, and almost saw a heartbeat, that was kind of lagging in the measurements and had started bleeding pretty quickly after the positive pregnancy test, and that one miscarried. That one unfortunately miscarried didn’t go away altogether on its own meaning I didn’t pass all the tissue so I needed a D&C the dilation and curretage the procedure to remove everything. And because my uterus is tilted very kind of aggressively like at an acute angle. I had to go back a second time for a second DNC
P: Good Lord and are you as, kind of, are you as kind of pragmatic about the second miscarriage or this is upsetting
Dr. G: this time I’m upset because sort of upset because I didn’t even know if I wanted to be pregnant, you know, with my first pregnancy that quickly. But then, as you probably know like once you get pregnant once like your appetite you like your you get your appetite so you want to be pregnant again. So now I’m more upset, but I’m still telling myself, what we what we used to say clinically, you’re, we’re not worried until you’ve had three miscarriages in a row. Now we kind of actually have altered it to about two in a row if you haven’t had a child at the time was three. So I kept trying to be pragmatic and not let myself be too upset. And the truth is, you know, I’m a workhorse so I kept working. I did start to get really frustrated with my husband whose a wonderful soul, but just didn’t know how to deal with this, you know, the emotional toll of having a husband who is great, but has zero idea how to cope with pregnancy with miscarriage, and with a wife who happens to work a lot in the field so she’s somewhat obnoxious about like pushing you away as it is.
P: Yeah,
Dr. G: the extra layer of challenge there, you know.
P: Yeah, that sounds hard.
Dr. G: Yeah. So did you were you trying again or where are we and the luck was that despite me having endometriosis, that was bad enough that I had had surgery again back when I was 28 I got pregnant quickly, each time I’d get pregnant, so I got pregnant, and that one, I spotted and bled, but turned out to be a good pregnancy, meaning that is, who is now my almost 17 year old son.
P: Oh my god.
Dr. G: That said, that pregnancy was really fraught with challenges by that point I had gotten up to 250 pounds and I’m only five foot three so that’s not healthy anyway you cut it, I was mildly hypertensive so my blood pressure was always a little bit elevated, and from the beginning, the tests that we had done for him were during the pregnancy showed that his placenta probably wasn’t that healthy, meaning at the time the tests we did for Down syndrome. When they were abnormal, but didn’t show Down syndrome, really meant that there was probably something placental going on and in my case, what happened was throughout the pregnancy, his growth started to lag, the fluid around him was really low. And so we ended up having to induce me for growth restriction. And that was like a very challenging labor. In fact, your friend Sarah was at that delivery. It was a 30 hour labor with three hours of pushing and within eight hours after the delivery, he ended up having some seizures and went to the NICU where we found out he had had an intra uterine stroke in the previous week, At some point the MRI could time when the stroke occurred in a general scheme
P: let’s go slower here one second here, where are you in your pregnancy when you get induced
Dr. G: 39 weeks.
P: Okay so late
Dr. G: Yeah, working all the time, watch the baby, he’s starting to lag in his growth. Probably I should have agreed to be induced at 37 ish weeks but I was like, wait I’m working, I’m working. Finally,
P: do they give you a scale in terms of growth restriction like he’s, you know,
Dr. G: right, like he was when we worry about growth restriction we worry about two things really we worry about a deceleration and growth like where are the babies falling off their growth curve we call it, or once they get below 10th percentile, and he was falling off his growth curve sticking around 10th ish percentile with the fluid, being not as much as we’d like. And that’s a secondary part that we look at, Because if the fluid is less that really shows the placenta is not giving the baby all the nutrients, and then finally by 39 weeks he was like just below the 10th percentile. His head circumference was not growing, that’s something else we look at and his fluid was low, so I got induced.
P: And that sounds, the induction nobody talks about induction with like loving terms right.
Dr. G: Well, I mean, you know I have a catch 20 I will have a love hate for deductions on one hand deductions nowadays we realize that if you do, most women 39 weeks. This new trial that’s coming out called the ARRIVE trial really shows that you can have lower rates of really dramatically bad things that we don’t like like God forbid fetal death and higher rates of vaginal deliveries, but it does mean you’re there at the hospital for a longer period of time potentially if your body doesn’t want to go into labor, mine did not want to go into labor, nor was I in great shape from a stamina perspective like pushing was really challenging, but you know listen when he came out, I kind of naively was like, Finally he’s out. That’s it. Forgetting that things can happen afterwards. And the truth is, he is a very healthy, almost 17 year old now, with some learning disabilities and other, you know, side effects later but overall I’m, I feel very fortunate that it was not as bad as it could have been.
P: Yeah, no kidding. Wow, so was the labor what you thought it would be because you probably had seen Labor’s, are you.
Dr. G: Yeah, at that point. So at this point by the way I had finished residency I had found out I was pregnant with this pregnancy, right, right when I basically started my practice, so I joined my office at the time this is now 2003 I’m a new attending, I’m working crazy hours we delivered a lot of babies, it was three of us I was on call every third night. And so I ended up, then getting induced like close to the end of my first year of being in private practice and I’ve been a doctor for five years I’d seen, You know, 1000s of deliveries that point, and my delivery was kind of like what I expected it was long, it was challenging. I had an epidural early, you know, there was points throughout the entire labor were touch and go. Should we do a C section should we not the heart rate tracing which is what we look at as a reflection of oxygen status during labor was never terrible but never perfect, so it was kind of a challenge the entire time, and then the pushing was also three hours with my mother, my sister, my husband, my best friend who’s your friend in the room, three nurses, two doctors at time for the delivery, and like I said then eight hours later he was a little bit like pale and blue. And it turns out his oxygen level was dropping. And so we sent him to the nursery to get checked out, and they realized he was having seizures. So, that kind of turned into a 10 day, NICU stay, me trying to recover from three hours of pushing which is not pleasant or fun, and actually what’s interesting that I learned a lot about then was just that the whole notion that everyone should deliver vaginally, that’s when I really cemented my ideology that that is just not true. Some women deliver vaginally and it’s an amazing process and some women do not deliver vaginally, Nor should they and my delivery was really not a great delivery and it was no one’s fault. It wasn’t my doctor’s fault I trust him and he did everything that he can and should have done, but it made me realize that this push to really force women or shame women into thinking they should deliver vaginally is very damaging and I actually say this a lot. I think it’s, I think it happens at the hands of other women as well I think it’s very anti feminist, and it’s women who are perpetuating it in my case my catheter in my bladder stayed in for 48 hours after my delivery because I was so swollen from pushing, whereas after a C section it comes out after 12 hours right so again, I’ve really tried to encourage women to understand that when it’s a great delivery it’s great and when it’s a challenging delivery is challenging, regardless of whether it’s vaginal or C section. And the more we can really discuss that both deliveries can be wonderful in different ways, and each can be challenging in different ways. I think will really get parity and equity, with regard to respecting either delivery.
P: Do you think vaginal deliveries become not the right choice when there’s some physiological issue like you said your uterus is tilted in a certain way, like that.
Dr. G: Yeah I mean I think that it depends on so many different factors right the patient the her, her anatomy, her emotions, the baby’s position everything and I don’t think her emotions should be discounted and I think they are, in my case the baby was sunny side up. Have you heard that term where we’re what we call occiput posterior it’s actually very common. If you have friends who are like I pushed for three hours and the baby came out with a cone head and I had back labor. Those were all whether or not the patient knows it their baby was most likely what we call sunny side up, meaning the head is down where it should be. But instead of the face looking towards mom’s spine, the face is turned up, looking towards the front, and that means that the diameter of the head that’s trying to come out of the pelvis is a bigger diameter than if the head was the other way. And so my six pound baby. We three hours to push him out and came out with the craziest conehead. And so my sacrum I had like my, my cocksix was fractured so my sacrum really hurt
P: Oh my God.
Dr. G: I was so swollen from again pushing for three hours that my bladder needed the catheter in for 48 hours, so I think no one could have predicted that and I have other women who were also 250 pounds and small babies and they come out easily, or skinny with big babies who come out easily, so that I think that the really important thing is that every patient, every situation and every baby is so different in the OB world we call it power passenger pelvis. So the power being how big your how good your contractions are the passenger being the baby and the baby’s position and your pelvis, meaning what shape is your pelvis and your uterus and are those going to allow the baby to be in the right position to come out and any of those varying factors can alter how easy or how difficult it is for the baby to come out. And I think unfortunately what we see nowadays is this big push, no pun intended for women to deliver vaginally, and because of women’s backlash at wanting to deliver vaginally to take back. You know what they deem is something natural from the medical community, the medical community’s response has been to say okay well we’ll look at things and you’re right we can we can allow you to push even longer than we thought and we will get more vaginal deliveries out of this and that will be satisfactory for moms because moms want vaginal deliveries, they get more epigenetic changes and all these things that are evidence based, but in reality I think what we’re ignoring is the physical physiologic and psychological toll on those very difficult deliveries that either don’t end up bad you know and have harder C sections or do end up vaginal and have really challenging recoveries, or, you know, babies that end up not being as healthy as they could be. So I think there’s a lot of aspects with that are really complicated and it’s become oversimplified into vaginal delivery good section is like, you know, we just, you know, step cousin, kind of thing
P: can you use those three metrics that you talked about the power the psychology and I forgot what the third one was
Dr. G: power,passenger pelvis,
P: can you use those three to predict, like who will have a good birth and who won’t to to say to them ahead of time, it’s likely that you’ll do X or Y, right…
Dr. G: Yes to a degree right like if you’ve been doing this long enough, just like any field, you’ve seen enough to know like when I’ve seen, you know this mom with this psyche, with this pelvis, with this passenger in this position, blah blah blah. Here’s what I think. Now, even the best of doctors who’ve done this for a long time we’ll be wrong sometimes. Not a lot. In other words, when I if I think before at the beginning of every delivery or even a week before the delivery, what do I think is going to happen. I’m not always right for sure I’ve been wrong sometimes. But I’m often right. And the hard part is that sometimes, if you know the answer is the doctor is not an easy thing to inform the patient of right like let’s say I knew the baby is sunny side up at 39 weeks when I’m going to induce you. But if I say to you, Paulette you know baby sunny side up so I think this is what’s going to happen anyway. It sounds good, like you as a rational, reasonable person sound like you might be like well I wish you would have told me because then I would have done things differently, But it’s not that easy because you have had not only nine months of your pregnancy 10 months really of your pregnancy of reading things and researching, but then also being told that the medical community just wants to induce babies or just wants to do C sections because they get paid more, which by the way is not true, or that they just want to be home by five o’clock, which is a joke is never true like no OB is home by five o’clock, or that like, of course you have to deliver vaginally because it’s natural and because it is better for the epigenetic changes so you can’t hear that information and really digest it that
way, some women can but many women don’t want to hear it.
P: Yeah, yeah
Dr. G: and it sounds negative to them and they’d rather just kind of go into it in a more positive way which I actually love manifesting and I love positivity, but I think it has to be metered with some realism in order to actually achieve better outcomes and I, I’ve said, frequently, patients who come into it realistically but optimistically saying, I’m gonna try this gradually. I hope that’s what it is, I fully realized that I might need a C section and that’s okay too. They do great meaning anecdotally, they have a higher rate of vaginal deliveries, I think, and those who end up needing a C section, have had a very good experience and felt very validated and felt very heard by their doctor. And so either way it’s a win win, whereas those go into a dogmatically saying it has to be this way, has to be vaginal, with no epidural or whatever it is that they think it has to be, then no matter what happens, they’re really, they’re unhappy, and sometimes maybe even have more complications because they are trying to control a not controllable situation that we can respond well to, if we have a partner in it who kind of has faith and trust in what we’re doing.
P: Yeah, this is an important narrative to publicize because this is contra to the cultural pressure to do otherwise right and this is, I’ve already talked to so many women who said I had to be natural I you know I had pictures in my head and have to look exactly this way, and that’s, I think our diet of what birth looks like is so unrealistic and so thin and so like it’s in the movies or whatever
Dr. G: and honestly it’s, it’s not just in the fiction movies, it’s in the very present population of documentaries and things that are, and I listen I did an integrative health and healing, fellowship, right, like a Masters of sorts, so I love things that are Eastern an alternative, but the unfortunately the Eastern alternative or even just like Instagram world of things should be natural, really glorify the ability of nature to always do the right thing. The irony being and I say this a lot when people say things like the women have been delivering bad generally in nature for millennia, women have been dying,
P: I was just gonna say what’s the death rate right now
Dr. G: currently die in other countries. Right, yeah, or have other side effects so which I say to patients like if you are willing to accept those consequences that I’m, God bless you. That’s okay. I don’t mind. But to go against nature by women being older than we used to be heavier than we used to be, reproductive techniques like IVF been in or, you know, women who are having, having babies through IVF with a donor sperm donor egg with their female partner, all things that I support, as I always joke like we have not set the table for nature, and then we expect nature to show up to our party ready and willing to like do the right thing, and it’s obscene and absurd and it leads to a lot of problems and the problems end up being for those very women that want this to work the way they want it to work. Like the men, it doesn’t affect the patriarchy.
P: Yeah, yeah, yeah. So wait, let’s get back to your story although this is totally fascinating, your sons of the NICU for ten days, sounds stressful and as a doctor does it feel. I mean, not that you have another frame of reference, but are you panicked like the rest of us or do you think like,
Dr. G: Oh no, I think I was like, in a weirdly surreal state of denial, and I’m not joking when I say that so I, in fact, so he has the seizures eight hours after delivery, he ends up being in the NICU and for about 24 to 30 hours, we couldn’t touch him because he was on a continuous EEG machine to find out what was happening with his brainwaves. The MRI shows ischemia ischemia is the medical term for loss of oxygen, so ischemia to two parts of his brain. Now, in our vernacular ischemia or loss of oxygen kind of mean stroke, but in my mind I don’t. I do not equate that word, I just keep saying ischemia Yeah, because in my mind it’s so medical but like, oh, he lost the oxygen and he had seizures and then he’s going to be better the seizures are going to be done and that’s it, until three years later, when a patient of mine who I delivered her son, he had an intrauterine in stroke, and she and I were talking about it, she’s in the nick you at another hospital to transfer the baby, and she says something and I all of a sudden said, Oh my god, I never even thought that my son had a stroke, and I remember her saying Shieva, of course you know that your son had a stroke, I’m like you I kept using the word ischemia, but that’s like in this situation, he had a stroke. So I think that power of denial was actually very, very beneficial for me, and very protective, because I was really able to be in the mode of like, okay I’m trying to nurse, I’m not great at nursing my milk is not coming in, I’m going to nurture who do what I can. I had really excellent NICU doctors who kept reminding me that babies do very well because of the neural plasticity and our ability of their brain to really respond to stimulation. And, you know, I’d say the challenges during that time, or probably more managing my husband and I and how much again he did not know how to deal with this well, and he’s a wonderful person, but really did not show his best side at that point and it was that was emotionally really hard. I think that was the hardest thing for me at the time. And again,
P: he was upset or he was distant?
Dr. G: he was distant, he was like at the time unfortunate he was like interviewing for a job so I was in the nick you like I always had someone with me like between my friends and my family and my parents are both positions and I was never alone but I didn’t feel like he was a partner in the whole thing. And I think again the narrative is very much like the partners, The man man is like the most supportive person and I’m so glad and blessed to have a husband who does these things and again, my husband is an amazing person, but this was not where he shined and so that felt very lonely to me, and certainly nothing that people talked about because everyone like acts like their husband is amazing and like wiping their butt, after the delivery.
P: Yeah, yeah,
Dr. G: and I know that that’s not true, but that’s how I felt at the time. Now I know that,
P: but also that may have been his way of dealing with it right? It was too painful…
Dr. G: maybe… it was like taking our baby. Yeah, but, but, even if that is the case, it’s still
not a, a, that is not a wonderful way to deal with something when the other person is then left taking over.
P: Oh, it doesn’t help you at all. I totally agree. I’m just saying like, you never know what’s gonna look like on someone else and we also had distress in my pregnancies and stuff and it was, you know, I’ve never seen my partner in that context before so I didn’t know what to expect and hey, like right now. Yeah. So you brought him home and how is that?
Dr. G: so I brought him home. I will never forget the drive home it was 10 days later, all of a sudden you’re like, I don’t want to be in the NICU and you find out you’re in the nick you and then you get used to all the alarms and bells and whistles and the nurses and then 10 days later, you’re like, you’re not going to come home with me I got to go home and our drive home I hope we get our drive home being like, I literally thought we were in a game of Frogger, I remember we were like in the car and I felt like, so vulnerable at any moment, a car was gonna hit us or something was gonna happen we got home, you know, our 12 minute drive home and I remember being like, Thank God we got home like it just felt like we had battled to get home when in reality it was just like a drive home from the hospital, and he was a challenging baby he was not a delightful easy baby until eight months he did not sleep well. He did not nurse well so he got formula right away. I really felt like I couldn’t sit for about six weeks because of my fractured tailbone. And I was swollen…I had so much edema meaning swelling in my hands and feet imperative and everywhere because I was so overweight and so hypertensive and retaining fluid, and then went back to work at I think seven weeks, and frankly, I can’t say like I was miserable, like I look back, when you’re a physician and you’re training and you’re a resident, like working 120 hours a week you’re kind of like prepared to do all this stuff. So I did it all, and I didn’t have postpartum depression, but I would never go back to the first year of any of my three children’s lives like and I say that, openly and happily to people, not because I want to act like it’s the worst for everyone, but I want women who don’t love that first year of their baby’s lives to not feel bad about it, I am not one of those people who’s like I go back to infancy and want to snuggle I’ve zero desire to go back to their infant lives and when I hear babies cry I actually still get a little chill down my spine. And I’m, I’m not embarrassed to say that I’d rather us talk about it some people love the infants, my mother still loves and adores infants. I do not, you know,
P: infants are very very challenging. That is for sure. I remember when we left the hospital and I was like how are they just letting us leave,
Dr. G: like, with no infection or manual or anything. Right, well good I’m glad that worked out. What about the next pregnancy was that, no, no, no, because then I had so he was a year. I had him in April 2004 By July of 2005 I was pregnant again. Great, I got pregnant again. Bleeding like stink. Having to go see my, my husband’s family abroad, in the middle of a miscarriage.
P: Oh my god,
Dr. G: and I thought okay well okay I’ve already had, you know, now I have a baby, now the miscarriage isn’t as upsetting because I know I already have a baby. And if I never have another baby, at least I have one and I know my body can always do it, I’ll probably have another baby. And so I ended up having three more miscarriages after that so four miscarriages after the first baby, some of which needed a D&C, some of which didn’t and the interesting part is at the time if you asked me I would remember exactly like how many leads how many days in D&C, the D&C you know for the miscarriage only thing I know I’m like six miscarriages for DNC is, I cannot remember which ones have D&C is or not and I say that again happily because in the moment that any of us are going through anything. It feels so dire and like just like the details are ingrained in your brain, and I really want all of us to remind ourselves whenever we get through something and actually forget some of the details how good that is that like, it’ll, it’ll always feel better. Like, not necessarily soon after and it doesn’t mean you forget I don’t forget those six miscarriages I actually very much feel attached to those these materials in what have turned out for me to be good ways, because I’ve learned a lot from them, but I’m so glad that it’s reminded me time and time again that all the details that you thought you’d never forget because also, why’d you do. So then I got pregnant with my now second son and that pregnancy, I got antsy, because I wanted to be pregnant I was tired of miscarrying I took the medication to help you ovulate more so just because of timing, I had an agenda, I had to be pregnant. And I got pregnant, bled a lot at seven weeks thinking I was having another miscarriage and as it turns out that was a twin pregnancy and so one of the twins went away before I even knew it, so when I went in to get my ultrasound. I said okay I’m having another miscarriage just like, let’s get through this and I have like one more in me before I’m like done trying, and the doctor said oh actually you know what, there’s a great heartbeat, but the other one. It looks like there was another one that is no longer going to continue, which was not sad to me because I was just happy to have one heartbeat that baby boy is now almost 13 He had a clubfoot, which is where the foot is literally turned up and inward completely deformed, that we knew of, during the pregnancy, and it had to be repaired when he was born so he had casts every week for six weeks, and then these special boots for four years, but compared to a child with a stroke like you know a clubfoot was nothing.
P:Yeah, yeah, yeah
Dr. G: it was cumbersome and annoying. We had to go to the city like once a week every week for six weeks after his delivery, but like, it was fixable, so it’s fine. And then I was done, then I thought, I’m done, and I did not want to go through vaginal delivery again and I planned a C section, and my partner’s at the time, who had not delivered my first baby though I loved the doctor who delivered my first baby, but my medical partners who were still my partners, said, Do you want to go through that again. I laughed, I did what do I want to torture myself my partners are men, by the way and I submit a hell no, sign me up for a C section we’ll all show up in the right time and place and get this done. And I was so happy to do that it was so comforting for me to know that I knew the time and the date and the place and how he was going to come out, which is not to say that a C section is easy, are always the right choice, as I say to everyone. There’s no one right answer.
P:Yeah,
Dr. G: For me the right answer was the C section, it might not be for other people, maybe my second delivery would have been easier, but I did not want to take that chance for my recovery and what my first one had gone through so the C section I learned a lot from that too I learned a lot of little things that I say to patients during C section that I’ve kind of altered since then, I learned what to tell patients to like eat and not to eat before the C section. So I looked at it as, you know, street it was like me learning on the street, how to do things, and I really thought I was done after that I was never going to have another baby. Yes, I was that I didn’t have a girl but it didn’t matter I was blessed to have two boys I’m done this body is done. And then I did weight loss surgery when I was 40. So my first son ended up being 34 My second son was at 3840 I did weight loss surgery, I was done, never gonna have another baby, lo and behold for four months after that surgery I got knocked up by surprise. My surgeon said, I thought I’ve heard you a really great gynecologist what happened I said I know God I relied on my husband. And that was my surprise baby girl who’s now 10 And that was the healthiest pregnancy because I have lost, about 80 pounds. So despite being almost 41 When she was born. It was healthy, and she’s healthy and I had another C section and I had my tubes cut finally at that point, I think, like, each time you go through these things, they, they suck and they’re amazing, right, like I’ve learned great things and terrible things through all of these experiences, and I would not go back and undo any of those miscarriages because now I have my three babies. Right,
P: yeah, yeah,
Dr. G: I think, I what I say to a lot of patients whenever they’re going through miscarriages is that there is a very small segment of the population who will never or can never have a baby but that’s relatively small. So as long as women we are willing to go through either help getting pregnant or help staying pregnant or donor egg or donor sperm or whatever it ends up being. I can pretty much guarantee every woman will have a baby and if we remind ourselves of that almost before we even gotten pregnant, it would be so common because then, Each miscarriage wouldn’t feel so desperate. Yeah, for me, the desperation initially felt like this might be a sign that I’m never gonna have a baby. Right, but I knew I would be maybe I just wasn’t in the mindset of telling myself that and now I’ve learned that that’s really powerful to tell ourselves the fact it’s not snowing yourself it’s telling yourself the truth, you know,
P: yeah, that would be super calming I had trouble getting pregnant, so I know the weight of that, like, this may never work out right which now I have two kids, so we’ll obviously do work out but that that is very common to have that out there.
Dr. G: Yeah, and I think it’s something we should reiterate, and make it a really, like, make it a, a fact for people to remind themselves.
P: Yeah, totally. Do you think the miscarriages are attributable to endometriosis or we don’t know what,
Dr. G: no, I don’t think there was revealed endometriosis because at the time I didn’t you know I endometrioma which was the 17 centimeter growth of endometriosis that I had was removed and I had no other obvious sign of it. I really do think and I don’t say this to be inflammatory to any woman out there who has weight issues I have many many many extremely overweight patients who have very healthy pregnancies. I think in my case, I had a lot of inflammation, and I don’t use that in the kind of Whoo, you know, Eastern like just general sense I had inflammatory markers that were measured on blood tests that dramatically dropped after I lost weight, and I really do think that that was a lot of it because my placenta was not healthy. The miscarriages we had reviewed by a pathologist and each of them that she could look at she really saw some vascular insufficiencies meaning the blood vessels that had formed between my uterus and the placenta weren’t that healthy, and in fact this is something I glossed over. I forgot that in my second and third pregnancies. I used Lovenox which is, if you know what that is but it is a form of heparin so heparin is a blood thinner. Yeah, there are like women who have antiphospholipid antibody syndrome women who have had other blood clotting issues will use heparin during pregnancy because it’s such a high likelihood of a clot or other pregnancy issues like miscarriages, or abruption where the placenta comes off early. And so I did not necessarily need to use the Lovenox my blood test markers at the time didn’t necessarily support it from an academic perspective, or an evidence based perspective but enough people that I respect felt like it might work, and my eighth pregnancy, ended up being my second child. So to me, it’s not a coincidence and he was healthier the clubfoot was probably a coincidence, he was healthy, he was seven pounds he was well grown, and then with my daughter, I probably didn’t need it because I’d already lost weight and my inflammatory markers were already dramatically lower, but I felt superstitious at that point. And so I continued to do the Lovenox which is a daily shot of a blood thinner,
P: that makes sense and that inflammatory markers are an issue because your immune system is so keenly involved in the development of the placenta in the early part of your pregnancy
right and how it’s attached to the uterus and
Dr. G: when that embryo implants into the sidewall, that’s the inception of what is creating the placenta and and the placenta is the interface right where you’re getting your nutrients so a faulty placentation is really what can give rise to preeclampsia diabetes growth restriction, God forbid worse things right, nowadays we’re giving so many women baby aspirin low dose aspirin, starting by ideally, you know 12 To 16 weeks because we know that can improve their likelihood of not getting preeclampsia, and that’s because that comes from how the placenta has invaded into the wall of the uterus. So yeah, decreasing those inflammatory markers just created a healthier environment for the third one, you know to do better.
P: That’s awesome. So it knowing what you know now because you’ve been a doctor for many years after those births, is there something that you would have told young Shiva earlier, maybe that she didn’t know
Dr. G: well here so hard right, if I put on like my coaching mindset I would say, well I could have told her, but she only did what she could have done at the time, right, so at the time, I was working like crazy as a resident, I’m still I would say very food addicted I have a lot of like food issues right like I love food, I use it as a comfort it’s, I haven’t cracked that code yet so what I have said she admits unhealthy to be 250 pounds and you probably should try to be less stressed at work, and you should exercise. I guess they would have told me that but I knew that right like I definitely regardless of being a doctor, we all know that, could I have done anything differently. The fact is, it would have had to take a lot of work, mental health and emotional work right I was a very mentally healthy person I’m happy I’m engaged I’m, you know I don’t tend to go become depressed and things like that but, but I also like, I just I’m going to do what I’m going to do and at the time I had to work I was a resident I worked a lot, there was no way around it then I was an attending, I liked working I like involving myself with my patients so yes I would tell myself that but I don’t know that it would have changed anything. I will say that I think that and this is why I always joke about my street cred right because of everything I’ve been through and my weight issues I feel like I can talk more openly to patients, and most of the time, at least I think they don’t think that I’m like shaming them or blaming them or you know acting like you should do better. I really can emote with them because I’ve been through it, but I still find the weight issue to be so hard, not because I’m reticent to talk about it openly, but I think that many women understand and know what we need to do to be healthier as far as weight and exercise, but it’s hard to do it for a million, like purely academic reasons like time and for a million emotional reasons right. So I don’t know how much us telling patients that is going to help right, I think there’s a small group of women who have I say, by the way, do you know if you exercise more, and eat less carbs for example you’re gonna be healthier in your pregnancy. I think there’s a small group that’ll benefit, I think the rest of them already know that, and then in fact maybe hearing it over and over from the medical community just leads them to feel more like shame and avoidance and feel like this is paternalistic group of people telling them that they shouldn’t be doing these things so, so I actually, I talked about it but I don’t talk about it as much as like I should, according to the medical professionals, But I think I try not to talk about it too much because I think it shames women and I don’t think it’s beneficial.
P: Yeah, yeah, I can see that pregnancy I found really stressful, I’m just not even like putting aside my issues before I’ve had any issues. It’s just, it’s so much uncertainty, and it is for me and probably for a lot of women, the first time where you really are confronted with the fact that you have no control over this, like wildly important and powerful process going on inside you. It’s such a weird dissonance between kind of your outside life where you feel like you’re in control of everything and kind of what’s going on. So…
Dr. G: and the world keeps telling you, I mean the world as it stands right now, where they get social media and this entire other world of like pregnancy, telling you like, you should take control, you should empower yourself against the medical professionals, don’t let them try to tell you what to do. And I think that’s equally confusing right because then you have this the medical professionals are clearly trying to harm me, which is just not true. Like, there’s plenty other ways I can harm people, not this, and it means that women like you and I who are very type A and work really hard and are used to being able to control things. We’re going to try and, damn it, we’re going to do it. But the fact is we’re not going to do it because it’s undoable, you cannot control it, and then it just leads to more and more that cognitive dissonance, you feel self doubt, you feel doubt in your practitioners, which just creates more and more angst, and I really feel like it is like the demise of the doctor patient relationship and what leads to, again, an anti feminist potentially really dangerous situation for women. I think it’s what’s driving a lot of people to feel like they should deliver in in their home for example, and some women will do very well but we know the data stands that there is a higher rate of postpartum hemorrhage and other problems when they’re delivering at home. So it’s it’s a challenge, and I do think like you’re to your point, you’re used to controlling things you can’t control things, but yet no one’s actually explaining to you like it’s okay that you can’t control it and here’s why it’s okay that you can’t control it because not controllable but together we can still give you a great outcome and that’s really what you want, and the is you don’t want to control it but you’re being told that you should.
P: Yeah, yeah, yeah, I think that’s true, you’re doing a lot of amazing things in the world of data ecology and medicine. Do you want to tell us a little bit about your path forward or your hope for the future.
Dr. G: Well, I’m trying, I mean I’m as you can tell I’m like really really aggressively and obsessively wanting women to like just understand their psyche, a little bit more and you know I really I want women to trust their intuition, but when I say intuition. I think women supplant thinking their intuition is actually like listening to someone on Instagram and I keep saying like that’s not your intuition. That’s someone else’s intuition telling you. So yeah, my business partner I built this platform called tribe called V and it’s initially, the two products that we’re now, one has launched one is launching are pregnancy products but then the third is going to be a gynecology product and when I say product, a platform where we’re really trying to encourage women to have a lot of pre emptive information. So our my OB and new pregnancy program gives them an ebook, and then two to four lives every month where I talk about pregnancy issues and we do q&a My whole purpose being if I give you pre emptive information and explained to you. Hey, you’re gonna go for your ultrasound next week, here’s what might happen. Don’t be alarmed if you hear, you know, XYZ, like cysts in the baby’s brain, or a spot in the baby’s heart because those things are common and don’t freak out, the more preemptive information I can give you but in a calm way that educate you without freaking out, the better you’ll be because then when you hear those things because they’re common your brain did not devolve to like death and destruction or in the gynecology platform side, I want to really educate people about HPV and herpes and menopause and perimenopause and birth control and, you know, bleeding and endometriosis and all of the things that, because we don’t hear about them, We only then hear again on the internet or from our mother or from our aunt or from our sister or from that woman who almost died and then it becomes horribly anxiety and inflammatory provoking. So if instead we all talk about it more, and you hear it from someone who’s like not only teaches about it but has been through all these things, then hopefully it won’t. I’m not saying that any of the things are not easy like endometriosis still sucks anyway you cut it miscarriages are terrible anyway you cut it but they are less terrible when you understand them, when you understand how common they are when you understand what can be done to help them, then you’re not blindsided by it, and again if you hear about it ahead of time, you’re just not as worried.
P: Yeah, I agree. That’s amazing. So, I’m gonna sign up for the perimenopause thing because that seems like a black hole in my limited experience. So how do we how do we find these things.
Dr. G: Well, so the gynecology platform part will be out enrolling hopefully in the next like I’m going to say three to six months so people can go to tribe called v.com and just get on our mailing list for now. If they’re pregnant or trying to conceive, they can enroll in our pregnancy program, because then they get immediate that the PDF or the ebook, and they get to be part of our lives every month, so we do literally two to four zoom lives where we talk about all this stuff and the community of women is already starting to kind of bond with each other and everything, and then our pregnancy course will be coming out, but again the GYN platform will come out in the next couple months where all this stuff will be discussed, really, like, in detail in detail by like the woman who has you know I’ve been through menopause because I had my ovaries removed four years ago and I deal with it every day with my patients, and most of it is not complicated. When someone explains it to you but no one ever had the time to explain it to you.
P: Yeah, yeah, that’s right.
Dr. G: Yeah, and I think if we can do this, not only for women our age but for our young girls if we can talk to them about their period or about masturbation or about what it’s like you know when we if you decide to have a baby or if you decide not to have a baby or what if you have pain during your period or what if you find out you have HPV, I mean, literally, that the number of things we do not talk to them about is so endless that they all end up being so freaked out when they hear about it, even educated women don’t hear about this.
P: Yeah, that sounds awesome. Thank you so much for sharing your story and for sharing this new platform I’m excited to check it out.
Dr. G: Thank you for being here and thank you for sharing, millions of women’s stories because we need to get it out there.
P: Yeah, Totally. Thanks.
Dr. G: Thanks, Paulette.
P: Thanks so much for listening to this episode, and thanks so much to Dr. Ghofrany for coming on the show. She was best friend from high school was my college roommate, which is how we know each other, which is lucky for me because she is an amazing person and a force for good and gynecology, you can check her out on Instagram at Big Love fierce Juju or tribe called V. For more in depth information about women’s health issues. If you’d like to share your story on the podcast, go to war stories from the womb, calm, and sign up. We’ll be back soon with another story of a person who’s overcome the many challenges that pregnancy and Birth invite.
Episode 10 SN: Just When You Thought You Crossed the Finish Line, Colic: Clarissa
Some women waltz easily into pregnancy and motherhood, at least in the Hollywood version of the story. This was not the version today’s guest experienced. Getting pregnant and being pregnant was not as straightforward as she was led to believe. Recovering from her first trimester loss was challenging, but my guest and her partner persevered and her subsequent pregnancy went swimmingly. The next challenge: birth–which was physically and emotionally daunting. And as she recovered from the birth, she was introduced to the relentless press of colic. Slowly, slowly the colic subsided and now the greatest challenge is planning weekend adventures with an entertaining and talkative toddler.
D&C
https://www.mayoclinic.org/tests-procedures/dilation-and-curettage/about/pac-20384910
Pessary
Pitocin and contractions
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7406087/
Book mentioned by Dr. Chamberlain:
Audio transcript
Paulette: Hi Welcome to War Stories from the womb
I’m your host Paulette Kamenecka
Some women waltz easily into pregnancy and motherhood, at least in the Hollywood version of the story. This was not the way today’s guest experienced that transition. Getting pregnant and being pregnant was not as straightforward as she was led to believe.
Neither was the fourth trimester. She and her husband were forced to surrender to the absolute lack of control that new parents have with a baby, thanks to their reckoning with the dreaded colic.
After our conversation I went back into the interview and included some details about medical issues that came up. I also included a conversation with a fantastic pediatrician.
One other issue to note: the sound quality on this recording has more texture than usual…Clarissa’s cat has a walk on role–literally; you can periodically hear her cat walking on paper on her desk while we’re talking, and in other places the internet squashes Clarissa’s voice a little bit …I apologize for that…and we’ll do our best.
Let’s get to the interview.
P: Hi, welcome to the show. Can you introduce yourself and tell us where you are?
Clarissa: Yes, Thank you for inviting me. My name is Clarissa. I’m from the UK. But I live in Madrid in Spain. And I’ve lived here for almost seven years now.
P: Oh, wow.
C: Yeah, love it was supposed to be 18 months. My husband I love with it. And stayed.
P: So are you fluent in Spanish at this point?
C: No. embarrassingly awful at Spanish. When I first moved here I taught English I never, never practiced. And the more I didn’t practice, the more I get embarrassed about practicing. So it’s a vicious cycle of not practicing being by the Spanish. There’s a lot of Spanglish. So with my sort of Spanish and everyone else’s sort of English, yeah, I can get by again, another reason why I have not got fluent because I can survive with my intermediate level. Yes.
P: Excellent. How many kids you have?
C: just have one, one little boy who’s just turned one.
P: Oh, lovely.
C: Just a couple of months ago.
P: Before you got pregnant with him, you must have had some ideas about what pregnancy would be like, what did you imagine that experience would be like?
C: I thought it would be very easy to become pregnant. And turned out it wasn’t. And yes, what I just thought, you know, in a couple of months I’ll be the pregnant everything will be fine and I’ll have a baby at the end of it. Because that’s what happens in the films and most of my friends thank goodness for them. And, and my mother as well, whose a very powerful and strong influence in my life. So yeah, that’s what I thought it would be.
P: And so when you started trying to do it, Was it easy? or What was your experience?
C: Well, The trying, the trying was fun, but after many, many months of many, many negative tests or you know, starting my cycle and disappointment it did become a little bit of a chore I think, a bit not soul destroying that’s too strong but every every month when there was another negative another No, it was hard to continue hard to keep going and keep motivated. And I think this is quite a common experience. I think it was almost coming up to a year of trying and I went to the doctor here to have a few tests to start the initial process of what is what is the process of not being able to conceive and what’s the next steps and the month after that I fell pregnant actually
P: Oh, wow
C: I think a friend of mine told me it happened to her I think when he started like again it’s not in my hands anymore I’m seeing a specialist things are gonna happen and then maybe your body relaxes and things as naturally as it did for me. I know, not always but it happened for us, which was good.
P: Yeah, that is good. That’s nice to short circuit that trip down the fertility path which is you know, not not a not a fun
C: is not a fun I know that a couple of my friends have been through it and it’s not fun. It’s very testing and trying. So I’m very thankful that even though it took a year I’m thankful that it happened naturally in the end.
P: And what happened with the pregnancy?
C: and so that one very sadly, we lost that pregnancy as a as a as a missed miscarriage. I’d gone to my gynecologist, sort of just to meet her and start the process again, being British in in Spain. I wasn’t 100% Sure of how things worked here. And so I met my gynecologist quite early on in the pregnancy just to sort of find out the process. And she did a quick scan. And everything was fine. I mean, early, early early, but she said it look good. And booked me in for the next sort of proper, more official scan, in a few a few weeks time my husband came along to that was about nine weeks into the pregnancy, that scan. And that’s when she told me that there’s no heartbeat, nothing had grown, it was the same size as it had been previously. And we did to have her manage this carriage or something, I’ll come into how she described it, but had to go home and take some medication to remove the effects of pregnancy she phrased it as.. to it as remove the effects of pregnancy or something like that.
P: I feel like that strange wording is meant to be delicate, although it’s a little bit off putting right it’s weird not to kind of call it what it is.
C: I kind of I Yeah, probably it was supposed to be a way to help me disassociate from it? I don’t know. But I found it really harsh. Actually, I found this process very difficult and quite hard on me. I didn’t know whether again It was difficult, or this particular doctor, but I found her very cold and very strange Matter of fact, and I’m someone who would need a little bit more comfort and being told it was a baby and all these things things. But yes, I found that quite difficult.
P: Yeah, I’m sorry, that sounds hard. I think that absence of suggesting there’s grief involved here is a weird way to handle it. I guess it’s more like medical than emotional or something like that. And that’s it
C:. Yes, it was very medical. Now, with with the benefit of hindsight, the benefit of distance. You know, I can see from her point of view, she would probably early miscarriages, I as we know are very common. Now. She probably sees them weekly, if not daily, it was the end of the day for her. It was the end of her shift. I don’t know what she had been put in it. But it was the some of the reasons that she might have been a bit cold. Still, I do feel like I was a bit of a number and Yes,
P: yeah, so that sounds like also surprising when you and your husband are going to the office for this exciting thing to have to have it sort of develope in that way. Right.
C: Yeah. Yeah. And it was, you know, it was his his first time any experience of any of any kind of that kind of office. And yeah, as I will know, his face will always stay in my memory. The memory of that is this kind of complete shock of what’s going on what’s happening as well, but he was amazingly supportive to me and his focus was definitely on right. Let’s keep clarissa happy, make sure she’s safe. Make sure she’s okay. He was wonderful. And I have to say in the end, again, I went home and took the medication that she gave me that day. Unfortunately, it didn’t work. Two weeks later, I went back to get another scan. And still she still does the same words of materails of pregnancy or remains of pregnancy or something that essence that is still there, so I had to have a DNC operation.
P: Clarissa mentioned a DNC which stands for dilation and coverage. It’s a surgical procedure. Once the cervix is dilated, so the uterine lining can be scraped with a spoon shaped instrument called the caret to remove abnormal tissues. It’s used to diagnose and treat certain uterine conditions, or to clear the uterine lining after a miscarriage.
C: And I have to say, Actually, she did that. And she did it. Her after care with that was wonderful. She quite nervous I had to go into the hospital, my own, my husband had to go to work. We just come to me up that after the operation, she came in for the aftercare talk and it was very caring, and about the grief that I will experience and to allow myself to feel this grief. And don’t let anyone tell me that just because it’s an early loss. It’s not a loss. And so she redeemed herself a lot after that aftercare, actually. I ended up with quite a positive feeling.
P: Good, good
C: It Took a strange way to get there.
P: Yeah, yeah….Well, I’m sorry to hear all that. That does sound hard.and the DNC is not pleasant. No matter what So I assume you took time after that to….
C: Yeah. Well, she, as part of the aftercare, she said wait until you’ve had one cycle before trying again. You’re right. I kind of because she said, Oh, you know, you’ll be in and out operation. They, you know, about the same day I went and didn’t think ever take anything calm. I feel fine. Yes. All right. It was quite um, it took my body a long time to get back to feeling okay and everything. And because of that, even though my cycle came, okay, my husband, I said, Let the beginning of a new year, it was January. Let’s give it some time. We’re not in a rush anymore. A bit of a cliche, but we we know we can get pregnant. So let’s just relax. We’re given a holiday, a family holiday, and we went skiing in January and didn’t think about it. Then I missed my second cycle, my second period. Take a test. And it’s very, very positive. So surprise, we were a bit shocked and not sure we’re ready. My husband especially I think he was particularly that I’m not sure I’m ready. This thing, but nature has it’s own way of doing things
P: That’s what the nine ones are for…It’s an acclimation period, right?
C: We used those fully. Yeah.
P: So how was this pregnancy?
C: And this pregnancy was great. I felt really, really well, for the first few months, a little bit of sickness and a little bit of tiredness. But overall, I felt fantastic. I used to use them. Every time I went for a scan, every time I had an appointment, I changed doctors actually, in the end, just to be more local to my house, but also to not have the same feelings of being in that waiting room. And having sort of negative feelings about that negative feelings about that waiting room. So I changed doctor and she was fantastic. I still get walking towards her office, I’d still get Oh, gosh, what is going to happen again? What’s going to happen again? And even every time every time I went to the bathroom, and is there going to be blood on the tissue? Is there going to be any I think every time you’ve had a loss, even if you feel very confident and happy. it’s always in the back of your mind?
P: totally, I think one thing that’s kind of prominent about that experience is that it makes it clear that you have no control. Like this is a process going on in your body. And while it is internal to you, that’s about the limit of your control. So that you know you’re always nervous, right? Because it happened last time and you didn’t do anything to make it happen, right? You have no control either way.
C: Yes. Which is a great thing about living in Spain, actually, they they every pregnancy loss, they test, the test and to see maybe why, why it happened, which is actually really reassuring because it confirmed that nothing I did, that baby was never going to be viable. And there was my body’s way of telling me that So yeah, that’s a positive thing. But I wouldn’t have got that back at home in the UK. So that’s a positive thing about living in Spain. And again, a little bit more confidence with this one because there’s nothing I did and yeah, I didn’t let go and hope for the best. But yeah, this pregnancy was better I had that’s what I do. last few weeks of it. My husband and I went out a lot in the evenings take advantage of it just being us two the last few times. And yes, I sort of got that burst of energy towards the end, which is nice.
P: That sounds lovely and and how was the birth?
C: Long
P: So let’s walk slowly through this one. Tell us you know what happened that day that you started to have contractions or whatever it started for you?
C: Well, a few weeks before my doctor was a little bit worried about my blood pressure. It was a little I mean not extraordinarily high. It was a little bit high. So I had to go and check every day at the pharmacist pharmacy. Keep checking. So that was in the back of my mind a little bit of a worry. And she was talking about not letting me go over too much and things like that. I was due the 13th of October and it was my birthday on the eighth of October and I woke up on the eighth on my birthday with sort of a gentle water leaking I’m sure I think nothing dramatic like the films or like that, just all day until leaking of water and my I am a midwife. I have done a an antenatal course with my the speaking with her and she said you know don’t have any contractions or anything. Just keep the endorphins flowing, keep happy hormones going. I had planned to go out Milk with my birthday said yet keep doing that, you know no need to rush to hospital or anything like this. So we have a lovely evening celebrating my birthday on the way back from that we did pop in to the hospital just to check everything was okay. And they said they will it was the doctor duty on it was midnight, the doctor on call had said no, we don’t think this is waters breaking go home. I had a routine appointment the next day anyway, due to my blood pressure. Come back with that, which I did. I had a lovely night’s sleep and had my appointment in the morning. My weekly appointment to check my blood pressure. And it was it wasn’t quite a lot. And obviously I was to my doctor, I think my waters are going and I came in last night and they said no. And she did a quick scan. And then I think they are your there’s not much water around the a baby, your blood pressure’s high. I think it’s enough. I’d like you to stay in and start the induction. And one thing I have to say about my doctor here, I was told that is quite old fashioned compared to us, the US, UK and other doctors in charge and they don’t talk to you about things. And it’s never my natural birth and all this but my doctor was very considerate of me considerate of my opinions. We always talked about decision before we made it together. And so I felt very happy with her, and her decision to suggest staying in. And yes, so that was Wednesday, the ninth. I started the induction process that day. And nothing really got going. It was just an
P: Does induction process mean Pitocin? Is that what that means?
C: Not at this stage. I don’t think It was just a pessary just to see if my cervix would open a little bit more.
P: What’s a pessary. It’s something used to help thin and soften the cervix getting it ready for labor. The pessary looks like a very small tampon that’s inserted into the vagina. It contains prostaglandins, which are hormone like substances that are released slowly over 24 hours in an effort to ripen your cervix.
C: And sort of start things a little bit without drugs and drips to stay in. But nothing Nothing happened. we stayed in hospital all afternoon like playing games and facetiming people and bouncing on my Pilates ball. But nothing got going so they took the pessary out three hours at about 7pm and told us to get another good night’s sleep and they will start the drip drip in the morning 7am. So that’s what happened. Had another very good night’s sleep. quite excited about we knew it as a boy. We knew he was going to be called Charlie. Getting quite excited about meeting him. And yes, seven o’clock in the morning. tHey started me on the drip things. Again, that felt quite slow it was. I sort of lost track of time. This point I think, remember at about midday. A lot of breathing through the pain, the pain was just getting really intense. And the midwives are coming in saying you wanted to wait for an epidural until you seven centimeters or six centimeters that isn’t a natural birth.the medication is making your contractions much more intense than it would be without them.
P: oxytocin is the hormone that helps encourage contractions during labor. pitocin, which is synthetic oxytocin can have similar effects. But in your body, oxytocin is released impulses both into the bloodstream and simultaneously into the brain for labouring women and the brain it positively affects mood and bonding behavior. Pitocin however, doesn’t cross the blood brain barrier. So if it’s being given to a woman in labor through an IV, it’s not creating the same emotional effects. And in part because it’s not being released impulses in the body. It can lead to contractions that are stronger and more frequent than naturally occurring contractions.
C: please, please have an epidural and you know I thought Yes, yes, please. Yes. So the other day I was rolled off that it was absolute bliss, feeling I have ever had in my life. Having this epidural, I think I managed to get a quite a couple of hours sleep in the afternoon as well with that going on. And unfortunately, of course it it does slow down the process the contractions were getting slower. Charlie was taking longer to come down into position. I think it was about five or six o’clock in the afternoon evening. My doctor came and said right we need to try to turn you on to your front to try and encourage him into the into a better birthing position. He’s not coming down the birth canal. She’s a very traditional Spanish lovely lady trying to make me laugh. But she’d seen this on an episode of Call the Midwife, which is a very UK, BBC drama but I wasn’t really in the mood for Jokes at that point. So I couldn’t, I’d sort of clicking the epidural and it’s been getting stronger and stronger, I couldn’t feel my legs, I had to turn on my front into like a downward dog position was impossible, my husband would have between doctors and my husband trying to turn me over to the downward dog position. And that unfortunately, as well picked out half of the epidural. So I could start feeling the left hand side of my body,
P: oh, no,
C: for the pain, which was, which was intense, intense pain. I don’t know what it was hours or minutes. But it had me doing a few practice pushes. Once I was back on my back, I think now that was my transition. Because I I remember having a bit of a breakdown, screaming, I can’t do this, I just cannot do this. And I’m so thankful that I gave birth before the pandemic, because my husband was there with me. And there was loads of doctors telling me I can do this, but the only person I believed was him. You know, he took me in the eye and told me I could do it. And he just completely calmed me down. We got through it. Again, Charlie was still not coming down anywhere close to the birth canal. Again, the full discussion with me as much as she could in my in my state of my left side and agony of things going on. But she did say we’d agreed as well that we’ll do everything we can do a vaginal birth. And that things are looking good and closer to having to do a C section. The baby’s still absolutely fine. His heart rate is good but it’s getting I think this is coming into sort of 8pm 9pm at night. And so we’re going to take you to theater, maybe prep everything for a C section, but we will we will really try to get him out naturally. And that sort of sped me on as I’m having done all this work to then
P: yeah.
C: But we got into the theater just in case James is outside having to put all the scrubs on and everything. I remember at this stage I was completely naked, I lost all kind of sense of propriety, or any kind of sense of this is not normal, but it was a student hospital. So a few student doctors, they’ve got some pediatrics in as well just in case Johnny hadn’t wasn’t doing very well. I know the doctors there for me and my niece the test and I just have my legs up on the stirrups, the very sort of old fashioned traditional way of giving birth stirrups and something to hold. And my poor husband sort of walked into the scene. Again, I just always I do manage to remember his face look strange in his face. He said I don’t want to look at the business end. But he walked in straight directly looking at it bless him. The doctor said if you try and push and if you can push with all your might we can we can get him out and we did it definitely was a team effort. My anesthetist was helping me breathe and my doctor was again talking to me through everything she said, I’m going to have to cut you if you’re going down we can use the forceps to get him out and my dream had been natural birth no forceps, no episiotomy, but at this point I was like Yes, yes, everything just get him out, get him out. And yet and he came out beautifully, wonderfully. Lucky I luckily the epidural was had failed on my left side, but not I couldn’t feel her cut me or I couldn’t feel anything like that, which the anesthetist was telling me That’s the most important thing. So that’s good. He had the he had the cord wrapped around a few times around his neck, which was the reason struggling to come down. But he was fine. They took him away It felt like three seconds later, in a way to make sure he’s breathing. But then he was on my chest. And he had done it. So it was strange experience.
P: That sounds like a triumph.
C: Yeah, in the end, it feels like a triumph. Because even though it was nothing as I’d imagined, I didn’t want any intervention or to be cut or to have as many doctors in the room as there were. But because I think I had such a good dialogue with my main doctor. And such a good relationship with her. And she always asked me before she did anything she asked me my profession and explained everything. I felt like it was a time when I feel very positive about it.
P: Good.
C: Yes. Yeah, that’s good.
P: And so how long do you stay in the hospital after that?
C: It’s typical for Spain to stay three days. Yeah. So we stayed, there was a tiny bit of worry because I’d lost quite a lot of blood during that. But in the end, I got to the test. I didn’t need anything to do at home for a few days. I remember being my first shower getting really dizzy. And they said that’s normal with the blood loss. Have a cold shower. Not a hot shower. But yes, three days quite, although we did sneak out a bit early because he was born so late. I think he’s born at 10pm at night. So he stayed that night, the next night, and we went home about 9pm the next next evening. But yeah, it was, I was so glad to get home, although also nerve wracking, because at the hospital, everything’s done. You know, they come early. Oh, maybe you should feel the baby. Now. Maybe you should do that maybe should change my, you know, brain kind of suggestions. But all right. Okay. That’s what I need to take further home. It’s just you.
P: Yeah, yeah. It’s nice to have adult supervision in the beginning for sure.
C: Yeah. Yeah.
P: And how was it when you got home?
C: Yes, it was often the nerve racking, where were the adults were in charge. Now. It was another bit of a haze of just feeding and I had no expectations of myself to breastfeed or not, I hadn’t really thought about it. But he and I just happened to, to click and bond and that way, and he found it quite easy. And I found it quite easy as well, he did have a tongue tie, which made it a bit sore. But we got that sorted quite quickly with my midwife here. So I just it was a haze of breastfeeding and changing. And then my parents came to visit which was lovely to visit, which again, I found helpful more than hindering, especially because because we live abroad there back in the UK, they can only visit for a short amount of time. They’re not here all the time. So it was a lovely bit of help. And then back to being just a three again, it was sort of I think about four weeks old, he started with a colic, which I found extremely testing, extremely testing
P: that’s so hard, but it didn’t happen like every night at six or like, was it regular? Or
C: it was my regular, yes, he wasn’t, he was always quite a clingy baby. I remember, when my husband went back to work, he went back to work after six weeks. So pretty much at the start of the joy.
P: Yeah,
C: he would only be in the daytime, he’d only be happy in the carrier. So even in the house, I would do some housework or some gentle things, but he had been the carrier. Next to me my heart. Now I consider the time I find it extremely suffocating. But now learning more about the fourth trimester. And things I can understand a little bit more. He just wanted to be close to me. But at about 5:30-6pm that wouldn’t do it and nothing would do it. He would just be screaming, screaming screaming to about 10pm at night. So but and it was always a time my husband got back from work. So I’d had quite a nice day with him. Sleeping, feeding, watching TV and going for a little walk. And then just my husband most of the day after work, screaming would start.
P: I took some questions about colic to a pediatrician. Hi, welcome to the show. Can you introduce yourself and tell us about your training?
Dr. Chamberlain: Absolutely. Thanks so much for having me. I’m Lisa Chamberlin. I’m a professor of pediatrics at the Stanford Department of Pediatrics and the School of Medicine here. And I work at the Stanford Children’s Hospital.
P: How long have you been a pediatrician?
Dr. Chamberlain: Oh, let’s see, forever 20 years.
P: Clarissa said it was you know, idyllic, she brought her new baby home. And then as soon as her husband’s paternity leave ran out, the crying started, let’s talk a little bit about colic how does a doctor define colic?
Dr. Chamberlain: Yeah. Great question. And I really feel for Clarissa it’s, it’s a hard thing to have to go through. So call it a few different definitions. But the one that a lot of us think of is crying, that is three hours or more a day, more than three times a week for infants less than three months old. So kind of the rules of three. If it’s less than three hours or less than three days a week or a child that’s over, you know, more like four or five months old, we would think less of colic. But if it meets those kind of rule of three criteria, and we think of it as colic,
P: do we know what the source of colic is why why babies develop it?
Dr. Chamberlain: We don’t know. So one of the first is a short answer, long answer. We have to make sure it’s not other things. So I need to make sure that there’s not any kind of neurological problems, rare things around the brain. Rare things with the heart there are Some heart conditions, and then things that have to do with the stomach places where like one of the valves, the pyloric valve is maybe a little tight that can cause stomach pain or more problems with formula or breast milk. So is there some sort of milk allergy? Is there some sort of intolerance to food? Because that can cause stomach pain, that last category that that intolerance to the food is the most common of those other things that I talked about? Once I’ve thought, you know what, I don’t think it’s any of these medical things. I really think what we’re talking about is colic, then we kind of go down that pathway. So what causes that? We’re not totally sure some people think that it has to do with a developing nervous system. And babies, I don’t know if it’s common to think about it this way. But some people talk about the fourth trimester, that those babies really maybe should stay in the womb until 12 months, but you know, blessedly on some levels, they come out at nine. So for the last three months, there’s a lot of neurological development. So it’s really kind of a normal developmental stage that they have to go through. And colic is just a manifestation of kind of a subset of kids who experienced that with more difficulty. So a normal process that on the bell shaped curve, they get too much stimulation and cry as a result.
C: So I think he found it quite hard to bond with him for that time. I did as well, I had, I had I heard about these initial when the first time you see his face, you’ll love him. 100% and I didn’t get that. I got a sense of I’ve always known him and I’ve he’s part of me, but I didn’t get that love feeling. So again, I think that was quite a testing time, especially for my husband. Only getting home and seeing him when he was a screaming angry ball of red flesh. But for me as well. We did we found that time very difficult as family.
P: yeah I think that’s pretty universal. It’s really stressful to have a baby You can’t calm down.
C: Yeah,
P: And with colic, you just can’t
C: and, and actually, because I the mum guilt goes but the mum guilt got to me that why can’t I calm him ? He’s my baby, I should I be able to do this. Why can’t I do this? Don’t I love him enough and all these things. Plus the hormones. Yes, healing from quite a traumatic birth. So many things. I have to say my husband was amazing, just so he would just sit on the Pilates ball all evening with him. I could see in his face the frustration and the sort of shock of this thing happening to us on my husband’s face. But the calmness he would have while he was holding the baby was amazing to me to see because I just didn’t feel I’m sure he didn’t fit inside. But he looked so calm. And he definitely radiated calm to the baby. Every time is my turn to have a go holding the baby I just felt guilt and sadness and absolute sort of horror with what was going on? It was Yes, it was a difficult time
P: Yeah, that sounds I mean, it’s hard kind of no matter what, but also, if you have the expectation that you’ll you know, you’ll be the one with the magic touch that will soothe him that it’s even harder.
P: So Clarissa talks about feeling like a bad mother, because she can’t see her baby, which I’m sure is not unusual. What What would you say to a patient who brought that to you?
Dr. Chamberlain: Yeah. So that’s actually one of the main things I was I was thinking about, and it’s this feeling what I hear a lot of people say it’s a feeling of helplessness.
P: Yeah.
Dr. Chamberlain And we’re not used to. And so I think for a lot of mothers, new mothers, you know, we’ve come with a sense of efficacy, and we can solve problems, know what to do. And, and this is a really helpless thing, and that you feel like, you know, you’re worried I’m doing something wrong. I’m not bonding with my baby, things like this. And so one of the first things I do, when I when I hear the story of colic is I reassure the family, and the mom, usually the mums, a primary caretaker, you know, you’re not doing anything wrong. This is a normal process, and you’re doing great and, you know, just to reassure them about that, and then try to give them some tools that can give them some options and some places to go. When they are feeling this range of emotions. And for some people, it’s frustration, some people anger, experiencing frustration and anger is normal. You’re not a bad person. If you feel that caring a creature that you love, so much cry in this way for so long. is really hard. so just really wanting to reassure people, and then also the exhaustion. This is all happening at a time when people are physically exhausted, they’ve given birth they are nursing, and they’re not sleeping through the night. So it’s really kind of a perfect storm to feel bad about yourself and feel about about your parenting. So we just tried to reassure people that, you know, you take it day by day, they will outgrow this, this ends, I promise it will end. And so what are some tools we can convey to help them bridge to the other side of this? Which, which will happen? They will get through it?
P: And are the tools like walk around and try to shut down simulation? What can you do?
Dr. Chamberlain: That’s a great question. So there’s a book, it’s an older book, but it describes the five S’s and it’s the happiest baby on the block book. And, and I disclosure, no, no conflict of interest. I don’t know the author, I get nothing for this. But it’s a very simple book, and it conveys kind of the five S’s. So the five things you can do that basically recapitulate the environment of the womb, the first one is swaddling. swaddling is the way that you can have the burrito Baby, you wrap the baby super tight in a blanket. And so that, that hold that that puts the child in very tightly again, like womb, like, right, like it’s all tucked in. And, and, and really snuggled it in and the second one is a side or stomach position. So again, in the womb, that baby’s in these different positions, and they’re out and we just hold them up all the time. So it’s side position, stomach position, using some sounds, that shushing sounds. So that’s kind of mimicking the heart tones that they would hear in the womb, sh-sh-sh that this sort of thing. So that constant sound, and there are people talking about using hairdryers using these white noise machines. So other things that can create that noise, doing some small swinging or jiggling is something else that you can do that helps to soothe the baby and then suck. So the last S is a pacifier or a thumb, something that the baby can suck on. So with these five S’s, these are the different things parents can try. And it’s kind of a trial and error thing, find the one that works for your baby. But people describe it like a switch, like when they, you know, it’s a combination of a couple of them, or maybe three of the five for your baby. And that this this kind of combination seems to flip a switch and the child then calms down. So those are some things that have really no cost, no side effects, easy to try, and are have been found by many parents to be very helpful.
C: You don’t you don’t care. You will do you, you know, you throw money at you. Yeah. living through it. You will do anything. Anything? Yes.
P: So what happens when colic eventually goes away? And do you know, Is it some kind of physiologic? Do we know what that is?
C: every time that I had my moment I would spend on the internet googling. And I never found an answer. We did used to feel in the evenings when it got peak screaming like you could feel the gas bubble in his tummy. And I mean, I spent a lot of time learning to massage and the leg thing just
P: yeah,
C: ease and gases. But in reality, it’s just waiting, I think waiting for his digestive system to develop a bit better. And online is no three months, three months, the magic age and we got to three months. And it wasn’t the magic age. And my mother in law and so I said no, no, it’s four months, four months is really the time and I reached that and things did start to really improve after four months. Plus that three months then there’s a lady in Madrid is quite well known with all the expat mothers about she’s a sleep. Sleep consultancy, gentle sleep consultants and I went to one of her to open evenings. And Charlie was just about three months and it was and again, sleep cycles of up to three months. There’s nothing you can do with a baby’s sleep I don’t know when they just want to be next to you all the time. But for three months, you can start implementing a routine and I did I got him that night, implemented the routine for him in in our bedroom, we used to let him sleep on the sofa all night until we went to bed but know his bedtime. He’s going into his bed with the monitor on and that was also a game changer. For us. I think he was relieved to have a routine at bedtime. We were relieved. And then at four months, it all started slotting in together a little bit better. his tummy got better his colic was improving. We have the bedtime routine down. He was going on he was going on. Yeah things definitely.
P: That sounds awesome and what what uh what are his tricks at one? What is he into?
C: ah, he is. If he will eating. He will eat everything. Which means he’s become very good at. Like the fine details fine is is fine motor skills is fantastic. And he’s talking skills, also. Very good. He’s just started nursery, full time. Slowly he was part time status early but he’s now been at nursery full time. A couple of months. And he’s just started to, in the middle of life now isn’t such a good sleeper. I can’t criticize on the time but every single day we wake up about the morning just for chat. He didn’t need me, doesn’t want me to go in, he gets a bit annoyed if I go in, actually, but just have a little 20 minute chat. And then they go to sleep. And nursery they say the same. He wakes up from the siesta just to have a litte chat, and they like Charlie your friends and sleeping. Those chatty is not walking yet he’s focusing on the chatting in the eating.
P: You know, we have two kids and the first one walked at 17 months. And she like Charlie, like talks kind of early and so she could order us around. She could say, Go, Go get me that thing; why would I have to get over there I have you
C: Yes, absolutely. That is exactly what he does. And because he’s my current only my best I, I would do anything for him so of course, yeah he tells me what he wants. I do it. Is it the trick. Right.
P: I think if you have a personal assistant, you don’t need to get there.
C: No, of course. Yeah, so making sense now. Right.
P: I hope you’re taping some of these conversations.
C: Oh, oh no, I’m not as your mind I remember taping a few nights of breastfeeding actually to have that kind of little snuffly sound that they make when they breastfeed, which I’m so glad I did because he sort of stopped weaned himself, quite early on really so I’m glad I’ve got that but yes, that’s a good idea. I will do some taping, especially for the granparents.
P: Well I was gonna say need it for the wedding.
C: Yes. Definitely. Little cherub face with his chatting. Yeah,
P: if you could go back and give advice to your younger self. What do you think you would tell her?
C: I’ve been thinking about this recently. It’s come up on a radio station I listen to here, and without a doubt it would be let go of your expectations. I definitely had high not high expectations. I just thought that I would love every minute of it. I thought it would be natural and I, when my baby cried I know exactly what he wanted because I’m his mother. And, yes, and then, the most important thing is that you don’t have to love every minute of it it’s okay to say, this is boring or This is hard.
P: Yeah,
C: or it’s not enjoyable.
P: Yeah.
C: And I think that’s positive because it makes the fun and the enjoyable. The lovely bits, even more special because there are so many lovely bits and enjoyable it’s and love them so much. And that is even more special to you if you acknowledge that. Some days are hard. Some days are boring, and I do miss my pre-Charlie life and I think that’s okay as well. I wouldn’t change anything I love my life I love having Charlie in my life but I have to accept that I, I’m not 25 I can’t go out to the clubs till 6am. I don’t want to.
P: Yeah,
C: but I’m also allowed to miss that I used to, I think, yeah,
would tell my younger self. Enjoy. I did enjoy my late 20s, that enjoying the 20s, and don’t have such high expectations of motherhood. It’s wonderful. And it’s not everything that I am. I’m also I’m still meet. Yeah,
P: that sounds wise lucky Charlie.
C: Hopefully, lucky charlie.
P: Yeah. Well thank you so much for talking to us today and for sharing your story.
C: Thank you. Thank you for inviting me it’s, it’s very important. Again, Wish I had listened to more stories when I was pregnant or when I was trying to get pregnant and it might have helped me realize, and not to be so scared about my emotions and my guilt, and the first few months, if I had listened to my story that so thank you for doing it.
P: Sure, absolutely. Thanks again to dr Chamberlain for the great advice about colic. And thanks to Clarissa for sharing her story. A link to the book dr Chamberlain suggested in the notes. If you like this episode, feel free to like and subscribe if you’d like to be a guest on the show, go over to the war stories website and sign up. We’ll be back soon with another episode of overcoming.
Episode 6: All Kinds of Weather: Charlotte
Episode 6 SN: All Kinds of Weather: Charlotte
The project of starting a family involves some elements that are totally under your control (when you start trying to get pregnant, the doctors or midwives or doulas you choose) and other elements that you expect to be uncertain: what the pregnancy is like or when the baby comes. But for today’s guest, almost every element of the process carried uncertainty: when she was pregnant, if the pregnancy would take, and if her other organs would behave during the pregnancy, to name a few. She weathered all these life changing events, some stressful, some lovely…and now has layered on top of them the blissful experiences of her three young children.
Surfactant and steroids
https://www.verywellfamily.com/what-is-pulmonary-surfactant-2748539
https://www.verywellfamily.com/steroids-for-lung-development-in-premature-babies-2748476
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6464568/
http://www.embryology.ch/anglais/rrespiratory/phasen06.html
Rate of miscarriage
https://www.marchofdimes.org/complications/miscarriage.aspx#
Precipitous labor
https://www.healthline.com/health/pregnancy/precipitous-labor-when-labor-is-fast-and-furious
Audio Transcript:
P: Welcome to war stories from the Womb.
I’m your host Paulette Kamenecka.
The theme of today’s story is overcoming. My guest wrangles with miscarriage, organs that misbehave during pregnancy, preterm birth and placenta problems over the course of all of her pregnancies. In each challenging situation, she prevails. And on her list of upcoming adventures, she will include parenting adolescents. After we taped our conversation. I went back into the interview to include some medical information, and also have the commentary of a fantastic OB who can answer some questions and give us medical context.
Let’s get to the interview.
C: Hi, my name is Charlotte Hornsby, and I’m living currently in Madrid in Spain,
P: and how many kids do you have.
C: We have three children. I’ve got a daughter who is 13 and little boy, two little boys. One who is six, and another one who is seven turning eight in October.
P: before you were on this journey to create a family. I’m sure you’ve had some idea about what pregnancy would be like, how would you imagine it would go?
C: So, I was never somebody that really thought too much about you know the marriage and having babies and having family. I’d always known exactly what I wanted to do as a career. Also, so when I was around 16, I started my period when I was about 14 to an A 13. I had a lot of issues with with periods. I was having you know very long periods, short periods, two in a month, sometimes not one for a while, and I was told that the likelihood was, I would have issues getting pregnant, if I was able to get pregnant. And that was when I was around 16,16 and a half, something like that. So, I think in the back of my head. If it hadn’t happened. You know, it wasn’t something that I dreamed of just in case…. you know? and then, as you know, as often happens, you meet somebody, and it just clicks. You want to have children with these, this person. I’m a very independent person. And I’m also quite laid back so again I wasn’t planning I wasn’t thinking too much about pregnancy, I just presumed, everything would go okay. And finally I, you know, I have quite a strict Catholic upbringing. So, I never talked to my mom about pregnancy. You know, giving birth, nothing. Literally nothing. In fact, when I was asking my mother about childbirth. When I, you know, when I was pregnant and she told me it was like a bad period. That was, you know, and that’s sort of– I can set the scene for how much discussion went on in my household about pregnancy and babies…. it just was…It was just something that happened you didn’t talk about it. The woman dealt with it. So that was my kind of background to to pregnancy. Yeah.
P: Wow. All I can say is wow. Do you laugh with your mother now about the bad period story or no?
C: After I gave birth, my to my daughter and I did call her on the phone and I said to her, I don’t know what kind of hell of a period you have. And that was nothing like my birth, and she was just like I don’t know what I could have said to you, you know, what am I gonna say it’s really painful. Okay. We do laugh about it now. Yeah. I’ll try to speak more to my daughter about it but then I got…
P: I feel like that’s not much preparation.
C: I know it was no preparation, I moved to Spain when I was 26 . And it was just a few years later that you know I got pregnant for the first time, but no one in my group of friends had had babies yet. So, you know, I was one of the first going through it. I think maybe if you know you’d had a close family member, you know a friend who’d had a baby you might be a bit more aware of everything that goes on. You know, you see the Hollywood movie idea of morning sickness or all of that. But the actual practicalities of getting pregnant and being pregnant. I was pretty. Yeah, pretty naive, let’s say.
P: So, with, with all that preparation Did you get pregnant, easily, the first time?
C: Yeah, like, so I got pregnant them the first time around, 28, and I was working, we were both working, my husband and I were both working we’re both traveling, and I didn’t really know I was pregnant for probably about eight nine weeks something like that maybe a bit more, because I’ve had such irregular periods.
P: Yeah,
C: so, you know, it didn’t surprise me that, you know, I hadn’t had a period. And then I think probably around six weeks, five weeks, something like that. I had that implement… implementation bleeding I think it’s called. So I presume that had been my period so I really didn’t think anything of it I didn’t have any symptoms let’s say, for a you know for a while, and then around eight nine weeks it was like, Okay, well, still haven’t had a period. I took a pregnancy test, found out we were pregnant. And then, I don’t know why we just sort of carried on, like you know it was okay, there’s nothing we can really do you know like do you okay you know we were happy, but we were both very busy with work. So, and let’s say because it wasn’t something we talked about previously or something we talked about much with my family. Yeah I told them, but then it wasn’t really a discussion, much more after that. And I just presumed everything would go, fine, you know, and, you know, when I needed to worry about it. I would start worrying about it. And then I went for the scan in Spain, it’s, it’s quite a controlled process, you immediately go with a doctor or a gynecologist. It’s, you know it isn’t a midwife led it’s not a, it’s not really a woman controlled thing it’s like, you will go and see a gynecologist. You will go and see them every month, you will see this, and my gynecologist was a man. He was an older man who was probably in his late 60s man, who was considered to be a very experienced gynecologist in in Barcelona, and I would imagine that he has been delivering babies for the same way for 40 years.
P: Yeah.
C: You didn’t ask any question you know it was really yeah just, I’m telling you what to do, I will tell you, everything’s okay. Yeah. I was so around nearly 16 weeks, I had this spotting, you know you read as you do on the internet. Fatal thing to read on the internet. They say, you know, rest. So we did bedrest, but unfortunately, the bleeding got heavier very very quickly, and I miscarried at 16 weeks, and I fully miscarried, I…..ahhhhh….I was in the bathroom in a toilet, you know, and you can feel everything passing. Feels like cramps. I didn’t go to the hospital. We actually. I don’t really know my husband didn’t really know how to cope with it, either. And, yeah, it was such a surprise because you’d never think…no one ever speaks about miscarriages.
P: Yeah.
C: And, you know, even if you know everything about it you only speak about pregnancy and babies and, you know, breastfeeding and. So, after it happened. Well, you know i. It was very it was very upsetting. But we didn’t really get we never really talked about it as a couple, too much. And what we did do is try and get pregnant very quickly afterwards. And I wanted to get pregnant very quickly afterwards. And I decided to change my doctor, as well, because I had, you know, after I miscarried obviously we did go to the doctor and I did go and see him. And yeah, I mean he is. There’s nothing there you know there’s nothing we can do. So, I don’t think doctors either are trained to know what to do, or to say, with a miscarriage, like it was very much and you haven’t had to go to hospital you haven’t had to you know it was even though it was quite late, 16 weeks or,
P: Yeah, that is late.
C:I didn’t have to deliver I didn’t have like contraction pain.
P: I checked in with an OB doctor Nicole Wilcox to ask about the medical training doctors receive to manage news of a miscarriage. Hi doctor Welcome to the show.
Dr. Wilcox: Hi, thank you for having me.
P: I’m assuming doctors are trained to talk about miscarriage or what’s your experience.
Dr. Wilcox: Yes, you know, I think we all, you know in training experience having to break that news to a patient. Of course it’s a devastating thing. And it’s uncomfortable, but at least at this you know at this point in time, I think you can’t go into the field of Obstetrics without, you know, knowing that this is part of the job you know and you know it’s it’s not so much book learning as on the job learning how to, you know, gently break news. You know, prepare somebody give them time, you know, to let the information sink in and watching other people. You know what, you know, watching your, your teachers and your attendings sort of model that for you. Yeah,
P: yeah, that sounds it’s hard on all ends.
Dr. Wilcox: Oh yeah, yeah, yeah.
C: And I think also I probably gave the impression of I’m fine. You know, I’m coping with it. Let’s move on. So we did, and I got pregnant again. I think I took a test when I was about six weeks, because I think I was more conscious about it this time I probably was a little bit more on it. We went to do the scan at around 10 weeks which is a little bit early, you know they say really you go to do a proper scan to see the heartbeat and everything around 12 weeks here. But I think I was probably a little bit more keen, and I know that miscarriage in my head this time was really yeah it was in my head.
P: Yeah,
C: that it never had been before. So actually the pregnancy wasn’t too bad. I had a bit of morning sickness…You know nothing, nothing really terrible. I followed on this book. What to Expect When You’re Expecting which I hadn’t done the first time.
P: Yeah,
C: so as you can see I was really on top of it. I think I probably was killing Nuno with. Oh the baby is now this size and that size. Now, you have a bit of like a probably in my head I had a bit of a worry when I was getting past that 16 weeks stage.
P: Yeah,
C: But I was going to a female gynecologist. She would be scanning and weighing, which is very important in Spain, they like to weigh you every time to make sure you’re not gaining too much weight. Again, very different from the UK, like you’re really only allowed to gain, no weight in the first trimester a few kilos in the second and a few kilos in the third, and they’re really on top of weight gain in Spain…
P: because it’s not healthy for the baby or ?
C: not healthy for the baby not healthy for the mother. So really are it’s very much like control, I think that’s what I remember more than anything is being weighed a lot. And so, then we just everything was seemed to be going fine didn’t have any real problems. We’re still playing squash at around 24 weeks…. that my husband and did say no, no more, you’re, you are very competitive so he banned squash at that time, and then we decided to go for a weekend last weekend as a couple by ourselves we flew into Paris and midway through dinner, you know, instead of sort of complaining that some pain in my stomach, we got home, we see a large red lump hot right on my side, right side my body, and we call the doctor in Paris. The doctor came, so they came to the hotel, as opposed to us going to the hospital. And then I actually got taken in an ambulance to the American Hospital in Paris, and they said it’s your appendix. I was now 28 weeks pregnant.
P: Wow….
C: you can’t have the same anesthetization that you would do it just everything is is a lot more complicated also apparently if you, if you do too much the body begins to make the contraction to start expel it you know, just,
P: yeah.
C: I remember it. You have local.
P: That means you’re awake.
C: You’re, you’re awake. You’re awake, which is you can’t feel anything. You can’t feel anything. But yeah you’re awake through it because they’re really monitoring, everything. I think it went fine. But yeah, I started contracting, which is quite painful, on an open wound.
P: Ah, God, wow
C: so that was that was quite painful. and in hospital for around 10 days afterwards, just because I was contracting so much I couldn’t be moved, they were giving me injections to try and stop my body from from contracting from the body from contracting. Then, we, we had to fly back to Barcelona.
P: So the drugs they gave you stop and contractions?
C: Yeah, they do, they stop. So, but you have to take them, I can’t remember how many times but I know I was injecting myself, my leg probably twice a day I think I, you know, I can’t remember exactly but I remember it was a couple of times a day that I would have to give myself an injection in my leg, and I was in bed rest, essentially, I didn’t go back to work in the office, just because I could not be walking around. After you know after this operation, they gave me steroids for the baby’s lungs. I think at around 33 weeks, something like that.
P: Breathing problems are the main cause of death and serious health problems for preemies and here’s why. The lungs are still maturing in the third trimester. In the last few weeks of pregnancy, alveoli–the tiny air sacs that fill with air when we breathe– are forming. To work efficiently these air sacs need a chemical called surfactant, and they don’t have enough of it until around 36 weeks. This is where steroids come in, they can help fetal lungs make surfactant so the preemie can breath more easily when it’s born. Steroids also reduce the chances of the premature baby will encounter bleeding in the brain and serious bowel complications.
C: And they said that they were going to stop it at 34 weeks, and two days, because at 35 weeks she would have been okay for delivery but they were hoping that maybe after that period of time, my body might, you know, hang on a little bit longer, so I stopped the injections, literally within two days my waters broke in the morning, so I immediately started. So my waters, my waters broke middle of the night…
P: You knew what it was at this point? we’re on top of things….
C: yeah, now I’m okay with pregnancy. my waters broke, I called my sister, sister and I had always agreed that we would be each other’s birth partners.
P: That’s awesome.
C: So, yeah, it was, you know, it was a really sort of we’re very close. We’re just two years apart you know she was, she sort of gets me like very well. So we had agreed this. However, I had found the pregnancy process in Spain very different to how I had heard about it in the UK. So in the UK you’re encouraged to write a birth plan, and you know it has this idea of whether you want music, or the lights, or, you know, do you want your partner there? you know just has this whole scene setting idea so.
P: Yeah
C: Because I know my Spanish was okay, but it wasn’t fantastic, I probably been reading more from the NHS than I had been from Spanish sites, so I had actually said to my doctor. Oh, when do you, you know, when do you want my birth plan. And she said to me, Well, the plan is that you give birth. And I was like…
P: Ha, ha, oh you read it!
C: Exactly. Thanks, You skipped to the good the part. There was no birth plan in Spain, they don’t care. The, the plan is that the baby gets out safely. That’s it. So I insisted that I wanted a doula, because my doctor had warned me that Alistair my daughter was likely to come early, I knew it was going to have to be more medically controlled, then I would have liked you know I had a bit more of an idea, because I knew she was very little. So I worried about if I was taking drugs, what effect that would have on her. And I worried that it had been quite a stressful pregnancy, so I had tried, as much as I could, in a pregnancy that wasn’t going perfectly, had had a lot of medical intervention to, to bring in some more natural kind of support. So my doctor reluctantly agreed to have her there. She came to my house, my husband was traveling. So, you know yeah it was something…. I hadn’t really wanted him at the actual birth like I expected him to be there to get us to the hospital. My sister to be in the room and for him to be there once the baby was born, but I hadn’t really wanted him there at the actual birth, and he was fine with it. He was not fighting to be in the room, but they did presume he would be in the country. Ha, ha…
P: ha, ha…
C: The doula, she came, and I had gone back to sleep after waters breaking. I’d had a shower. You know I’ve been eating, relaxing. Thinking everything was going pretty well. And then at some point we went to the hospital and it does change everything. You go from feeling very much that you’re in control and in and relaxed, to feeling. Yeah, this, you know, this is serious now this is, I don’t know it it just takes you out of your control zone your into someone else’s place.
P: Yeah, it feels like something’s being done to you.
C: And it was, for sure, it was right get onto the bed you know I luckily had the doula that we were both saying, No, she wants to move around. She wants to go on the ball you know this.
P: Yeah, yeah,
C: that you can sit on…and I I locked myself in a toilet at one point, there’s you know I went through I’m sure what every woman giving birth goes through it’s coming out the wrong way. You know it’s breaking my body, and I’m sure it’s going through a bone or, you know, a little bit of the plug or something comes out, I think I’ve done it now you look in the toilet to see if you’ve given birth,
P:….or a very bad period,
C: or very bad period yes stinging. It was stinging…. I didn’t have an epidural I had some painkiller, put in the nurses were pushing and pushing me to have some painkiller. What they want is the woman to be in bed with an epidural. And, and to get the baby out.
P: Yeah,
C: well they don’t want is the woman to be walking around taking a long time to have a baby.
P: Yeah,
C: so, you know, I really can’t stress enough how many times we had to say, No, we’re fine. No, I’m okay. No, I don’t want the lights turned on, no I don’t need that, you know, so now it progressed, it wasn’t that long…she took a couple of hours from waters breaking from when the contractions really started my sister was there. Yeah, and she came out she was very little. She was very little she you know she was under a kilo and a half. I think it’s like….
P: It’s like two pounds and change or something…
C: Yeah, I think it’s under three pounds, which is tiny. You know when my husband saw her he kind of freaked out a little bit we have a photo of her next to the old Nokia phone.
P: Oh wow.
C: She really is. She’s, and she, she looked very alien. She looked as if she wasn’t ready to come out you know her eyes were still very pulled she didn’t have any fat buildup on her body, and she didn’t have a suckling motion.
P: Yeah
C: so they tried to put you in, put the baby to the breast, because I had said and luckily the doula again. And I was like, No, she wants to breastfeed because they were very keen to get her feeding with a bottle.
P: Yeah.
C: And we were like, No, no, we would be trying to work her jaw. We express milk and pipetted it in… in Spain they take the baby away, you’re in your room, they take the baby away they bring her back. When she cries, and then they take her away again. And you have to insist that you don’t want cologne on the baby.
P: Oh my god.
C: Yeah. And they were very concerned that she wasn’t having her ears pierced despite being so tiny, because otherwise how would anyone know that she was a girl.
P: Also funny
C: It’s a really, really strange. You know, but in the end, she had a lot of good care, I have to say and I did feel very secure that if anything had gone wrong, we would definitely be in the right place. And considering her weight considering you know how early it had been considering the drugs that had to be taken I think all of those obviously had an impact on her for how much she’d grown. You know, we came out of the hospital, were able to take her home. And she would sleep a lot. We had to like wake her up to try and feed. But, yeah, I mean it, it went pretty well considering first baby, and that you know we were by ourselves. touchwood. She’s a very healthy very strong 13 year old. Now,
P: that’s a very good ending.
C: That is a good ending!
P: How old does she get before you get pregnant again?
C: So I wanted this two year gap that I had had. So probably yeah she was about 17,18 months when we started trying again. And it just didn’t happen, for whatever reason, wasn’t happening and it was probably it was like four years down the line, it’s still not happening. The doctor you know we were still seeing the same gynecologist and didn’t seem to be any rhyme or reason for it. I did have my mother telling me, you know like, as mothers like to do. It’s really strange because you know I just had three babies every two years and no problem and if I’d wanted to have more then…..thanks for that ever so helpful. Yeah, great advice. Don’t make me feel bad, you know, I think, I think, in a way, my husband probably would have been okay with just one child, like, you know, He may have wanted a boy, but she was such a good child, like she really, you know, she didn’t cry she did everything you would still she was just so easy and so nice that we weren’t maybe stressing as much as if she’d been really difficult and us thinking oh my god we really need to have another one now otherwise we’re never going to do it. So around. Now you get four and a half years. I got pregnant again. I didn’t feel anything. Didn’t have morning sickness didn’t have issues, was going to the same doctor. Everything seemed fine around February. We went to ski, well I wasn’t skiing, but you know, and I was 17 and a half, nearly 18 weeks, just here just in Andorra, and I began to get cramps, and no spotting at that time but yeah the cramps were bad so it was it was weird. Again, weirdly after having a successful pregnancy hadn’t been thinking of miscarriage, like, just didn’t come into my head began to get some spotting. There was spotting. And it got pretty bad. So we decided to go to the hospital because it wasn’t progressing like it had the first time, I think we actually called the hospital and they said to come in and Nuno couldn’t come into the room with me. It was a public hospital because we weren’t in Barcelona with my doctor there were two, two nurses there, and I you know I knew something was wrong, because I had, you know, when you read on the internet, tells you about spotting.
P: Yeah,
C: and it’s about the color of the blood, and you know, this is red blood. This isn’t old.
P: Right. Right.
C: You know something’s wrong. And they decided to do the scan, like as if you were having a scan. You know, like a pregnancy scan, and there was no sound like no heartbeat. And then they turned. No, you can see on the screen, and that they you know they turned the screen away afterwards, and the doctor said “No hay nada”, there’s nothing there. I had to have a DNC, which I use the term as if I know exactly what they do, I don’t know, I decided never to look too much, what they do. I know it’s used when you miscarry but you don’t have a complete miscarriage, right, I, I found this miscarriage, even though it was a very. It was a similar time to the other one maybe a little bit later. Very difficult, very difficult, because, because I had to go to hospital.
P: Yeah,
C: because I had to have intervention.
P: Yeah,
C: to finish the process. It felt a lot more like my fault, like a choice I had made, even though it wasn’t. It felt like I had intervened in the pregnancy. And, which is crazy because, you know, I had done the same as I’d done with the other two, but I found it really tough. I found it really, really tough.
P: I checked in with Dr. Wilcox again, to find out how patients commonly respond to miscarriage.
Dr. Wilcox: First thing patients want to know is what they did to cause it. Yeah. And they essentially it’s hardly ever the case that they’ve caused it. So I always make sure to review that with them to say it’s not because you exercised, it’s not because you had sex it’s not because you ate sushi. Yeah, you know, or you took Tylenol or whatever it is, that, That, that, you know, we know that this is just, you know, one in five pregnancies this happens. And you have to empathize, you often have to go over that several times for them to really hear it it’s just like hearing you have cancer, you know that, you know, very often everything else, after that, you know, they’re there you know you’re not hearing it.
C: And I had contractions with it, I, I didn’t have to deliver like you know these horror stories. I didn’t have any of that.
P: Yeah,
C: I just do remember that I remember having having this scan, which you associate with a good thing because it’s when you find out you’re pregnant. When you first hear the heartbeat.
P: Yeah,
C: you know, all of those positive things them doing a scan, and not turning the screen away and not being trained to turn the screen away.
P: Yeah.
C: That’s something…..
P: Right. Yeah, it is super hard. Yeah, I feel like we would all be a little bit better served, obviously if people spoke about miscarriage but also if you knew that the miscarriage rate was relatively high it would be hard to blame yourself for the outcome. Because …
C: exactly because you would understand that this happens so much.
P: Yeah, it’s so frequent that that are like the implementation isn’t quite right or the or the cell division isn’t quite right…
C: and that you know and you can read about, you know the fact that it’s nearly always fetal abnormality that has caused, you know, the miscarriage and, you know, after having one, you obviously do read a lot. But, yeah, having having to go through a procedure to clear things up to, to finish the pregnancy was just a very different, a very, very different experience, and I don’t blame the nurses because they are in just a general Ward, you know, they weren’t…
P: They weren’t ob nurses yeah
C: you know it’s it’s literally just a woman comes in, far along in the pregnancy business, and they knew I mean I guess they knew from what you know what was happening. Yeah. Pregnancy had already completed as I think. So, we didn’t get pregnant immediately after that, again, we didn’t really speak about it, we don’t speak about miscarriage. And it’s funny, even after going through two I don’t think it’s something I would probably tell my daughter that it happened to me, but I’m not sure I would go into too much detail about it because, much like pregnancy, I do feel it’s something very personal. For each woman and just presuming that something that’s happened to you, how it’s going to be for someone else maybe, you know I would tell her it’s happened so she’s aware.
P: Yeah.
C: But I think it. You know, maybe it will be really tough for her and the fact that the first one I coped with okay you know wouldn’t help or the fact that the second one was only bad because of that. So, you know, so it’s a hard subject. It’s a very hard subject and yeah I don’t, we don’t speak about it really ever. Anyway, I did get pregnant again, we’re still in Barcelona, same doctor, a lot of intervention, a lot of I had terrible morning sickness. You know I’d be sitting on a sofa, turn my head and vomit, like for nothing. So, I had to go into hospital because I was so dehydrated. It was the middle of summer in Barcelona and it’s really hot.
P: Yeah.
C: And you know, this time you have a child, so you don’t rest as much, but the difference in insane in a good way, maybe, is that they also don’t think women should suffer because you’re pregnant. Yeah, so they will give you medicine to help with morning sickness, which I found out later in the UK, they do not do, it’s this stupid idea that I think it’s only because women are pregnant, that you get told Well, a healthy pregnancy will have morning sickness, which is rubbish, that you were getting sickness and have a, you know, an issue. Yeah. Absolutely none but you know it’s some of these ideas that woman need to suffer and it’s just part of this natural process that we have to go through, but I had various minerals or whatever that were low so I had to take more medicine. I was being monitored, a lot I was being monitored on a monthly basis, but I actually often have morning sickness was under control which I think I suffered for until I was about 16 weeks. When I went to hospital, probably till about 24 weeks, I was having to take medicine to stop myself vomiting. But after 24 weeks. It was okay. And we were quite excited, we didn’t know what it was going to be, which we had known with Alicai because the doctor in France had just said, Oh, she let go. And I knew, because of what happened with Alicai think that the likelihood was you know it was going to be medical controlled throughout. And so, and when that started two weeks before. Just a checkup. I felt fine been working, and the doctor said okay, you know you feel like okay, well, fine. Okay. Yeah, the heartbeats pretty weak. Okay. Have you noticed the baby moving. No, but, you know, very busy and working full time child, you know, traveling, and nothing. So they gave me a juice drink baby didn’t respond. They did this a Doppler where they see the oxygen and, and she said okay baby needs to come out. I’m like 32 weeks. So no, she needs to come out a he and the baby needs to come out to this, so I’m like, Okay, let me call my husband and I will go get my bag you know that I’ll be whatever I’m thinking, can’t be that I don’t know I just didn’t really hit me what she was saying, you know, so she could no, it needs to come out now. So, I had gone to the hospital with a girl from the office, who was my assistant. Who’d never had a baby, who wasn’t married, who knew nothing.
And I’m like, oh, okay, so I’m there writing an email to China, which is my job. And, while they and I think I just got into the zone of this can’t be happening it’s not, it’s not real, because they broke my waters, because she wanted to see if he was the baby was actually quite a good size, like, you know, for the 32 weeks he was quite.
P: Yeah,
C: good considering very early. So, waters broken, and she said to me, you know like, you need to take this a bit more seriously. You’re about to have a baby. I don’t know why I, you know, it just wasn’t computing. Anyway, I had to go into another room, they prepped me for cesarean, because there was something wrong with the baby’s heartbeat and there was something wrong with the placenta. And again, because I don’t have that much knowledge and I still didn’t have that much knowledge, you trusted I just trusted the doctor I just did what they’re telling me I had the epidural. And they began to take oxygen levels, from the baby’s head, but they did say that he you know he was progressing down there, because he wasn’t in place to come out,
P: right, right
C: but once the waters broke. Luckily probably because he was so small. You know, he was moving down. So they said okay looks good, but there is this time, where it’s. If you go too late and you have an emergency scenario, it is more complicated because the baby is too far down the channel, you know, so they wanted to see his oxygen levels his oxygen levels were not great, but you know manageable. And I think, I don’t know how long but it was a couple of, you know, it wasn’t love between waters breaking, him being born and coming out, blue, and I mean really, blue, and I was because of the epidural I think I was in this weird, you know, place I didn’t really know, but I just can see a baby who’s really he really was. He didn’t make any noise, and they take him…I’m laying in a bed like this.
P: Yeah, horizontal…
C: and they took him across the corridor, and I can see loads of medical staff with their, you know PPE, as we all call it now would have medical clothes, all around this table I can’t, you know he’s gone. He’s just in a swarm of bodies, the placenta came out, and the doctor showed me, and I hadn’t really….No idea what a placenta looks like, like, like a sheet of paper with a hole in it. And so this is not normal, you know something, there was something wrong with the placenta. Did you have a trauma. No, you know, like a car accident, as if you wouldn’t mention your doctor physical trauma, no nothing, they presume that I had been hit. And because of, you know, there had been some kind of in their head, there’d been some damage to the placenta because everything had been progressing. Okay,
P: Yeah.
C: So when my husband arrived at the hospital he wasn’t able to come in, immediately because they wanted to ask questions to him and to me to try and, you know, make sure I guess that everything was safe and secure. We managed to convince them it was my placenta got sent to Germany, because it was so unusual. What they had seen but the, the placenta had failed, basically, for whatever reason, it had failed and Byron my, my son had had oxygen depletion at some level. I don’t know how much I don’t know for how long. But he had, he was a similar size, to his sister, you know, more or less, again under the two kilos, very small baby, but he was in an incubator, because they were worried about other you know complications with his lungs he hadn’t had steroids, which is something that they would have given you know if they’d known he was coming early to get his lungs up.
P: If you’d had time, Yeah,
C: with the eyes as well so he would have patches over his eyes. And again, he had no fat, like that. It’s weird to see but it’s what for me it wasn’t because of both babies looked the same, but it’s like a baby but shrunken because you’re used to seeing chubby arms or a big tummy. And it’s not like that they’ve got the skin. But you can you can almost see through it and you can’t see there’s no fat.
P: Yeah.
C: They look like so they’re their faces look very pulled. They look very pulled. Again we stayed in hospital, it’s obviously more complicated because we had my daughter at home, but I know that if we’d been in England, having Byron, he wouldn’t have survived. It was only…
P: Wow, why do you say that?
C: because you don’t have the same interventionist idea and follow on, and I know this because obviously I had a baby afterward in England that they would have been monitoring and checking, so much, and if he hadn’t come out that day. If I hadn’t have gone to the hospital. I’m 100% sure that we would have been looking at a very different result. For sure, I feel this really strongly that, you know, as much as I probably lean towards the natural birthing—even though my first two weren’t, I do thank God for the fact that the doctors were able to do this monitoring, you know, get him out. Give him everything he needed. Afterwards, monitoring me able to be looking at just, you know, all the different, you know, I had the blood flow or the oxygen flow into the placenta all of those things, and now he’s, again, he’s turning eight in a few weeks, very big, strong boy. He’s on the autistic spectrum. I don’t know whether that has maybe been linked to because of the birth I’m not sure. And I did have to take quite a lot of medication, with him, and you know, obviously, whatever had happened with the placenta.
P: I don’t think the medical community has nailed down definitive answer yet on what causes autism, but I asked Dr. Wilcox just from her experience about births like that of Charlotte son. I include this because I think as moms we feel responsible for everything our children encounter. Can you talk for a minute about autism, what are the current ideas about its origin and do you think oxygen deprivation, can lead to autism.
Dr. Wilcox: Yeah you know it’s not, not necessarily an area of my expertise, but that. I think the most current thoughts are it is a combination of genetic and environmental factors, certainly not typically oxygen deprivation oxygen deprivation during during labor, and during the delivery, certainly can cause brain injury. But that’s more of an acute presentation. That can lead to seizures that can lead to really significant physical and mental issues, but different from autism.
P: Okay. That’s useful.
C: he’s a very bright and quite energetic boy, but he does have some challenges now…so then when Byron was 10 months old we moved to England and I will still breastfeeding and around a month later I think, I found out I was pregnant again. And this one was a surprise where as the other two had you know pretty much been planned… this third one was a surprise and having morning sickness and breastfeeding is tough…is tough…so I would be breastfeeding, put the baby down, be sick, pick the baby up, breastfeed…
P: Wow, that sound like a lot
C: It was a lot but the English experience is completely different. You normally would not go with a doctor, you’d go with a midwife. They don’t just scan, they actually feel where the baby is, they’re measuring you, they ask you how you’re feeling, you know, just how you’re coping, they’re not like are you losing weight or are you gaining weight, but how you are actually feeling about this. In Spain, you go with a gynecologist obstetrician and and it’s very medical. Whereas in the UK, it’s obviously seen…it’s not medical because you’re not sick
P: right
C: so you don’t need to control it as much as you need to monitor and support it. In England you have only a scan at 12 weeks 26 + 38 that would be the norm. Everything had gone well, 38 weeks, about to take my daughter to school, had the baby in the pushchair, and my waters broke. I wasn’t really ready, which is ridiculous because you would’ve thought I would be, but I was not. Didn’t have a bag packed, so I call a friend. Nuno was in London, so I call him, I was like, you are in the country, we’re doing this…we can do this! Yeah. She took my daughter to the school. Fifteen minutes later I’m like wow, the contractions are heavy here and she’s like you need to go to the hospital now. And I was thinking, this is crazy, you know, it’s fifteen minutes….
P: yeah
C: And it’s only 20 minutes to the hospital. So I’m thinking, okay, it was an hour from where my husband was in the center of London to where we lived in Richmond and I had planned on staying home until he could…but no, I had to call a taxi, or she had called a taxi, and towel on the back, going through Richmond Park thinking oh my goodness I’m going to be having a baby in the middle of a park. Anyway, I get out of the taxi, waddle, waddle into the hospital reception..
P: yeah
C: and in a very English way, rather than screaming “I’m having a baby” I just went, “um, Excuse me?” like this…luckily the receptionist looked at me and obviously thought “woah, somethings going on there”. Nurse came over, went, Okay, immediately got a trolley, and I was on my knees, holding onto the trolley, scooted up an upstairs room. And it had been 35 minutes from waters breaking to now…
P: Wow
C: so she looked, and I was already fully dilated, or not fully but pretty much. A poor poor midwife, junior midwife came in and asked if I wanted a bath, she obviously hadn’t been told…I will always regret being so mean to her….and saying “no”, but not that nicely…I really wanted an epidural because the pain was horrendous, it was horrendous. I had a little bit of gas and air but I think I chewed the nozzle off. And I was on my all fours and yeah Elliot was born in less than an hour from what. Yeah. And it was horrendous. It was horrendous.
P: What Charlotte just described is known as precipitous labor, which is defined as a birth that takes place less than three hours after regular contractions have started as she knows a fast delivery while nice on paper is no picnic, a labor for someone who’s had kids before can last on average anywhere from three to 15 hours, and that time was well spent by your body, which uses it to slowly stretch a fast labor can lead to tears, it can be extremely painful as there’s very little break between contractions and hormones like oxytocin which decreases feelings of pain and promotes bonding are slowly released as the body progresses through various stages of labor. This release may not be well synced we’re rapidly we’re back to the interview.
C: And I had a stupid midwife, she said to me, I’d obviously told her this was my last baby and she goes, as this is your last. Aren’t you glad you did it all by yourself, as opposed to having, you know, an epidural. I you know I can still hear the exact words of it, thinking, hell no. I did all of them by myself.
P: Yeah, yeah, yeah.
C: Are you kidding me you know him but three times, all by myself. I really struggled really really struggled with this third pregnancy my mother arrived, Nuno arrived after an hour, but they were shocked because the baby was already my arms. I didn’t want to Hold baby. I didn’t want to try breastfeeding. I didn’t want to accept that I’d given birth or something anyway I really, really struggled to be bonding with this baby with, you know, with my son, maybe, normally in England they get you out quite quickly. Like sometimes you can give birth in the morning and they get you out by the evening.
P: Wow,
C: Well, it was yeah I mean really, I was in the hospital for a few days because they could see that I was not. I was going through the motions of it because especially as a third time mother, yeah they’re thinking how you know she’s gonna know exactly what to do. No problem. We know she’ll be fine. But I don’t know what I did what I read afterwards, these very fast labor’s, you don’t go through all of the different processes you don’t get the same hormonal release a different hormone release that tells you you know all the different things that you need to bond to you know all of those parts, it needs to be a slow release them to the baby home. Boy, it was a big baby quite, quite a big baby for me. And he had tongue tie quite bad tongue tie which was, you know, quite challenging for him breastfeeding so it’s not painful for me.
P: Yeah,
C: you have somebody come to the house to deal with Tongue Tie because they do it after I think two weeks old or something. And it was just amazing midwife. She obviously knew that something was up, I was having a hard time of it, because she stayed a long time and she talked to me a lot. She. She really understood that thing of women needing women. When you have a baby. Yeah, this my sister, she couldn’t come. For for that for Elliot’s birth or for afterwards, for a few days I mean not long time but I really missed, having her. She. Were you know and so, yeah, I missed that female thing, having that midwife come and just really be able to sit down and talk to me and just keep non judgement of the fact that you’re struggling to bond with your baby which everyone thinks is immediately normal.
P: Well, it’s also driven a lot by chemistry right as you described. And if you don’t, if your chemistry is not driving that it’s not really a choice, right, you know,
C: so but having somebody who sort of understood it, and then the thing about you know the UK, is that once you’ve had the baby. That’s it. You know, there’s a check at six weeks where, you know, they simply ask like are you, you know, are you suicidal. And if you’re not suicidal, then they’ll take drugs, and you’re done. And then after that the only person they care about is baby for vaccinations. Yeah, so there’s no follow up. And with the other two, a hadn’t needed it so much, but strangely with the third one that probably on paper look like an easier. Yeah, is hard time
P: that sounds really challenging, but now you’re now you’re just busy with three busy kids and
C: yeah I mean we deal with Byron’s autism. And, which is challenging but luckily my husband and I are on pretty much on the same page on most things. It’s all good lucky, after you know some challenges ahead. I think I think it’s all been pretty much I look back on it. It’s funny, I, I can see it’s more traumatic than when I was actually going through it. Yeah. But yeah, there we’ll get lucky there okay.
P: That’s awesome. That’s a great story so my last question for you is, if you could give advice to your younger self What would you tell her?
C: I think I would say, having another woman. Whether it’s a doula or a sister, a mother or a group of females. Yeah, really helps. And even if you’re like me and you’re quite independent, it really does support you in a way that even your closest husband partner, you know, can’t. And I think the other thing I would say is that to remember that when people are giving you advice, they are trying to help. They’re not judging you, but it does feel like it. And, you know, whether that’s why you’ve had a miscarriage, whether it’s breastfeeding, whether it’s. So, let the sort of society around help you. And you don’t have to listen to them all and you can do you know you can say, Yes, thank you. But you don’t have to be this sort of strong, I can do everything. mother is
P: Yeah.
C: And it is such a challenge and I think I’d like to ask for help, maybe a little bit more, tell people that you struggled with it, tell people that you are struggling with it. And whether that’s your husband, whether it’s you know whoever. Just ask for help. I think that’s probably what I would do if I did it differently. I, you know, I wouldn’t keep telling on, I was okay. I’m okay. I’m okay, because yeah it’s worked out in the end but it probably was a bit more difficult, because of doing it that way.
P: Yeah, that sounds like good advice. Charlotte, thanks so much for coming on here and sharing your story I think a lot of people will find it valuable. Thanks so much.
C: Again, you’re welcome.
P: Thanks again to Dr. Wilcox for sharing her medical expertise. Thank you for checking out this episode. An extended version of the show notes can be found on war stories.com. Those include links to medical issues we touched on this episode. If you enjoyed this story, please consider liking and subscribing to the podcast. I’ll be back soon with another inspiring story.